Heart Failure and Patient‐Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries

Autor: Chun‐Wei Lu, Jou‐Kou Wang, Hsiao‐Ling Yang, Adrienne H. Kovacs, Koen Luyckx, Francisco Javier Ruperti‐Repilado, Alexander Van De Bruaene, Junko Enomoto, Maayke A. Sluman, Jamie L. Jackson, Paul Khairy, Stephen C. Cook, Shanthi Chidambarathanu, Luis Alday, Erwin Oechslin, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S. Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M. Fernandes, Kamila White, Edward Callus, Shelby Kutty, Silke Apers, Philip Moons

Publikováno v: Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease, Vol 11, Iss 9 (2022)

Background Heart failure (HF) is the leading cause of mortality and associated with significant morbidity in adults with congenital heart disease. We sought to assess the association between HF and patient‐report outcomes in adults with congenital

Externí odkaz: https://doaj.org/article/181547168d4349f8a07baafe3968d22f

Pain in adults with congenital heart disease - An international perspective

Autor: Allison Leibold, Erin Eichler, Sukyung Chung, Philip Moons, Adrienne H. Kovacs, Koen Luyckx, Silke Apers, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A. Sluman, Jou-Kou Wang, Jamie L. Jackson, Paul Khairy, Stephen C. Cook, Shanthi Chidambarathanu, Luis Alday, Erwin Oechslin, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S. Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Kamila White, Edward Callus, Shelby Kutty, Susan M. Fernandes

Publikováno v: International Journal of Cardiology Congenital Heart Disease, Vol 5, Iss , Pp 100200- (2021)

Background: Patients with adult congenital heart disease (ACHD) have many risk factors for chronic pain such as prior cardiac interventions and adult comorbidities. However, the prevalence of chronic pain has not been well described in this populatio

Externí odkaz: https://doaj.org/article/6dbbeef907364f189dffb44ac49f9d5a

Patient-reported outcomes in the aging population of adults with congenital heart disease : results from APPROACH-IS

Autor: Philip, Moons, Koen, Luyckx, Corina, Thomet, Werner, Budts, Junko, Enomoto, Maayke A, Sluman, Hsiao Ling, Yang, Jamie L, Jackson, Paul, Khairy, Stephen C, Cook, Shanthi, Chidambarathanu, Luis, Alday, Erwin, Oechslin, Katrine, Eriksen, Mikael, Dellborg, Malin, Berghammer, Bengt, Johansson, Andrew S, Mackie, Samuel, Menahem, Maryanne, Caruana, Gruschen, Veldtman, Alexandra, Soufi, Susan M, Fernandes, Kamila, White, Edward, Callus, Shelby, Kutty, Adrienne H, Kovacs, Kirstie, MacMillen

Publikováno v: Moons, Philip; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A; Yang, Hsiao Ling; Jackson, Jamie L; Khairy, Paul; Cook, Stephen C; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S; Menahem, Samuel; Caruana, Maryanne; ... (2023). Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS. European journal of cardiovascular nursing, 22(4), pp. 339-344. Oxford University Press 10.1093/eurjcn/zvac057

The congenital heart disease (CHD) population now comprises an increasing number of older persons in their 6th decade of life and beyond. We cross-sectionally evaluated patient-reported outcomes (PROs) in persons with CHD aged 60 years or older, and

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::dfc36166227590ef0cd84dbc9e18eba7
http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-209880

Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS)

Autor: Katrine Eriksen, Shanthi Chidambarathanu, Jamie L. Jackson, Corina Thomet, Maryanne Caruana, Werner Budts, Malin Berghammer, Adrienne H. Kovacs, Shelby Kutty, Samuel Menahem, Edward Callus, Gruschen R. Veldtman, Susan M. Fernandes, Bengt Johansson, Luis Alday, Erwin Oechslin, Paul Khairy, Jou-Kou Wang, Junko Enomoto, Mikael Dellborg, Andrew S. Mackie, Silke Apers, Alexandra Soufi, Stephen C. Cook, Maayke A. Sluman, Koen Luyckx, Philip Moons, Kamila S. White

Publikováno v: American journal of cardiology, 145, 135-142. Elsevier Inc.

In this international study, we (1) compared patient-reported outcomes (PROs) in adults with congenital heart disease (CHD) who had versus had not been hospitalized during the previous 12 month, (2) contrasted PROs in patients who had been hospitaliz

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8189e97a86f7cbadff391bff2f46af36
https://doi.org/10.1016/j.amjcard.2020.12.088

Health behaviours reported by adults with congenital heart disease across 15 countries

Autor: Corina Thomet, Shanthi Chidambarathanu, Jamie L. Jackson, Adrienne H. Kovacs, Junko Enomoto, Malin Berghammer, Gruschen R. Veldtman, Maryanne Caruana, Bengt Johansson, Werner Budts, Mikael Dellborg, Samuel Menahem, James Peugh, Luis Alday, Edward Callus, Shelby Kutty, Silke Apers, Kamila S. White, Katrine Eriksen, Susan M. Fernandes, Chun-Wei Lu, Stephen C. Cook, Christina E. Holbein, Alexandra Soufi, Paul Khairy, Andrew S. Mackie, Maayke A. Sluman, Koen Luyckx, Philip Moons

Publikováno v: European journal of preventive cardiology, 27(10), 1077-1087. SAGE Publications Ltd

Background Health behaviours are essential to maintain optimal health and reduce the risk of cardiovascular complications in adults with congenital heart disease. This study aimed to describe health behaviours in adults with congenital heart disease

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f63aa6575674a9fc955e67bebf503a65
https://doi.org/10.1177/2047487319876231