The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial

Autor: Evelyn Sutton, Lorinda Chung, Sophie Roux, Robert Spiera, Maria E. Suarez-Almazor, Thierry Martin, Shadi Gholizadeh, Carolyn Ells, Isabelle Marie, Louis Olagne, Monique Hinchcliff, Karen Nielsen, Geneviève Guillot, Alena Ikic, Jessica K. Gordon, Christian Agard, Maria Gagarine, Hélène Maillard, Julie Cumin, Angelica Bourgeault, David Robinson, Susanna Proudman, Amy Gietzen, Maureen D. Mayes, François Rannou, Dan Bilsker, Joanne Manning, Richard S. Henry, Ariel Masetto, Isabelle Boutron, Catherine Fortune, Elana J. Bernstein, Carter Thorne, Cornelia H. M. van den Ende, Christopher P. Denton, Sindhu R. Johnson, Regina Fare, Nassim Ait Abdallah, Alexander W. Levis, Maria Martin, Sabrina Hoa, Eric Hachulla, Anne A. Schouffoer, Susan J. Bartlett, Marie Hudson, Sébastien Rivière, Pearce G. Wilcox, Mara Cañedo Ayala, Sheila Melchor, Ariane L. Herrick, Tracy M. Frech, Andrea Benedetti, Laura Dyas, Janet E. Pope, Dominique Farge-Bancel, Andrea Carboni Jiménez, Maggie Larché, Perrine Smets, Vanessa L. Malcarne, Julia Nordlund, Marie-Nicole Discepola, Lyne Bissonnette, Maureen Sauve, Christelle Nguyen, Marion Casadevall, Brett D. Thombs, Karen Gottesman, Patricia Carreira, Marie-Eve Carrier, Sabine Berthier, Mandana Nikpour, Alexandra Albert, Luc Mouthon, Alessandra Bruns, Claire Fedoruk, John Varga, Linda Kwakkenbos, Vincent Poindron, Brooke Levis, Shervin Assassi, Amanda Wurz, Benjamin Crichi, Daphna Harel, Suzanne Kafaja, Esther Rodriguez, Nancy Maltez, Vincent Sobanski, Catarina Leite, Marc André, François Maurier, Ghassan El-Baalbaki, Lisa R. Jewett, Nora Østbø, Marc Lambert, Michelle Richard, James V. Dunne, Niall Jones, Robyn T. Domsic, Kimberly A. Turner, Chase Correia, Joep Welling, Nicole Culos-Reed, Benjamin Chaigne, Kim Fligelstone, Tatiana Sofia Rodriguez-Reyna, Paul R. Fortin, Bertrand Dunogue, Virginia D. Steen, Warren R. Nielson, Ward van Breda, Arsene Mekinian, Nader Khalidi, Brigitte Granel-Rey, David Launay, Pamela Piotrowski, Alexis Régent, Genevieve Gyger, Robert Riggs, Lydia Tao

Publikováno v: Trials, Vol 22, Iss 1, Pp 1-22 (2021)
Trials
SPIN Investigators 2021, ' The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program : protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial ', Trials, vol. 22, 856, pp. 856-856 . https://doi.org/10.1186/s13063-021-05827-z
Trials, 22
Trials, 22:856, 856-856. BioMed Central

Background Systemic sclerosis (scleroderma; SSc) is a rare autoimmune connective tissue disease. We completed an initial feasibility trial of an online self-administered version of the Scleroderma Patient-centered Intervention Network Self-Management

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4efe637031e7ea4a14d754b4459075e4
https://doaj.org/article/1357d21853f5484f8f43ccef5c8ce654

Pulmonary arterial hypertension screening practices in scleroderma patients among Canadian rheumatologists

Autor: Karen A. Beattie, Ryan Quinn, Dylan Kelly, Deborah Koh, Maggie Larché

Publikováno v: J Scleroderma Relat Disord

Background: Current international guidelines recommend annual screening for pulmonary arterial hypertension with transthoracic echocardiogram and pulmonary function testing in all patients with scleroderma (systemic sclerosis). Our objectives were to

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cbf6751da0eb772912409313dfabf09b
https://doi.org/10.1177/2397198320942038

Lasting changes to circulating leukocytes in people with mild SARS-CoV-2 infections

Autor: Manali Mukherjee, Ishac Nazy, Kiho Son, Laura Cook, Brenda L. Coleman, Angela Huynh, Maggie Larché, Allison E. Kennedy, Parameswaran Nair, Dawn M. E. Bowdish, Kjetil Ask, Megan K. Levings, Mark Larché, Jessica G. Wallace, Hannah D. Stacey, Nathan Hambly, Braeden Cowbrough, Jonathan L. Bramson, James W. Smith, Jessica A. Breznik, Matthew S. Miller, Allison McGeer, Sarah Svenningsen, Jann Ang

Survivors of severe SARS-CoV-2 infections frequently suffer from a range of post-infection sequelae. Whether survivors of mild or asymptomatic infections can expect any long-term health consequences is not yet known. Herein we investigated lasting ch

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::de78a256c8ea0bb0d77ed7db702ec0c4
https://doi.org/10.1101/2021.09.25.21264117

Ultrasonography supplements clinical exam to improve early rheumatoid arthritis disease activity monitoring in metatarsophalangeal joints

Autor: Myriam Allen, George Ioannidis, Hanyan Zou, Karen A. Beattie, Maggie Larché

Publikováno v: Clinical Rheumatology. 39:1483-1491

Compared with clinical examination (CE), ultrasonography (US) provides additional and more accurate assessment of inflammation and visualization of structural damage. To better understand the effectiveness of US in metatarsophalangeal joints (MTPJs),

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::7990ff4789530af81c806fa287e2ebbb
https://doi.org/10.1007/s10067-019-04896-5

Prevalence and trajectory of erosions, synovitis, and bone marrow edema in feet of patients with early rheumatoid arthritis

Autor: Saara Totterman, Hanyan Zou, Zechen Ma, Karen A. Beattie, Maggie Larché, Mary-Clair Yelovich

Publikováno v: Clinical Rheumatology.

Despite erosions being as prevalent in feet as in hands in patients with rheumatoid arthritis (RA), their development in relation to synovitis and bone marrow edema (BME) have mainly been studied in hands. This study examines the prevalence and longi

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::c8e60ac4f7b5aaf50e664bbfc1f06ffe
https://doi.org/10.1007/s10067-021-05695-7