Zobrazeno 1 - 10
of 81
pro vyhledávání: '"Marie‐Eve Carrier"'
Autor:
Tiffany Dal Santo, Meira Golberg, Elsa-Lynn Nassar, Marie-Eve Carrier, Sophie Hu, Linda Kwakkenbos, Susan J. Bartlett, Rina S. Fox, Yvonne C. Lee, John Varga, Andrea Benedetti, Brett D. Thombs, the Scleroderma Patient-centered Intervention Network Pain Patient Advisory Team
Publikováno v:
BMC Rheumatology, Vol 8, Iss 1, Pp 1-9 (2024)
Abstract Introduction Systemic sclerosis (SSc) is a rare, complex autoimmune rheumatic disease with multiple factors that contribute to pain. People with SSc emphasize the effect pain has on their quality of life, but no studies have systematically e
Externí odkaz:
https://doaj.org/article/1b221b0ba16346d487a83b57e4a19497
Autor:
Amanda Wurz, Kelsey Ellis, Julia Nordlund, Marie-Eve Carrier, Vanessa Cook, Amy Gietzen, Claire Adams, Elsa-Lynn Nassar, Danielle B. Rice, Catherine Fortune, Genevieve Guillot, Tracy Mieszczak, Michelle Richard, Maureen Sauve, Brett D. Thombs
Publikováno v:
Research Involvement and Engagement, Vol 10, Iss 1, Pp 1-9 (2024)
Abstract Background Patient engagement in research is important to ensure research questions address problems important to patients, that research is designed in a way that can effectively answer those questions, and that findings are applicable, rel
Externí odkaz:
https://doaj.org/article/9e98323255c24919bd54375bed8aa53a
Autor:
Arsène Mekinian, Thierry Martin, Eric Hachulla, Carter Thorne, Danielle Rice, Andrea Benedetti, Brooke Levis, Virginia Steen, Paul R Fortin, Vincent Poindron, Aurélien Guffroy, David Launay, Luc Mouthon, Mandana Nikpour, John Varga, Benjamin Chaigne, Sindhu R Johnson, Sébastien Rivière, Michael Hughes, Daphna Harel, Marie-Eve Carrier, Karen Nielsen, Susan J Bartlett, Karen Gottesman, Ghassan El-Baalbaki, Kim Fligelstone, Catherine Fortune, Tracy Frech, Marie Hudson, Maggie Larche, Catarina Leite, Janet Pope, Anne A Schouffoer, Maria E Suarez-Almazor, Christian Agard, Marc André, Sabine Berthier, Lyne Bissonnette, Alessandra Bruns, Patricia Carreira, Marion Casadevall, Lorinda Chung, Christopher Denton, Robyn Domsic, James V Dunne, Bertrand Dunogue, Regina Fare, Dominique Farge-bancel, Jessica Gordon, Brigitte Granel-Rey, Genevieve Gyger, Monique Hinchcliff, Alena Ikic, Niall Jones, Suzanne Kafaja, Nader Khalidi, Marc Lambert, Hélène Maillard, Joanne Manning, Ariel Masetto, François Maurier, Susanna Proudman, Alexis Régent, David Robinson, Sophie Roux, Perrine Smets, Vincent Sobanski, Robert Spiera, Evelyn Sutton, Pearce Wilcox, Laurent Alric, Grégory Pugnet, François Rannou, Amy Gietzen, Christelle Nguyen, Michelle Richard, Nancy Maltez, Isabelle Marie, Mara Cañedo Ayala, Geneviève Guillot, Elana J Bernstein, Brett Thombs, Paul Legendre, Thylbert Deltombe, Sabrina Hoa, Laura K Hummers, Sophie Blaise, Yvonne C Lee, Louis Olagne, Marie-Claude Geoffroy, Richard S Henry, Robyn Wojeck, Maureen Mayes, Tiffany Dal Santo, Kimberly Lakin, Gabrielle Virgili-Gervais, Vanessa Malcarne, Claire E Adams, Rodriguez-Reyna Tatiana Sofia, Floryan Beaslay, Eva Bories, Carlotta Cacciatore, Benjamin Crichi, Tannvir Desroche, Loraine Gauzère, Anne Gerber, Maria Martin Lopez, Sheila Melchor Díaz, Morgane Mourguet, Loïc Raffray, Frederic Renou, Esther Rodríguez Almazar, Damien Vagner, Vanessa Cook, Sophie Hu, Elsa-Lynn Nassar, Marieke Alexandra Neyer, Sabrina Provencher
Publikováno v:
RMD Open, Vol 10, Iss 1 (2024)
Objective The objectives were to (1) compare satisfaction with social roles and activities in a large multinational systemic sclerosis (SSc) cohort to general population normative data and (2) identify sociodemographic, lifestyle and SSc disease fact
