OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions

Autor: Karine Toupin-April, Jennifer L. Barton, Liana Fraenkel, Alexa Meara, Linda C. Li, Peter Brooks, Maarten de Wit, Dawn Stacey, France Légaré, Beverley Shea, Anne Lyddiatt, Cathie Hofstetter, Robin Christensen, Marieke Scholte Voshaar, Maria E. Suarez-Almazor, Annelies Boonen, Tanya Meade, Lyn March, Janet Elizabeth Jull, Willemina Campbell, Rieke Alten, Suvi Karuranga, Esi M. Morgan, Ayano Kelly, Jessica Kaufman, Sophie Hill, Lara J. Maxwell, Dorcas Beaton, Yasser El-Miedany, Shikha Mittoo, Susan J. Bartlett, Jasvinder A. Singh, Peter S. Tugwell

Publikováno v: Toupin-April, K, Barton, J L, Fraenkel, L, Meara, A, Li, L C, Brooks, P, de Wit, M, Stacey, D, Légaré, F, Shea, B, Lyddiatt, A, Hofstetter, C, Christensen, R, Scholte Voshaar, M, Suarez-Almazor, M E, Boonen, A, Meade, T, March, L, Jull, J E, Campbell, W, Alten, R, Karuranga, S, Morgan, E M, Kelly, A, Kaufman, J, Hill, S, Maxwell, L J, Beaton, D, El-Miedany, Y, Mittoo, S, Bartlett, S J, Singh, J A & Tugwell, P S 2019, ' OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions ', Journal of Rheumatology, vol. 46, no. 10, pp. 1409-1414 . https://doi.org/10.3899/jrheum.181071
Journal of rheumatology, 46(10), 1409-1414. Journal of Rheumatology
Journal of Rheumatology, 46(10), 1409-1414. Journal of Rheumatology Publishing Co. Ltd.

Objective.The Outcome Measures in Rheumatology (OMERACT) Shared Decision Making (SDM) Working Group aims to determine the core outcome domain set for measuring the effectiveness of SDM interventions in rheumatology trials.Methods.A white paper was de

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::380f1b00587525d117e3056189191baa
https://cris.maastrichtuniversity.nl/en/publications/36ef3572-dc0d-4f19-9928-57232f73464c

Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes: results of an expert group meeting organized by the World Health Organization (WHO) and the European Society for Clinical and Economic Aspects of Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (ESCEO)

Autor: Nasser M. Al-Daghri, Famida Jiwa, Mila Vlaskovska, Daniel Pinto, Philip G. Conaghan, Andrea Laslop, Isabelle Aujoulat, John R. Kirwan, Mary Barker, Wendy Lawrence, Jean-Yves Reginster, Concepción Prieto Yerro, Véronique Rabenda, Marieke Scholte-Voshaar, Cyrus Cooper, Peter Tugwell, Islene Araujo de Carvalho, Maarten de Wit, Olivier Bruyère, John A. Kanis, René Rizzoli, Nathalie Bere, Nicola Bedlington, P. Halbout, Maria Luisa Brandi, Charlotte Roberts, Mickaël Hiligsmann, Nansa Burlet

Publikováno v: de Wit, M, Cooper, C, Tugwell, P, Bere, N, Kirwan, J, Conaghan, P G, Roberts, C, Aujoulat, I, Al-Daghri, N, Araujo de Carvalho, I, Barker, M, Bedlington, N, Brandi, M L, Bruyère, O, Burlet, N, Halbout, P, Hiligsmann, M, Jiwa, F, Kanis, J A, Laslop, A, Lawrence, W, Pinto, D, Prieto Yerro, C, Rabenda, V R, Rizzoli, R, Scholte-Voshaar, M, Vlaskovska, M & Reginster, J-Y 2019, ' Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes: results of an expert group meeting organized by the World Health Organization (WHO) and the European Society for Clinical and Economic Aspects of Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (ESCEO) ', Aging Clinical and Experimental Research, vol. 31, no. 7, pp. 905-915 . https://doi.org/10.1007/s40520-019-01193-8
Aging Clinical and Experimental Research, p. 11p. (2019)
Aging Clinical and Experimental Research
de Wit, M, Cooper, C, Tugwell, P, Bere, N, Kirwan, J, Conaghan, P G, Roberts, C, Aujoulat, I, Al-Daghri, N, Araujo de Carvalho, I, Barker, M, Bedlington, N, Brandi, M L, Bruyère, O, Burlet, N, Halbout, P, Hiligsmann, M, Jiwa, F, Kanis, J A, Laslop, A, Lawrence, W, Pinto, D, Prieto Yerro, C, Rabenda, V, Rizzoli, R, Scholte-Voshaar, M, Vlaskovska, M & Reginster, J-Y 2019, ' Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes : results of an expert group meeting organized by the World Health Organization (WHO) and the European Society for Clinical and Economic Aspects of Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (ESCEO) ', Aging: Clinical and Experimental research, vol. 31, no. 7, pp. 905-915 . https://doi.org/10.1007/s40520-019-01193-8

