Výsledky vyhledávání - "Marinka L F, Hol"

Akademický článek

Patient‐reported outcomes in childhood head and neck rhabdomyosarcoma survivors and their relation to physician‐graded adverse events—A multicenter study using the FACE‐Q Craniofacial module

Autor: Michèle Morfouace, Marinka L. F. Hol, Reineke A. Schoot, Olga Slater, Daniel J. Indelicato, Frédéric Kolb, Ludwig E. Smeele, Johannes H. M. Merks, Charlene Rae, Heleen Maurice‐Stam, Anne F. Klassen, Martha A. Grootenhuis

Publikováno v: Cancer Medicine, Vol 12, Iss 4, Pp 4739-4750 (2023)

Abstract Introduction Adverse events (AE) of treatment are prevalent and diverse in head and neck rhabdomyosarcoma (HNRMS) survivors. These AEs are often reported by physicians; however, patients' perceptions of specific AE are not well known. In thi

Externí odkaz: https://doaj.org/article/bf2de645851648dbb7f1608f1c3d0e19

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Imaging in rhabdomyosarcoma: a patient journey

Autor: Isabelle S. A. de Vries, Roelof van Ewijk, Laura M. E. Adriaansen, Anneloes E. Bohte, Arthur J. A. T. Braat, Raquel Dávila Fajardo, Laura S. Hiemcke-Jiwa, Marinka L. F. Hol, Simone A. J. ter Horst, Bart de Keizer, Rutger R. G. Knops, Michael T. Meister, Reineke A. Schoot, Ludi E. Smeele, Sheila Terwisscha van Scheltinga, Bas Vaarwerk, Johannes H. M. Merks, Rick R. van Rijn

Publikováno v: Pediatric Radiology. 53:788-812

Rhabdomyosarcoma, although rare, is the most frequent soft tissue sarcoma in children and adolescents. It can present as a mass at nearly any site in the body, with most common presentations in the head and neck, genitourinary tract and extremities.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::396b232bdbbd56b5a571da9336dc7545
https://doi.org/10.1007/s00247-023-05596-8

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Psychometric Validation of the FACE-Q Craniofacial Module for Facial Nerve Paralysis

Autor: Jonathan H Norris, Marinka L. F. Hol, Lucas Gallo, Teresa O, Heather L. Baltzer, Andrea L. Pusic, David W. Johnson, Karen W. Y. Wong Riff, Dylan J. Murray, Charlene Rae, Nancy Van Laeken, Anne F. Klassen, Stefan J. Cano, Kathleen R. Bogart

Publikováno v: Facial Plastic Surgery and Aesthetic Medicine, 24(1), 1-7. Mary Ann Liebert Inc.

Background: Systematic reviews have identified the need for a patient-reported outcome measure for facial nerve paralysis (FNP). The aim of this study was to determine the psychometric properties of FACE-Q Craniofacial module scales when used in a co

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d7ce1bb58b06726bcd2c352ad766ec48
https://doi.org/10.1089/fpsam.2020.0575

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FACE-Q Craniofacial Module: Part 1 validation of CLEFT-Q scales for use in children and young adults with facial conditions

Publikováno v: Journal of plastic, reconstructive & aesthetic surgery, 74(9), 2319-2329. Churchill Livingstone

Summary Background The CLEFT-Q includes 12 independently functioning scales that measure appearance (face, nose, nostrils, teeth, lips, jaws), health-related quality of life (psychological, social, school, speech distress), and speech function, and a

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cda2fa2dd55c0b68295ddb077ae3d171
https://doi.org/10.1016/j.bjps.2021.05.040

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Correction to: Imaging in rhabdomyosarcoma: a patient journey

Autor: Isabelle S. A. de Vries, Roelof van Ewijk, Laura M. E. Adriaansen, Anneloes E. Bohte, Arthur J. A. T. Braat, Raquel Dávila Fajardo, Laura S. Hiemcke‑Jiwa, Marinka L. F. Hol, Simone A. J. ter Horst, Bart de Keizer, Rutger R. G. Knops, Michael T. Meister, Reineke A. Schoot, Ludi E. Smeele, Sheila Terwisscha van Scheltinga, Bas Vaarwerk, Johannes H. M. Merks, Rick R. van Rijn

