Zobrazeno 1 - 1
of 1
pro vyhledávání: '"Mahmut Coker MD"'
Autor:
Christian J. Hendriksz MD, Christine Lavery, Mahmut Coker MD, Sema Kalkan Ucar MD, Mohit Jain PhD, Lisa Bell PhD, Christina Lampe MD
Publikováno v:
Journal of Inborn Errors of Metabolism and Screening, Vol 2 (2014)
This international survey performed by direct personal interview or mail evaluated the global burden among primary caregivers of patients with Morquio A syndrome. Collected outcomes included self-reported time spent on caregiving, proportion of daily
Externí odkaz:
https://doaj.org/article/cea0cfc121104bd9af0f1652ae8c81b1