There is increasing emphasis on patient-centred research to support the development, approval and reimbursement of health interventions that best meet patients' needs. However, there is currently little guidance on how meaningful patient engagement m

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c0e12f410743d2401c87bb8e998a24e5
http://www.scopus.com/inward/record.url?scp=85064564369&partnerID=8YFLogxK

Scope of Outcomes in Trials and Observational Studies of Interventions Targeting Medication Adherence in Rheumatic Conditions: A Systematic Review

Autor: Daniel Sumpton, Robin Christensen, Shahrzad Salmasi, Vicki Evans, Kathleen Tymms, Suzanne M M Verstappen, Karine E. Manera, Charlotte L Bekker, Bart J F van den Bemt, Mary A. De Vera, Peter Tugwell, Ayano Kelly, Susan J. Bartlett, Lyn March, Robby Nieuwlaat, Luke Crimston-Smith, Marieke Scholte-Voshaar, Allison Tong, Maarten de Wit, Jasvinder A. Singh, Michael Gill, Karine Toupin-April

Publikováno v: Kelly, A, Crimston-Smith, L, Tong, A, Bartlett, S J, Bekker, C, Christensen, R, De Vera, M A, de Wit, M, Evans, V, Gill, M, March, L, Manera, K, Nieuwlaat, R, Salmasi, S, Scholte-Voshaar, M, Singh, J A, Sumpton, D, Toupin-April, K, Tugwell, P, van den Bemt, B, Verstappen, S & Tymms, K 2020, ' Scope of outcomes in trials and observational studies of interventions targeting medication adherence in rheumatic conditions : A systematic review ', Journal of Rheumatology, vol. 47, no. 10, pp. 1565-1574 . https://doi.org/10.3899/jrheum.190726
The Journal of Rheumatology, 47, 10, pp. 1565-1574
Journal of rheumatology, 47(10), 1565-1574. Journal of Rheumatology
The Journal of Rheumatology, 47, 1565-1574

Objective.Nonadherence to medications is common in rheumatic conditions and associated with increased morbidity. Heterogeneous outcome reporting by researchers compromises the synthesis of evidence of interventions targeting adherence. We aimed to as

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::31e2c3e083933dccd7f3bc0bb24a3ca7
https://pubmed.ncbi.nlm.nih.gov/33004483

FRI0742-HPR Eular recommendations for the role of the nurse in the management of chronic inflammatory arthritis: 2018 update

Autor: Marieke Scholte-Voshaar, A. van Tubergen, Heidi A. Zangi, Bianca Bech, Y. van Eijk-Hustings, Jette Primdahl

Publikováno v: FRIDAY, 15 JUNE 2018.

Background: During the past years an increasing number of papers regarding rheumatology nursing have been published, which may contribute to a higher level of evidence and increased insight into the nurses’ roles. Objectives: To update the EULAR re

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::1e3f3cbb323524424074731817f451f3
https://doi.org/10.1136/annrheumdis-2018-eular.4482

Safety of synthetic and biological DMARDs: a systematic literature review informing the 2016 update of the EULAR recommendations for management of rheumatoid arthritis

Autor: Sofia Ramiro, Alexandre Sepriano, Katerina Chatzidionysiou, Jackie L Nam, Josef S Smolen, Désirée van der Heijde, Maxime Dougados, Ronald van Vollenhoven, Johannes W Bijlsma, Gerd R Burmester, Marieke Scholte-Voshaar, Louise Falzon, Robert B M Landewé

Publikováno v: Annals of the Rheumatic Diseases, 76(6), 1093-1101. BMJ Publishing Group
Annals of the Rheumatic Diseases, 76(6), 1093-1101
Ramiro, S, Sepriano, A, Chatzidionysiou, K, Nam, J L, Smolen, J S, Van Der Heijde, D, Dougados, M, Van Vollenhoven, R, Bijlsma, J W, Burmester, G R, Scholte-Voshaar, M, Falzon, L & Landewé, R B M 2017, ' Safety of synthetic and biological DMARDs : A systematic literature review informing the 2016 update of the EULAR recommendations for management of rheumatoid arthritis ', Annals of the Rheumatic Diseases, vol. 76, no. 6, pp. 1093-1101 . https://doi.org/10.1136/annrheumdis-2016-210708
Annals of the rheumatic diseases, 76(6), 1101-1136. BMJ Publishing Group

ObjectivesTo assess the safety of synthetic (s) and biological (b) disease-modifying antirheumatic drugs (DMARDs) for the management of rheumatoid arthritis (RA) to inform the European League Against Rheumatism recommendations for the management of R

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0ef69cd9a886bc8092d42c3cf1a44727
https://hdl.handle.net/1887/114619