Zobrazeno 1 - 10
of 141
pro vyhledávání: '"Marjolijn Ketelaar"'
Autor:
Iona Novak, Michael Fahey, Bernard Dan, Simon Craig, Alexandra Griffin, Paul Gross, Mikkel Damgaard Justiniano, Annabel Webb, Maria Mc Namara, Jens Bo Nielsen, Thomas Snelling, Anina Ritterband-Rosenbaum, M. Wade Shrader, Lars Adde, Catherine Arnaud, Marina Brandao, Sylvain Brochard, Annemieke Buizer, Charlie Fairhurst, Darcy Fehlings, Kathleen Friel, Andrea Guzzetta, Ann-Christin Eliasson, Christina Høi-Hansen, Reidun Birgitta Jahnsen, Mette Johansen, Angelina Kakooza Mwesige, Marjolijn Ketelaar, Karin Lind, Egmar Longo, Bente Maimann, Ronit Mesterman, Jenna Mitchell, Elegast Monbaliu, Catherine Morgan, Christopher J. Newman, Els Ortibus, Gija Rackauskaite, Solveig Sigurdardottir, Tom Snelling
Publikováno v:
The Lancet Regional Health. Europe, Vol 44, Iss , Pp 101015- (2024)
Externí odkaz:
https://doaj.org/article/d2cedf89144745a8a754c0f46b8b94f0
Autor:
Nathalie J.S. Patty, Karen M. van Meeteren, Minke Verdonk, Marjolijn Ketelaar, Carlo Schuengel, Agnes M. Willemen
Publikováno v:
PEC Innovation, Vol 5, Iss , Pp 100325- (2024)
Objective: The purpose of this study was to investigate how parents of children with complex care needs conceptualize burnout from the perspective of parents themselves. Methods: We conducted semi-structured interviews with 38 parents, selected for m
Externí odkaz:
https://doaj.org/article/4957a348a1834318841c3d1ebcb37c92
Autor:
Anne Wettergren Karlsson, Anne Kragh-Sørensen, Kirsten Børgesen, Karsten Erik Behrens, Torben Andersen, Maiken Langhoff Kidholm, Mette Juel Rothmann, Marjolijn Ketelaar, Astrid Janssens
Publikováno v:
Research Involvement and Engagement, Vol 9, Iss 1, Pp 1-27 (2023)
Abstract Background Recent studies mention a need to investigate partnership roles and dynamics within patient and public involvement and engagement (PPIE) in health research, and how impact and outcomes are achieved. Many labels exist to describe in
Externí odkaz:
https://doaj.org/article/e6bb6c0b8a3c41e0b873a31bb816d8c3
Autor:
Marjolijn Ketelaar, Aukje Andringa, Kirsten Veerkamp, Marij Roebroeck, Martijn Klem, Hurnet Dekkers, Jeanine Voorman, Marieke van Driel, Annemieke Buizer
Publikováno v:
BMJ Open, Vol 13, Iss 10 (2023)
Introduction Cerebral palsy (CP) is a childhood onset, lifelong, condition. Early detection and timely treatment of potential problems during the child’s development are important to prevent secondary impairments and improve function. Clinical mana
Externí odkaz:
https://doaj.org/article/85f6714f22014793bb990779086940b5
Autor:
Linda Nguyen, Bente van Oort, Hanae Davis, Eline van der Meulen, Claire Dawe-McCord, Anita Franklin, Jan Willem Gorter, Christopher Morris, Marjolijn Ketelaar
Publikováno v:
Research Involvement and Engagement, Vol 8, Iss 1, Pp 1-14 (2022)
Plain English summary In more and more projects, researchers and young people are working together in partnership; but there is little guidance about how to organize this partnership. In this paper, we share what partnerships in six projects from Can
Externí odkaz:
https://doaj.org/article/75338d2ceaa647bf95edeef37bd63f43
Autor:
Gerjanne J. van Alphen, MD, MSc, Marjolijn Ketelaar, PhD, Jeanine M. Voorman, MD, PhD, Eline W.M. Scholten, PhD, Marcel W.M. Post, PhD
Publikováno v:
Archives of Rehabilitation Research and Clinical Translation, Vol 4, Iss 4, Pp 100240- (2022)
Objective: To explore and compare the contents and scores of the Assessment of Life Habits (Life-H) with the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in adolescents with cerebral palsy. Design: Youth versions
Externí odkaz:
https://doaj.org/article/86802e06642648efa622551689cc603e
Autor:
Kinga Pozniak, Francine Buchanan, Andrea Cross, Jennifer Crowson, Barb Galuppi, Danijela Grahovac, Jan Willem Gorter, Oksana Hlyva, Marjolijn Ketelaar, Olaf Kraus de Camargo, Manda Krpan Mesic, Rachel Martens, Dayle McCauley, Linda Nguyen, Robert J. Palisano, Michelle Phoenix, Connie Putterman, Peter Rosenbaum, Jennifer Sprung, Sonya Strohm, Rachel Teplicky, Donna Thomson, Marilyn Wright
Publikováno v:
Research Involvement and Engagement, Vol 7, Iss 1, Pp 1-15 (2021)
Plain English summary More and more patients and family members are getting involved in health research studies as partners. However we do not know much about what happens after the research study ends. This article looks at how parents have been inv
Externí odkaz:
https://doaj.org/article/682ef8147f164d82b5f7baf6cfb37343
Publikováno v:
Research Involvement and Engagement, Vol 6, Iss 1, Pp 1-13 (2020)
Plain English summary Background Young people with a chronic condition are increasingly involved in doing research and developing tools and interventions that concern them. Working together with patients is called Patient and Public Involvement (PPI)
Externí odkaz:
https://doaj.org/article/860e3d830c39489eae974a9c8c9fc2d9
Publikováno v:
Research Involvement and Engagement, Vol 6, Iss 1, Pp 1-7 (2020)
Abstract Background Interest in patient involvement in research is growing. Research should rather be ‘with’ or ‘by’ patients, and not only be ‘about’ or ‘for’ patients. Patients’ active involvement in research is not self-evident a
Externí odkaz:
https://doaj.org/article/5c2fe67e532d4b81bb3895a5d6c8ee06
Autor:
Eline W. M. Scholten, Julia D. H. P. Simon, Tijn van Diemen, Chantal F. Hillebregt, Marjolijn Ketelaar, Kees Hein Woldendorp, Rutger Osterthun, Johanna M. A. Visser-Meily, POWER Group, Marcel W. M. Post
Publikováno v:
BMC Psychology, Vol 8, Iss 1, Pp 1-11 (2020)
Abstract Background Many significant others of persons with serious conditions like spinal cord injury (SCI) and acquired brain injury (ABI) report high levels of psychological distress. In line with the stress-coping model, the aim of the present st
Externí odkaz:
https://doaj.org/article/3bce6ef70421481b9d4569942c750d89