Psychometric testing of a set of patient-reported instruments to assess healthcare interventions for autistic adults

Autor: Mirah Scharer, Maslak Joelle T, Kelly Y. Zhen, Lisa A. Croen, Dora Raymaker, Christina Nicolaidis, Steven K. Kapp, Anna Urbanowicz, Junghee Lee

Publikováno v: Autism
Nicolaidis, C, Zhen, K Y, Lee, J, Raymaker, D M, Kapp, S K, Croen, L A, Urbanowicz, A, Maslak, J & Scharer, M 2020, ' Psychometric testing of a set of patient-reported instruments to assess healthcare interventions for autistic adults ', Autism . https://doi.org/10.1177/1362361320967178

There is a growing recognition of the need for interventions to improve the healthcare of autistic adults. However, there is a dearth of validated measures to evaluate such interventions. Our objectives were to use a community-based participatory res

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::79d4d70f94bdc11014bf749c2332dbb1
https://doi.org/10.1177/1362361320967178

Creating accessible survey instruments for use with autistic adults and people with intellectual disability: lessons learned and recommendations

Autor: Morrigan Hunter, Clarissa Kripke, Steven K. Kapp, Kelly Y. Zhen, Emily M. Lund, Dora Raymaker, Maslak Joelle T, Leanne Beers, Sandra Leotti, Katherine E. McDonald, Christina Nicolaidis, Marsha Katz

Publikováno v: Nicolaidis, C, Raymaker, D M, McDonald, K E, Lund, E M, Leotti, S, Kapp, S K, Katz, M, Beers, L M, Kripke, C, Maslak, J, Hunter, M & Zhen, K Y 2020, ' Creating accessible survey instruments for use with autistic adults and people with intellectual disability: lessons learned and recommendations ', Autism in Adulthood, vol. 2, no. 1 . https://doi.org/10.1089/aut.2019.0074
Autism in Adulthood

Despite growing appreciation of the need for research on autism in adulthood, few survey instruments have been validated for use with autistic adults. We conducted an institutional ethnography of two related partnerships that used participatory appro

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ac38d95c8a8cdcce7caf8a657c2b2892
https://researchportal.port.ac.uk/portal/en/publications/creating-accessible-survey-instruments-for-use-with-autistic-adults-and-people-with-intellectual-disability-lessons-learned-and-recommendations(c1fd55cd-5b6d-4ed1-b85f-718616858323).html