Zobrazeno 1 - 2
of 2
pro vyhledávání: '"Maria Kösters"'
Publikováno v:
Journal of Community Genetics
Legal, financial and organizational challenges and the absence of coherent international guidelines and legal frameworks still discourage many genetic studies to share individual research results with their participants. Studies and institutions deci
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3394b208323887e8773a09a3446cdf8b
https://doi.org/10.1007/s12687-021-00536-1
https://doi.org/10.1007/s12687-021-00536-1
Autor:
Max Borsche, Christine Klein, Ciara Staunton, Michael Krawczak, Deborah Mascalzoni, Andrew A. Hicks, Maria Kösters, Alessandro De Grandi, Roberta Biasiotto, Sara Frygner-Holm, Norbert Brüggemann, Martin Goegele, Peter P. Pramstaller
Publikováno v:
European Journal of Human Genetics
Recall by genotype (RbG) studies aim to better understand the phenotypes that correspond to genetic variants of interest, by recruiting carriers of such variants for further phenotyping. RbG approaches pose major ethical and legal challenges related
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ae3bcbb81b76cc6f6b31fe788a4510f5
https://eprints.mdx.ac.uk/33602/1/41431_2021_Article_860.pdf
https://eprints.mdx.ac.uk/33602/1/41431_2021_Article_860.pdf
