Zobrazeno 1 - 10
of 26
pro vyhledávání: '"Magdalena, Harrington"'
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-12 (2021)
Abstract Background Mucopolysaccharidosis II (MPS II) is a rare lysosomal storage disease characterized by cognitive impairment in most patients. This post hoc analysis evaluated changes in cognitive function, adaptive behavior and functional outcome
Externí odkaz:
https://doaj.org/article/44de2c37ddfc4aaa9ede06d95e6cbadb
Autor:
Magdalena Harrington, Asha Hareendran, Anne Skalicky, Hilary Wilson, Marci Clark, Jaromir Mikl
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 3, Iss 1, Pp 1-14 (2019)
Abstract Background Capturing the impact of caring for patients with debilitating rare disease is important for understanding disease burden. We aimed to develop and validate an instrument to measure the impact on caregivers of caring for children wi
Externí odkaz:
https://doaj.org/article/dbf688b2323b48aca9cb9a7be9c2f38c
Autor:
Magdalena Harrington, Diane Whalley, James Twiss, Rebecca Rushton, Susan Martin, Lynn Huynh, Hongbo Yang
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-10 (2019)
Abstract Background and methods Metachromatic leukodystrophy (MLD) is a rare, autosomal recessive lysosomal storage disease caused by deficient activity of arylsulfatase A. Neurological involvement results in severe disability and premature death, bu
Externí odkaz:
https://doaj.org/article/f760d622afd149518047e9b57dec587f
Autor:
Katharine Gries, Pamela Berry, Magdalena Harrington, Mabel Crescioni, Mira Patel, Katja Rudell, Shima Safikhani, Sheryl Pease, Margaret Vernon
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 2, Iss 1, Pp 1-14 (2018)
Abstract Background In the development of patient-reported outcome (PRO) instruments, little documentation is provided on the justification of response scale selection. The selection of response scales is often based on the developers’ preferences
Externí odkaz:
https://doaj.org/article/29de06cef59f4d348ff58b59257382a0
Autor:
Larry, Alphs, Dong-Jing, Fu, David, Williamson, Carol, Jamieson, John, Greist, Magdalena, Harrington, Jean-Pierre, Lindenmayer, Cheryl, McCullumsmith, David V, Sheehan, Richard C, Shelton, Paul, Wicks, Carla M, Canuso
Publikováno v:
Innov Clin Neurosci
OBJECTIVE: Most assessments of suicidal ideation and behavior (SIB) are limited by reliance on a single assessor, typically a clinician or patient, with scant detail on patient-related drivers of SIB and inability to detect rapid change in SIB. Furth
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::dedc6cb3e7dd6bb06366b790bc837d06
https://pubmed.ncbi.nlm.nih.gov/35958973
https://pubmed.ncbi.nlm.nih.gov/35958973
Autor:
Susan E. Ramsey, Patricia A. Engler, Magdalena Harrington, Robert J. Smith, Mark J. Fagan, Michael D. Stein, Peter Friedmann
Publikováno v:
Substance Abuse: Research and Treatment, Vol 2010, Iss 4, Pp 1-8 (2010)
Twenty-eight patients with diabetes who screened positive for at-risk drinking were assigned to brief alcohol intervention (BAI) (n = 14) or standard care (SC) (n = 14) treatment conditions. All participants completed a baseline interview and one-, t
Externí odkaz:
https://doaj.org/article/84ef4e5493794eaea3a3604a2918db09
Publikováno v:
Assessment
A limitation of norm-based ability test scores is that they can only be used to evaluate relative change (compared with change in the norm sample), as opposed to absolute (raw) change in performance from Time 1 to Time 2. To address this limitation,
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b9f8279b0a6c08d13e9462c1b8121d43
https://doi.org/10.1177/1073191119872250
https://doi.org/10.1177/1073191119872250
Autor:
Jaromir Mikl, Magdalena Harrington, Marci Clark, Anne Skalicky, Asha Hareendran, Hilary Wilson
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 3, Iss 1, Pp 1-14 (2019)
Journal of Patient-Reported Outcomes
Journal of Patient-Reported Outcomes
Background Capturing the impact of caring for patients with debilitating rare disease is important for understanding disease burden. We aimed to develop and validate an instrument to measure the impact on caregivers of caring for children with three
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::22db387f869ba6a8abbc4e91489f3811
http://link.springer.com/article/10.1186/s41687-019-0140-3
http://link.springer.com/article/10.1186/s41687-019-0140-3
Publikováno v:
Psychological Assessment. 30:1300-1307
Self-efficacy, or perceived competence, has been identified as an important factor in self-management behaviors and health outcomes in patients with chronic disease. Measures of self-management self-efficacy are currently available for multiple forms
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2d0879a66147c7904fe21d2c02512c1e
https://doi.org/10.1037/pas0000572
https://doi.org/10.1037/pas0000572
Autor:
Magdalena Harrington, Margaret Vernon, Mabel Crescioni, Katharine S. Gries, Sheryl Pease, Pamela Berry, Shima Safikhani, Katja Rüdell, Mira Patel
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 2, Iss 1, Pp 1-14 (2018)
Background In the development of patient-reported outcome (PRO) instruments, little documentation is provided on the justification of response scale selection. The selection of response scales is often based on the developers’ preferences or therap
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3c5d2e77643ad4e02cf89137d645153f
https://doi.org/10.1186/s41687-018-0056-3
https://doi.org/10.1186/s41687-018-0056-3