Externí odkaz:
https://doaj.org/article/013d8f853a3b4acc8eb9cc91a6f17411
Autor:
Robyn K. Wojeck, Mitchell R. Knisely, Donald E. Bailey, Tamara J. Somers, Linda Kwakkenbos, Marie-Eve Carrier, Warren R. Nielson, Susan J. Bartlett, Vanessa L. Malcarne, Marie Hudson, Brooke Levis, Andrea Benedetti, Luc Mouthon, Brett D. Thombs, Susan G. Silva, Claire E. Adams, Richard S. Henry, Catherine Fortuné, Karen Gottesman, Geneviève Guillot, Laura K. Hummers, Amanda Lawrie-Jones, Maureen D. Mayes, Michelle Richard, Maureen Sauvé, Shervin Assassi, Ghassan El-Baalbaki, Kim Fligelstone, Tracy Frech, Amy Gietzen, Daphna Harel, Monique Hinchcliff, Sindhu R. Johnson, Maggie Larche, Catarina Leite, Christelle Nguyen, Karen Nielsen, Janet Pope, François Rannou, Tatiana Sofia Rodriguez-Reyna, Anne A. Schouffoer, Maria E. Suarez-Almazor, Christian Agard, Nassim Ait Abdallah, Marc André, Elana J. Bernstein, Sabine Berthier, Lyne Bissonnette, Alessandra Bruns, Patricia Carreira, Marion Casadevall, Benjamin Chaigne, Lorinda Chung, Benjamin Crichi, Christopher Denton, Robyn Domsic, James V. Dunne, Bertrand Dunogue, Regina Fare, Dominique Farge-Bancel, Paul R. Fortin, Jessica Gordon, Brigitte Granel-Rey, Aurélien Guffroy, Genevieve Gyger, Eric Hachulla, Sabrina Hoa, Alena Ikic, Suzanne Kafaja, Nader Khalidi, Kimberly Lakin, Marc Lambert, David Launay, Yvonne C. Lee, Hélène Maillard, Nancy Maltez, Joanne Manning, Isabelle Marie, Maria Martin Lopez, Thierry Martin, Ariel Masetto, François Maurier, Arsene Mekinian, Sheila Melchor Díaz, Mandana Nikpour, Louis Olagne, Vincent Poindron, Susanna Proudman, Alexis Régent, Sébastien Rivière, David Robinson, Esther Rodríguez Almazar, Sophie Roux, Perrine Smets, Vincent Sobanski, Robert Spiera, Virginia Steen, Evelyn Sutton, Carter Thorne, John Varga, Pearce Wilcox, Mara Cañedo Ayala, Vanessa Cook, Sophie Hu, Bianca Matthews, Elsa-Lynn Nassar, Marieke Alexandra Neyer, Julia Nordlund, Sabrina Provencher
Publikováno v:
EClinicalMedicine, Vol 62, Iss , Pp 102104- (2023)
Summary: Background: Systemic sclerosis is a heterogenous disease in which little is known about patterns of patient-reported symptom clusters. We aimed to identify classes of individuals with similar anxiety, depression, fatigue, sleep disturbance,
Externí odkaz:
https://doaj.org/article/3c82e788a0114b59adfd3e08502ac600
Autor:
Linda Kwakkenbos, Marie-Eve Carrier, Joep Welling, Brooke Levis, Alexander W. Levis, Maureen Sauve, Kimberly A. Turner, Lydia Tao, Kylene Aguila, Andrea Carboni-Jiménez, Mara Cañedo-Ayala, Sami Harb, Cornelia van den Ende, Marie Hudson, Ward van Breda, Christelle Nguyen, Isabelle Boutron, François Rannou, Brett D. Thombs, Luc Mouthon, on behalf of the SPIN Investigators
Publikováno v:
Trials, Vol 23, Iss 1, Pp 1-15 (2022)
Abstract Background Systemic sclerosis (scleroderma; SSc) is a rare autoimmune connective tissue disease. Functional impairment of hands is common. The Scleroderma Patient-centered Intervention Network (SPIN)-HAND trial compared effects of offering a
Externí odkaz:
https://doaj.org/article/bc0a0a490e994772ab9cec7d9191cb84
Autor:
Brett D. Thombs, Brooke Levis, Marie-Eve Carrier, Laura Dyas, Julia Nordlund, Lydia Tao, Kylene Aguila, Angelica Bourgeault, Violet Konrad, Maureen Sauvé, Kerri Connolly, Richard S. Henry, Nora Østbø, Alexander W. Levis, Linda Kwakkenbos, Vanessa L. Malcarne, Ghassan El-Baalbaki, Marie Hudson, Amanda Wurz, S. Nicole Culos-Reed, Robert W. Platt, Andrea Benedetti, SPIN-SSLED Support Group Leader Advisory Team
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-15 (2022)
