Zobrazeno 1 - 10
of 17
pro vyhledávání: '"Mary Kasule"'
Autor:
Dimpho Ralefala, Mary Kasule, Olivia P. Matshabane, Ambroise Wonkam, Mogomotsi Matshaba, Jantina de Vries
Publikováno v:
Global Bioethics, Vol 34, Iss 1, Pp 1-14 (2023)
ABSTRACTKey to discussions around feedback of individual results from genomics research are practical questions on how such results should be fed back, by who and when. However, there has been virtually no work investigating these practical considera
Externí odkaz:
https://doaj.org/article/063ea713ff6b4977a72efd0a620761e5
Publikováno v:
BMC Medical Ethics, Vol 24, Iss 1, Pp 1-10 (2023)
Abstract Purpose We explored the views of Botswana stakeholders involved in developing, implementing and applying ethical standards for return of individual study results from genomic research. This allowed for mapping opportunities and challenges re
Externí odkaz:
https://doaj.org/article/3fcc201483944e22866de0e976523ab8
Publikováno v:
BMC Medical Ethics, Vol 21, Iss 1, Pp 1-11 (2020)
Abstract Background A key ethical question in genomics research relates to whether individual genetic research results should be disclosed to research participants and if so, which results are to be disclosed, by whom and when. Whilst this issue has
Externí odkaz:
https://doaj.org/article/24c5711263794456ba1e45a22699448c
Autor:
Dolly Mogomotsi Ntseane, Joseph Ali, Kristina Hallez, Boikanyo Mokgweetsi, Mary Kasule, Nancy E. Kass
Publikováno v:
Global Bioethics, Vol 31, Iss 1, Pp 133-154 (2020)
Research ethics remains a cornerstone of the scientific enterprise as it defines the boundaries of responsible conduct of research. Our aim was to systematically identify, review and test online training courses in research ethics which could be cons
Externí odkaz:
https://doaj.org/article/d162e1f81250458587f7377a9690832f
Publikováno v:
Global Health, Epidemiology and Genomics, Vol 2022 (2022)
Background. The Human Health and Heredity (H3Africa) Consortium continues to generate large amounts of genomic data leading to new insights into health and disease among African populations. This has however generated debate among stakeholders involv
Externí odkaz:
https://doaj.org/article/9e8d6310dc264e83beb1885b2a815331
Autor:
Mary Kasule, Ntambwe Malangu
Publikováno v:
African Journal of Primary Health Care & Family Medicine, Vol 1, Iss 1, Pp e1-e6 (2009)
Background: This study sought to characterise acute poisoning cases seen in three health districts of Botswana. Method: A retrospective review of patients’ records was conducted and included patients treated from January 2004 to December 2005. Data
Externí odkaz:
https://doaj.org/article/2ffb271327e049368ef60b46a98ce4ad
Autor:
Dimpho Ralefala, Jantina de Vries, Mary Kasule, Mogomotsi Matshaba, Ambroise Wonkam, Olivia P. Matshabane
Publikováno v:
Journal of Empirical Research on Human Research Ethics
The feedback of individual results of genomics research is an ethical issue. However, which genetic results African participants would like to receive and why, remains unclear. A qualitative study was conducted to collect data from 44 adolescents and
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6c35718ef395832b04a321814efc6e9d
https://doi.org/10.1177/15562646211043985
https://doi.org/10.1177/15562646211043985
Publikováno v:
AJOB Empirical Bioethics. 13:48-56
Whilst informed consent is a key component of considering whether individual genomic research results could or should be fed back to research participants, little is known about the views of Africa...
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0d9bd9057bda47b80685ebe136c83a20
https://doi.org/10.1080/23294515.2021.1941414
https://doi.org/10.1080/23294515.2021.1941414
Purpose: We aimed to explore the views of stakeholders in Botswana involved in developing, implementing and applying ethical standards for return of individual study results from genomic research on feeding back individual genomic research results, t
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::b7e8fe345ae1ec1aa59b39b52bfbb99f
https://doi.org/10.21203/rs.3.rs-1524983/v1
https://doi.org/10.21203/rs.3.rs-1524983/v1
Autor:
Anne Drapkin Lyerly, Richard Beigi, Linda‐Gail Bekker, Benjamin H. Chi, Susan E. Cohn, Dázon Dixon Diallo, Joseph Eron, Ruth Faden, Elana Jaffe, Angela Kashuba, Mary Kasule, Carleigh Krubiner, Maggie Little, Joseph Mfustso‐Bengo, Lynne Mofenson, Victor Mwapasa, Lillian Mworeko, Landon Myer, Martina Penazzato, Annette Rid, Roger Shapiro, Jerome Amir Singh, Kristen Sullivan, Marissa Vicari, Jacque Wambui, Amina White, Marisha Wickremsinhe, Leslie Wolf
Publikováno v:
Journal of the International AIDS Society
Introduction While pregnant people have been an important focus for HIV research, critical evidence gaps remain regarding prevention, co‐infection, and safety and efficacy of new antiretroviral therapies in pregnancy. Such gaps can result in harm:
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::190486abf3fb623ca39a28a1589a36cb
http://europepmc.org/articles/PMC8673925
http://europepmc.org/articles/PMC8673925