Support Needs of Patients with Cushing’s Disease and Cushing’s Syndrome: Results of a Survey Conducted in Germany and the USA

Autor: Ilonka Kreitschmann-Andermahr, Sonja Siegel, Christa Gammel, Karen Campbell, Leslie Edwin, Agnieszka Grzywotz, Victoria Kuhna, Maria Koltowska-Häggström, Oliver Müller, Michael Buchfelder, Bernadette Kleist

Publikováno v: International Journal of Endocrinology, Vol 2018 (2018)

Background. Cushing’s disease (CD) and Cushing’s syndrome (CS) are chronic illnesses, characterized by symptoms of prolonged hypercortisolism, which often changes to hypocortisolism after successful treatment. In view of the high disease burden o

Externí odkaz: https://doaj.org/article/055fa52dbf4046a696ef0419d9190e51

Social, educational and vocational outcomes in patients with childhood-onset and young-adult-onset growth hormone deficiency

Autor: Maria Koltowska-Häggström, Márta Korbonits, Andy Toogood, Peter Jonsson, Ann-Charlotte Åkerblad, Helena Gleeson, M. Tanya Mitra, Peter E. Clayton

Publikováno v: Mitra, M T, Jönsson, P J, Akerbald, A-C, Clayton, P, Koltowska-Häggström, M, Korbonits, M, Toogood, A & Gleeson, H 2017, ' Social, Educational, and Vocational Outcomes in Patients with Childhood Onset and Young Adult Onset Growth Hormone Deficiency ', Clinical Endocrinology . https://doi.org/10.1111/cen.13291

Objective Hypopituitarism diagnosed in childhood, adolescence and young adulthood has the potential to affect growth and somatic development. Less is known about the impact of such a diagnosis on other aspects of development. Design An analysis of th

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e1847c38d4f61df539b3fb3f4fab5eeb
https://doi.org/10.1111/cen.13291

Coping strategies have a strong impact on quality of life, depression, and embitterment in patients with Cushing’s disease

Autor: Oliver Müller, Sonja Siegel, Tsambika Psaras, Monika Milian, Dagmar Führer, Maria Koltowska-Häggström, Bernadette Kleist, Michael Buchfelder, Christa Menzel, Jürgen Honegger, Ulrich Sure, Ilonka Kreitschmann-Andermahr, Maria Tsiogka

Publikováno v: Pituitary. 19:590-600

Quality of life (QoL) and psychosocial well-being are substantially impaired in patients with Cushing’s disease (CD), not only at the acute illness stage but also after therapy; however, the reason for these impairments remains unclear. In this cro

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c5ea4193f1f05628077b540962336437
https://doi.org/10.1007/s11102-016-0750-1

Long-term treatment with pegvisomant as monotherapy in patients with acromegaly: experience from acrostudy

Autor: Maria Koltowska-Häggström, Murray B. Gordon, Pamela U. Freda, Nicky Kelepouris, Peter Jonsson, A. J. van der Lely

Publikováno v: Endocrine Practice, 21(3), 264-274. American Association of Clinical Endocrinology

Objective: To evaluate use of pegvisomant, a growth hormone (GH) receptor antagonist, as monotherapy in ACROSTUDY, a global safety surveillance study set in 14 countries (373 sites). Methods: A descriptive analysis of safety, magnetic resonance imagi

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9e2d3ac85d2b5f75bdc0fb3ba30e779a
https://doi.org/10.4158/EP14330.OR

Predictors of the effects of 4 years of growth hormone replacement on bone mineral density in patients with adult-onset growth hormone deficiency - a KIMS database analysis

Autor: David M. Cook, Susan L. Greenspan, Donna King, Maria Koltowska-Häggström, Amir H. Hamrahian, Peter Jonsson, Nicholas A. Tritos, Beverly M. K. Biller

Publikováno v: Clinical Endocrinology. 79:178-184

SummaryObjective Growth hormone (GH) replacement may increase bone mineral density (BMD) in GH-deficient (GHD) adults. The goal of this study was to identify predictors of BMD response to GH replacement in GH naive adults. Design and measurements Thi

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::973ac0de3f578ac01d9506bd175a639e
https://doi.org/10.1111/cen.12132