Výsledky vyhledávání - "Maria E. Santaella"

Physical therapy within US HTCs: A multicentre survey of utilization, practice patterns and pain management approaches

Autor: Jennifer R. Newman, Nancy Durben, Kimberly Baumann, Angela Y. Lambing, Cynthia D. Nichols, Michelle Witkop, Maria E. Santaella, Tyler W. Buckner

Publikováno v: Haemophilia. 28:343-350

Practice patterns and utilization of physical therapists (PTs) affiliated with Hemophilia Treatment Centers (HTCs) in the United States (US) are not well known.Describe utilization, role responsibilities and practice patterns of US HTC PTs. Identify

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c4706e4f1dbad243b084f82ea4e3db26
https://doi.org/10.1111/hae.14501

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A descriptive study of United States bleeding disorders camps

Autor: Cynthia D. Nichols, Maria E Santaella, Michelle Witkop

Publikováno v: The Journal of Haemophilia Practice. 8:1-10

Background Disease-specific camps present one means of helping children overcome the challenges associated with chronic conditions and improving clinical and psychosocial outcomes. For more than 50 years, bleeding disorders camps (BDCs) in the United

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::811ffe4347e601b155c33b9227c28ece
https://doi.org/10.17225/jhp00171

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Building the blueprint: Formulating a community-generated national plan for future research in inherited bleeding disorders

Autor: Leonard A. Valentino, Michelle L. Witkop, Maria E. Santaella, Donna DiMichele, Michael Recht

Publikováno v: Haemophilia : the official journal of the World Federation of Hemophilia. 28(5)

Decades of inherited bleeding disorders (BD) research transformed severe haemophilia from a childhood killer to a disorder managed across a full lifespan for many in economically developed countries. Health equity, a life unimpaired by disease compli

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2f8e6085159f167977c7f0ebce8f4cb4
https://pubmed.ncbi.nlm.nih.gov/35700441

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National Hemophilia Foundation Enlists Diverse Patient Voices to Inform a National Research Blueprint for Inherited Bleeding Disorders

Autor: Kevin Mills, Michelle Witkop, Leonard A. Valentino, Michael Recht, Maria E Santaella, Donna DiMichele

Publikováno v: Blood. 138:1904-1904

Background: The inherited bleeding disorder (IBD) community has witnessed significant advances in care, yet important gaps persist, particularly in rare disorders and underserved populations. An initiative spearheaded by the National Hemophilia Found

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::50f2f76b6a03e32ede989a8995a68d95
https://doi.org/10.1182/blood-2021-147857

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Bleeding Disorder Data Registry Reveals Racial/Ethnic Disparities That Could Significantly Impact Patient Journey

Autor: Michelle Witkop, Rosaura Vidal, Maria E Santaella, Leonard A. Valentino, Cynthia D. Nichols

Publikováno v: Blood. 138:5004-5004

Background: Community Voices in Research (CVR) is the National Hemophilia Foundation's community-powered registry designed to provide researchers with a firsthand, 360-degree view of what it means to live with an inherited bleeding disorder (IBD) by

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::0ff5d029c3dafee98ca3055f70d86578
https://doi.org/10.1182/blood-2021-148025

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