Zobrazeno 1 - 10
of 47
pro vyhledávání: '"Marleen Decruyenaere"'
Autor:
Paul Clement, Marleen Decruyenaere, Anne Mees, Wendy Sterckx, Bernadette Dierckx de Casterlé, Steven De Vleeschouwer, Annemarie Coolbrandt, Sonja Borgenon
Publikováno v:
European Journal of Oncology Nursing. 19:383-390
Purpose Patients with high-grade glioma (HGG) face debilitating symptoms and a poor prognosis. The aims of this study were to better understand how patients with HGG experience life with a brain tumor, and to explore their professional care needs. Me
Autor:
Joris Vandenberghe, Koen Milisen, Nele Baeten, Marleen Decruyenaere, Paul Clement, Michele Pennemans, Johan Menten, Etienne Joosten, Elke Detroyer
Publikováno v:
Palliative Medicine. 28:79-86
Background: The Delirium Observation Screening Scale (DOS) is designed to detect delirium by nurses’ observations and has shown good psychometric properties. Its use in palliative care unit patients has not been studied. Aim: To determine diagnosti
Autor:
Gerry Evers-Kiebooms, Marleen Decruyenaere, Jean-Pierre Fryns, K Philippe, Koen Demyttenaere, René Dom, Andrea Boogaerts, Wim Vandenberghe
Publikováno v:
European Journal of Human Genetics. 15:453-462
The aim of this study was to describe reproductive decisions in mutation carriers after predictive testing for Huntington's disease (HD) and to identify factors that play a role in decision-making. In 1987-2004, 245 individuals received a predictive
Autor:
Sonja Borgenon, Marleen Decruyenaere, Steven De Vleeschouwer, Bernadette Dierckx de Casterlé, Wendy Sterckx, Annemarie Coolbrandt, Paul Clement, Annemie Mees
Publikováno v:
Cancer nursing. 38(5)
Background The poor prognosis and disabling symptoms of a high-grade glioma (HGG) affect not only the patient but place high demands on family caregivers. Objective The objective of this study was to explore the experience of family caregivers of pat
Autor:
Gerry Evers-Kiebooms, K Philippe, Marleen Decruyenaere, Lieve Denayer, Eric Legius, Erna Claes, Andrea Boogaerts
Publikováno v:
Behavioral Medicine. 31:93-106
This article describes breast or ovarian cancer surveillance practices and prophylactic surgery involving 34 carriers and 34 noncarriers of a BRCA1/2 mutation within the year after predictive testing. It also evaluates the effect of the predictive te
Autor:
Jean-Pierre Fryns, René Dom, Gerry Evers-Kiebooms, Koen Demyttenaere, Andrea Boogaerts, Marleen Decruyenaere
Publikováno v:
European Journal of Human Genetics. 13:1077-1085
This study focuses on psychological distress and coping strategies in partners of tested persons 5 years after predictive testing for Huntington's disease. A total of 16 carrier-couples and 17 noncarrier-couples participated in the study. Self-report
Autor:
Lieve Denayer, Erna Claes, Eric Legius, Andrea Boogaerts, Marleen Decruyenaere, Gerry Evers-Kiebooms
Publikováno v:
Genetic Testing. 8:13-21
The aim of this retrospective, exploratory study was to gain insight into how cancer patients who had a diagnostic genetic test for hereditary breast and/or ovarian cancer looked back on the pre-test period and to gain insight into the psychological
Autor:
Koen Demyttenaere, Marleen Decruyenaere, Gerry Evers-Kiebooms, René Dom, T Cloostermans, Jean-Pierre Fryns, Andrea Boogaerts
Publikováno v:
Clinical Genetics. 65:24-31
This study focuses on the partner relationship of tested persons, 5 years after their predictive test result for Huntington's disease (HD). We describe changes in marital status, quality of the relationship, and perceived changes in the relationship.
Autor:
Gerry Evers-Kiebooms, René Dom, Marleen Decruyenaere, Koen Demyttenaere, T Cloostermans, Andrea Boogaerts, Jean Pierre Fryns
Publikováno v:
European Journal of Human Genetics. 11:30-38
The paper reports on a 5-year longitudinal study on psychological distress after predictive testing for Huntington's disease (HD) and on correlates of post-test distress. Psychometric tests and questionnaires were used. The tested persons were invite
Autor:
Christine Sevilla, Hagay Sobol, François Eisinger, Gerry Evers-Kiebooms, Marleen Decruyenaere, Myriam Welkenhuysen, Claire Julian-Reynier, Penelope Hopwood, Pascale Bourret, Brigitte Schlegelberger, D G R Evans, Gad Rennert, G. Borreani, Eric Legius, Laura Gangeri, Irmgard Nippert, Aad Tibben, Lea Hagoel, Sara Dishon, C. J. van Asperen
Publikováno v:
Public Health Genomics. 6:192-205
Objective: To conduct a survey in seven European cancer genetics centres to compare service provision, organisation and practices for familial breast and colon cancer consultations and testing. Information was obtained on aspects of services both nat