Zobrazeno 1 - 10 of 31 pro vyhledávání: '"Mary K. Spraker"'
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More than keratitis, ichthyosis, and deafness: Multisystem effects of lethal GJB2 mutations
Autor: Alexander Maley, Barbara Binder, Adam E. Bennett, Karina L. Vivar, Keith A. Choate, Yasushi Ogawa, Amy Theos, Robert Sidbury, Earl J. Glusac, Gabriele Richard, Evelyn Lilly, Mary K. Spraker, Smail Hadj-Rabia, Masashi Akiyama, Raffaella A. Morotti, Shali Zhang, Lucia Seminario-Vidal, Christopher G. Bunick, Leonard M. Milstone
Publikováno v: Journal of the American Academy of Dermatology. 80:617-625
Background Infant death in keratitis-ichthyosis-deafness (KID) syndrome is recognized; its association with specific genotypes and pathophysiology is inadequately understood. Objective We sought to discover characteristics that account for poor outco
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d23c8b91aedfc4e433290af35b8146a8
https://doi.org/10.1016/j.jaad.2018.09.042
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3
Tools to study the severity of itch in 8- to 17-year-old children: Validation of TweenItchyQoL and ItchyQuant
Autor: Leslie P. Lawley, Mary K. Spraker, Grace Lee, Kuang-Ho Chen, Suephy C. Chen, S. Francois, Ha Eun Kong, Bridget Bradley, S. Smith, James S. Roberts
Publikováno v: Pediatric dermatologyREFERENCES. 38(5)
BACKGROUND/OBJECTIVES Validated pruritus-specific quality of life and self-reported severity instruments exist primarily for adults. Clinical trials to develop therapeutics for children with chronic pruritus are hampered by the paucity of appropriate
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::37bc84b4457d5c39b6d97b76099881ed
https://pubmed.ncbi.nlm.nih.gov/34339533
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4
Pruritus assessment tools for 6 to 7-year-old children: KidsItchyQoL and ItchyQuant
Autor: Mary K. Spraker, Suephy C. Chen, Ha Eun Kong, Leslie P. Lawley, Kuang-Ho Chen, James S. Roberts, S. Smith, S. Francois, Grace Lee
Publikováno v: Pediatric dermatologyREFERENCES. 38(3)
Background/objectives Measures of pruritus severity and quality of life (QoL) are necessary for the development of therapeutics for children with chronic pruritus. In children, questionnaires need to be developed for specific age groups given the dif
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::fab8390b690db06b1f259c18335becbe
https://pubmed.ncbi.nlm.nih.gov/33742480
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8
Annual Direct and Indirect Health Costs of the Congenital Ichthyoses
Autor: Steven D. Culler, Suephy C. Chen, Mary K. Spraker, Loebat Kamalpour, Zakiya P. Rice, Michelle Pavlis, James A. Kuo, Andrew R. Styperek
Publikováno v: Pediatric Dermatology. 27:325-336
The aim of this study is to estimate annual, per patient, health care costs for congenital ichthyoses (CI). We conducted a cost analysis through an online survey posted on the Foundation for Ichthyosis and Related Skin Types Website. We assessed cuta
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::decad13fd4badcf9ee782fb82425b40f
https://doi.org/10.1111/j.1525-1470.2010.01160.x
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9
Quality of Life of Cutaneous Disease in the Ectodermal Dysplasias
Autor: Zakiya P. Rice, Suephy C. Chen, Michelle Pavlis, Emir Veledar, Mary K. Spraker, Bridget Bradley
Publikováno v: Pediatric Dermatology. 27:260-265
The ectodermal dysplasias are a complex, heritable group of syndromes that affect derivatives of ectoderm. The dermatologist plays an important role in ectodermal dysplasias as the visible defects of skin, hair, and nails are often recognized first.
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::ed68bb2a16c6d0bf031de7093f61364d
https://doi.org/10.1111/j.1525-1470.2010.01121.x
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