Abstract Background More people with rare diseases likely receive disease education and emotional and practical support from peer-led support groups than any other way. Most rare-disease support groups are delivered outside of the health care system
Externí odkaz:
https://doaj.org/article/c710a221a3894860bfac4e9025743c1b
Autor:
Karima Becetti, Joseph T. Nguyen, Linda Kwakkenbos, Marie‐Eve Carrier, Lydia Tao, Jessica K. Gordon, Carol A. Mancuso, Joep Welling, Luc Mouthon, Susan J. Bartlett, Vanessa L. Malcarne, Brett D. Thombs, Robert F. Spiera, Scleroderma Patient‐Centered Intervention Network Investigators
Publikováno v:
ACR Open Rheumatology, Vol 4, Iss 8, Pp 647-657 (2022)
Objective Systemic sclerosis (SSc) has significant psychosocial implications. We aimed to evaluate the proportion of participants in a large international SSc cohort who used mental health services in a 3‐month period and to evaluate demographic, p
Externí odkaz:
https://doaj.org/article/8ae0f0a94aa44ac3adaca03eb1ac8bb5
Autor:
Linda Kwakkenbos, Nora Østbø, Marie-Eve Carrier, Warren R. Nielson, Claire Fedoruk, Brooke Levis, Richard S. Henry, Janet Pope, Tracy Frech, Shadi Gholizadeh, Sindhu R. Johnson, Pamela Piotrowski, Lisa R. Jewett, Jessica Gordon, Lorinda Chung, Dan Bilsker, Lydia Tao, Kimberly A. Turner, Julie Cumin, Joep Welling, Catherine Fortuné, Catarina Leite, Karen Gottesman, Maureen Sauvé, Tatiana Sofia Rodriguez Reyna, Marie Hudson, Maggie Larche, Ward van Breda, Maria E. Suarez-Almazor, Susan J. Bartlett, Vanessa L. Malcarne, Maureen D. Mayes, Isabelle Boutron, Luc Mouthon, Andrea Benedetti, Brett D. Thombs, on behalf of the SPIN Investigators
Publikováno v:
Pilot and Feasibility Studies, Vol 8, Iss 1, Pp 1-15 (2022)
Abstract Background The Scleroderma Patient-centered Intervention Network (SPIN) developed an online self-management program (SPIN-SELF) designed to improve disease-management self-efficacy in people with systemic sclerosis (SSc, or scleroderma). The
Externí odkaz:
https://doaj.org/article/b34149341f2740519aca1039e7c0187a
Autor:
Julia Nordlund, Richard S. Henry, Linda Kwakkenbos, Marie-Eve Carrier, Brooke Levis, Warren R. Nielson, Susan J. Bartlett, Laura Dyas, Lydia Tao, Claire Fedoruk, Karen Nielsen, Marie Hudson, Janet Pope, Tracy Frech, Shadi Gholizadeh, Sindhu R. Johnson, Pamela Piotrowski, Lisa R. Jewett, Jessica Gordon, Lorinda Chung, Dan Bilsker, Alexander W. Levis, Kimberly A. Turner, Julie Cumin, Joep Welling, Catherine Fortuné, Catarina Leite, Karen Gottesman, Maureen Sauve, Tatiana Sofía Rodríguez-Reyna, Maggie Larche, Ward van Breda, Maria E. Suarez-Almazor, Amanda Wurz, Nicole Culos-Reed, Vanessa L. Malcarne, Maureen D. Mayes, Isabelle Boutron, Luc Mouthon, Andrea Benedetti, Brett D. Thombs, on behalf of the SPIN Investigators
Publikováno v:
Trials, Vol 22, Iss 1, Pp 1-22 (2021)
Abstract Background Systemic sclerosis (scleroderma; SSc) is a rare autoimmune connective tissue disease. We completed an initial feasibility trial of an online self-administered version of the Scleroderma Patient-centered Intervention Network Self-M
Externí odkaz:
https://doaj.org/article/1357d21853f5484f8f43ccef5c8ce654
Autor:
Nora Østbø, Elizabeth Y. Jimenez, Sami Harb, Angelica Bourgeault, Marie‐Eve Carrier, Brett D. Thombs, the Scleroderma Patient‐Centered Intervention Network (SPIN) Diet and Nutrition Education Patient Advisory Team
Publikováno v:
ACR Open Rheumatology, Vol 3, Iss 8, Pp 540-549 (2021)
Objective Where people with systemic sclerosis (SSc) (or scleroderma) obtain diet and nutrition information to manage their disease is not known. Objectives were to identify 1) resources used by people with SSc for nutrition and diet information and
Externí odkaz:
https://doaj.org/article/0ab2adcd4c0740379c1c07318c3f9ff1