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Evaluation of a Multidimensional Cystic Fibrosis Transition Program: A Quality Improvement Initiative

Autor: Anna M. Gravelle, Mark A. Chilvers, A. George F. Davidson, Mary Paone

Publikováno v: Journal of Pediatric Nursing. 30:236-243

The adequate preparation of cystic fibrosis (CF) youth for the transfer from pediatric to adult-based health care services is essential to meet the needs of this changing population. This paper describes the evolution of a transition clinic for patie

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1c1a725429b2753ca723cf0f096ed162
https://doi.org/10.1016/j.pedn.2014.06.011

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The ON TRAC model for transitional care of adolescents

Autor: Margaret Wigle, Elizabeth M. Saewyc, Mary Paone

Publikováno v: Progress in Transplantation. 16:291-302

This article describes the framework and clinical pathway for ON TRAC (Taking Responsibility for Adolescent/Adult Care), a model of transition care for adolescents with chronic health conditions, as applied to pediatric transplant transition. This mo

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::d58bc124a77d3ad4dd26af338d822706
https://doi.org/10.7182/prtr.16.4.6l055204763t62v7

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Assessing readiness for transition from paediatric to adult health care: Revision and psychometric evaluation of the Am I ON TRAC for Adult Care questionnaire

Autor: Elizabeth M. Saewyc, Sandra Whitehouse, Mary Paone, Melissa Moynihan, Gladys McPherson

Publikováno v: Journal of advanced nursing. 71(6)

Aim To refine and psychometrically test the Am I ON TRAC for Adult Care questionnaire. Background Inadequate transition to adult care for adolescents with special healthcare needs has been associated with greater risk of treatment non-adherence, lack

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f32424407464af0f84b02a1105eecbc5
https://pubmed.ncbi.nlm.nih.gov/25616006

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51. JUST TRAC it!: Assessing a Mobile-Health (mhealth) Intervention for Youth With Chronic Health Conditions and/or Disabilities (CHC/Ds) to Encourage Engagement and Readiness Behaviors for Transition

Autor: Sandy Whitehouse, Mary Paone, Dewey Evans

Publikováno v: Journal of Adolescent Health. 56:S27-S28

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::27036a073ee2bff3ab1fc471d3cef209
https://doi.org/10.1016/j.jadohealth.2014.10.055

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Co-creation with TickiT : Designing and evaluating a clinical eHealth platform for youth

Autor: Mary Paone, Mariana Deevska, Pei-Yoong Lam, Daniel Penn, Robert M. Issenman, Ellen Balka, Shelagh McLellan, Sandy Whitehouse

Publikováno v: JMIR Research Protocols, Vol 2, Iss 2, p e42 (2013)
JMIR Research Protocols

BackgroundAll youth are susceptible to mental health issues and engaging in risky behavior, and for youth with chronic health conditions, the consequences can be more significant than in their healthy peers. Standardized paper-based questionnaires ar

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::483835b8666e50dcce557419ef3ec5f6
http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-202192