Publikováno v: Pediatric Radiology. 53:1043-1043

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::0dd360461a6983ba18ec8e306c6d9190
https://doi.org/10.1007/s00247-023-05642-5

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Patient-reported outcomes in childhood head and neck rhabdomyosarcoma survivors and their relation to physician-graded adverse events—A multicenter study using the FACE-Q Craniofacial module

Publikováno v: Cancer medicine. John Wiley and Sons Ltd

Introduction: Adverse events (AE) of treatment are prevalent and diverse in head and neck rhabdomyosarcoma (HNRMS) survivors. These AEs are often reported by physicians; however, patients' perceptions of specific AE are not well known. In this study,

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2bc904d6ef03528629e2c0cc41fa57f3
http://www.scopus.com/inward/record.url?scp=85139426430&partnerID=8YFLogxK

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Patterns of Hearing Loss in Irradiated Survivors of Head and Neck Rhabdomyosarcoma

Autor: Franciscus A. Diepstraten, Jan Wiersma, Reineke A. Schoot, Rutger R. G. Knops, Charlotte L. Zuur, Annelot J. M. Meijer, Raquel Dávila Fajardo, Bradley R. Pieters, Brian V. Balgobind, Henrike Westerveld, Nicole Freling, Harm van Tinteren, Ludwig E. Smeele, Arjan Bel, Marry M. van den Heuvel-Eibrink, Robert J. Stokroos, Johannes H. M. Merks, Alexander E. Hoetink, Marinka L. F. Hol

Publikováno v: Cancers, 14(23):5749. Multidisciplinary Digital Publishing Institute (MDPI)
Diepstraten, F A, Wiersma, J, Schoot, R A, Knops, R R G, Zuur, C L, Meijer, A J M, Dávila Fajardo, R, Pieters, B R, Balgobind, B V, Westerveld, H, Freling, N, van Tinteren, H, Smeele, L E, Bel, A, van den Heuvel-Eibrink, M M, Stokroos, R J, Merks, J H M, Hoetink, A E & Hol, M L F 2022, ' Patterns of Hearing Loss in Irradiated Survivors of Head and Neck Rhabdomyosarcoma ', Cancers, vol. 14, no. 23, 5749 . https://doi.org/10.3390/cancers14235749
Cancers; Volume 14; Issue 23; Pages: 5749
Cancers, 14(23). MDPI

Simple Summary Hearing loss (HL) can be a side effect of paediatric cancer treatment and can be caused by chemotherapy but also local therapies such as radiotherapy and/or surgery of the head and neck region. In this study, the frequency and patterns

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e0cd4a58d31d873e51cd94cafd42fb74
https://doi.org/10.3390/cancers14235749

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FACE-Q craniofacial module: Part 2 Psychometric properties of newly developed scales for children and young adults with facial conditions

Publikováno v: Journal of plastic, reconstructive & aesthetic surgery, 74(9), 2330-2340. Churchill Livingstone

Summary Background The FACE-Q Craniofacial Module is a patient-reported outcome measure designed for patients aged 8 to 29 years with conditions associated with a facial difference. In part 1, we describe the psychometric findings for the original CL

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f682982b5eaa4bf4ce1ded73890b491d
https://pubmed.ncbi.nlm.nih.gov/34172403

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Facial asymmetry in head and neck rhabdomyosarcoma survivors

Autor: Reineke A, Schoot, Marinka L F, Hol, Johannes H M, Merks, Michael, Suttie, Olga, Slater, Marinde, van Lennep, Saskia M J, Hopman, David, Dunaway, Jonathan, Syme-Grant, Ludi E, Smeele, Koos H, Zwinderman, Huib N, Caron, Peter, Hammond

Publikováno v: Pediatric bloodcancer. 64(10)

Radiotherapy is essential for achieving and maintaining local control in head and neck rhabdomyosarcoma (HNRMS) patients. However, radiotherapy may cause outgrowth disturbances of facial bone and soft tissue, resulting in facial asymmetry. The aim of

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::a1b88a5173d56de8ca5cef3b203dffbb
https://pubmed.ncbi.nlm.nih.gov/28423221

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