Zobrazeno 1 - 10
of 78
pro vyhledávání: '"Mary Jo, Kupst"'
Autor:
Kara L Brown, Diane Fairclough, Robert B Noll, Maru Barrera, Mary Jo Kupst, Maria A Gartstein, Anna M Egan, Carolyn R Bates, Cynthia A Gerhardt, Kathryn Vannatta
Publikováno v:
Journal of Pediatric Psychology. 48:166-175
Objective The aim of this study was to examine the emotional well-being of pediatric brain tumor survivors (PBTS) from the perspective of children’s self-reports and parents’ reports relative to matched comparison peers (COMP) and their parents.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::835c71f7710b905f1b24e63277a980a0
https://doi.org/10.1093/jpepsy/jsac077
https://doi.org/10.1093/jpepsy/jsac077
Autor:
Carolyn R. Bates, Diane Fairclough, Robert B. Noll, Maru E. Barrera, Mary Jo Kupst, Anna M. Egan, Maria A. Gartstein, Emily L. Ach, Cynthia A. Gerhardt, Kathryn Vannatta
Publikováno v:
Pediatr Blood Cancer
BACKGROUND: Assessment of caregiver needs is a recommended standard of care in pediatric oncology. Caregivers of pediatric brain tumor survivors (PBTS) are a subgroup that may be at highest psychosocial risk. This study examined psychosocial function
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ceadeb236648540f38db6d89e4fc077b
https://doi.org/10.1002/pbc.29565
https://doi.org/10.1002/pbc.29565
Publikováno v:
Pediatr Blood Cancer
Fifteen evidence-based Standards of psychosocial care for children with cancer and their families have been established. Despite the importance of implementing the standards, significant barriers and challenges exist. In order to overcome barriers to
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::eb6f174b7fb53182014e6d3c14738253
https://doi.org/10.1002/pbc.28586
https://doi.org/10.1002/pbc.28586
Autor:
Andrea Farkas Patenaude, Fang Fang Chen, Michele A. Scialla, Mary Jo Kupst, Anna C. Muriel, Kimberly S. Canter, Lori Wiener, Anne E Kazak
Publikováno v:
Psycho-Oncology. 27:2802-2808
OBJECTIVE: This paper presents data on licensure/certification status, supervision of multidisciplinary pediatric psychosocial staff, and training opportunities in pediatric cancer programs in the United States (U.S.), data that is critical to provid
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::97403d7dcc2b9ee2e6d566782ad1ab80
https://doi.org/10.1002/pon.4892
https://doi.org/10.1002/pon.4892
Autor:
Kristin Bingen, Eva C. Guinan, Hocine Tighiouart, Susan K. Parsons, Grace Chang, Karen L. Syrjala, Angie Mae Rodday, Sunita K. Patel, Christina Ullrich, Norma Terrin, Mary Jo Kupst, Sean Phipps, Christopher J. Recklitis, Lynnette L. Harris
Publikováno v:
Cancer. 123:3159-3166
BACKGROUND The experience of children undergoing hematopoietic stem cell transplantation (HSCT), including the ways in which different participants (ie, children, parents, and nurses) contribute to the overall picture of a child's experience, is poor
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::f673da63bb74d8a2aa8fbdd070972d02
https://doi.org/10.1002/cncr.30723
https://doi.org/10.1002/cncr.30723
Autor:
Mary Jo Kupst, Jennifer L. Beaumont, Allison Piazza Fisher, John Devin Peipert, Jin Shei Lai, David Cella, Stewart Goldman
Publikováno v:
CancerReferences. 126(14)
Background Survivors of childhood brain tumors experience persistent health concerns across their lifespan. In the current study, the authors evaluated changes in symptom burden over the course of 12 months using pediatric Patient-Reported Outcomes M
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9b575d5938983dc64e7c9cb6bb27a7e9
https://pubmed.ncbi.nlm.nih.gov/32374469
https://pubmed.ncbi.nlm.nih.gov/32374469
Autor:
Stella M. Davies, Christopher J. Recklitis, Eva C. Guinan, Mary Jo Kupst, Joanne Wolfe, Lisa A. Schwartz, Grace Chang, Angie Mae Rodday, Kristin Bingen, Christina Ullrich, Karen L. Syrjala, Lynnette L. Harris, Sunita K. Patel, Susan K. Parsons
Publikováno v:
Biology of Blood and Marrow Transplantation. 22:104-111
Pediatric hematopoietic stem cell transplantation (HSCT) offers cure for high-risk malignancies and other conditions, but carries a risk of complications. Parental outlook regarding their child's transplantation course and future health has been larg
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7d7f31c6b3ec13b3cd64369b0623b254
https://doi.org/10.1016/j.bbmt.2015.08.040
https://doi.org/10.1016/j.bbmt.2015.08.040
Publikováno v:
Journal of psychosocial oncology. 37(3)
To (a) describe the decision-making experience and psychosocial outcome of sibling hematopoietic stem cell (HSC) donors, and (b) to determine the feasibility of completing a prospective and longitudinal assessment of HSC sibling donors at a single in
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::97301eb983396f983e9707203cff6ea1
https://pubmed.ncbi.nlm.nih.gov/30372379
https://pubmed.ncbi.nlm.nih.gov/30372379
Autor:
Stewart Goldman, Peter E. Manley, Mary Jo Kupst, William F. Hartsell, Jennifer L. Beaumont, Young Kwok, Jin Shei Lai, Allison Piazza Fisher, John Han Chih Chang
Publikováno v:
Pediatric bloodcancer. 66(3)
BACKGROUND: Children with brain tumors can experience symptom burden throughout their disease continuum. The aim of the study was to evaluate symptom burden reported by children with brain tumors and factors that potentially were associated with thei
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3b2f0c416f1af5f7abd63000e4a41c1d
https://pubmed.ncbi.nlm.nih.gov/30426667
https://pubmed.ncbi.nlm.nih.gov/30426667
Autor:
Mary Jo Kupst, Craig Lustig
Publikováno v:
Journal of oncology practice. 1(4)
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f521ec577248f29333b718aeecb33cef
https://pubmed.ncbi.nlm.nih.gov/29442588
https://pubmed.ncbi.nlm.nih.gov/29442588