PEOPLE WITH MILD HEMOPHILIA ARE AT RISK OF JOINT DISEASE: THE NATIONWIDE COHORT HIN-6 STUDY

Autor: RM Camelo, C Smit, J Eikenboom, F Rosendaal, LFD van Vulpen, EAM Beckers, L Hooimeijer, M Coppens, SEM Schols, FWG Leebeek, MH Driessens, JGVD Bom, SM Rezende, SC Gouw

Publikováno v: Hematology, Transfusion and Cell Therapy, Vol 46, Iss , Pp S561-S562 (2024)

Clinical data on people with mild hemophilia (mPwH) is important to guide their treatment but remains scarce worldwide. In addition, since modern hemophilia therapies can turn severe phenotypes into mild or normal ones, knowing the clinical, therapeu

Externí odkaz: https://doaj.org/article/f01b98d651fe4bb3a898374288d1abcc

Validation of PROMIS Profile-29 in adults with hemophilia in the Netherlands.

Autor: van Balen EC; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, The Netherlands., Haverman L; Child and Adolescent Psychiatry & Psychosocial Care, Amsterdam Reproduction and Development, Amsterdam Public Health, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands., Hassan S; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, The Netherlands., Taal EM; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, The Netherlands., Smit C; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, The Netherlands., Driessens MH; Netherlands Hemophilia Society, Nijkerk, The Netherlands., Beckers EAM; Department of Hematology, Maastricht University Medical Centre, Maastricht, The Netherlands., Coppens M; Department of Vascular Medicine, Amsterdam Cardiovascular Sciences, Amsterdam University Medical Centers, University of Amsterdam, Amsterdam, The Netherlands., Eikenboom J; Department of Internal Medicine, Division of Thrombosis and Hemostasis, Leiden University Medical Center, Leiden, The Netherlands., Hooimeijer HL; Department of Paediatrics, University Medical Center Groningen, Groningen, The Netherlands., Leebeek FWG; Department of Hematology, Erasmus MC, Rotterdam, The Netherlands., van Vulpen LFD; Department of Benign Hematology, Van Creveldkliniek, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands., Schols SEM; Department of Hematology, Radboud University Medical Center, Nijmegen, the Netherlands.; Hemophilia Treatment Center Nijmegen-Eindhoven-Maastricht, Nijmegen, The Netherlands., Terwee CB; Department of Epidemiology and Data Science, Amsterdam Public Health Research Institute, Amsterdam UMC, Vrije Universiteit Amsterdam, The Netherlands., Rosendaal FR; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, The Netherlands., van der Bom JG; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, The Netherlands.; Center for Clinical Transfusion Research, Sanquin Research/LUMC, Leiden, The Netherlands., Gouw SC; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, The Netherlands.; Department of Pediatric Hematology, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.

Publikováno v: Journal of thrombosis and haemostasis : JTH [J Thromb Haemost] 2021 Nov; Vol. 19 (11), pp. 2687-2701. Date of Electronic Publication: 2021 Aug 03.

Mortality, life expectancy, and causes of death of persons with hemophilia in the Netherlands 2001-2018.

Autor: Hassan S; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, the Netherlands., Monahan RC; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, the Netherlands., Mauser-Bunschoten EP; Van Creveldkliniek, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands., van Vulpen LFD; Van Creveldkliniek, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands., Eikenboom J; Department of Internal Medicine, Division of Thrombosis and Hemostasis, Leiden University Medical Center, Leiden, the Netherlands., Beckers EAM; Department of Hematology, Maastricht University Medical Centre, Maastricht, the Netherlands., Hooimeijer L; Department of Paediatrics, University Medical Center Groningen, Groningen, the Netherlands., Ypma PF; Department of Hematology, HagaZiekenhuis, The Hague, the Netherlands., Nieuwenhuizen L; Department of Internal Medicine, Maxima Medical Centre, Eindhoven, the Netherlands., Coppens M; Department of Vascular Medicine, Amsterdam University Medical Centres, Amsterdam, the Netherlands., Schols SEM; Department of Hematology, Radboud University Medical Center, Nijmegen, the Netherlands., Leebeek FWG; Department of Hematology, Erasmus University Medical Center, Rotterdam, the Netherlands., Smit C; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, the Netherlands., Driessens MH; Netherlands Hemophilia Patient Society (NVHP), Nijkerk, the Netherlands., le Cessie S; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, the Netherlands., van Balen EC; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, the Netherlands., Rosendaal FR; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, the Netherlands., van der Bom JG; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, the Netherlands.; Center for Clinical Transfusion Research, Sanquin Research, Leiden, the Netherlands., Gouw SC; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, the Netherlands.; Department of Pediatric Hematology, Emma Children's Hospital, Amsterdam University Medical Centres, University of Amsterdam, Amsterdam, the Netherlands.

Publikováno v: Journal of thrombosis and haemostasis : JTH [J Thromb Haemost] 2021 Mar; Vol. 19 (3), pp. 645-653. Date of Electronic Publication: 2020 Dec 18.

Facilitating the implementation of pharmacokinetic-guided dosing of prophylaxis in haemophilia care by discrete choice experiment.

Autor: Lock J; Department of Paediatric Haematology, Erasmus University Medical Centre - Sophia Children's Hospital, Rotterdam, The Netherlands., de Bekker-Grob EW; Department of Public Health, Erasmus University Medical Centre, Rotterdam, The Netherlands., Urhan G; Department of Paediatric Haematology, Erasmus University Medical Centre - Sophia Children's Hospital, Rotterdam, The Netherlands., Peters M; Department of Paediatric Haematology, Academic Medical Centre, Amsterdam, The Netherlands., Meijer K; Department of Haematology, University Medical Centre Groningen, University of Groningen, Groningen, The Netherlands., Brons P; Department of Paediatric Haematology, Radboud university medical centre, Nijmegen, The Netherlands., van der Meer FJ; Department of Thrombosis and Haemostasis, Leiden University Medical Centre, Leiden, The Netherlands., Driessens MH; Netherlands Haemophilia Patient Society (NVHP), Nijkerk, The Netherlands., Collins PW; Arthur Bloom Haemophilia Centre, School of Medicine, Cardiff University, Cardiff, UK., Fijnvandraat K; Department of Paediatric Haematology, Academic Medical Centre, Amsterdam, The Netherlands., Leebeek FW; Department of Haematology, Erasmus University Medical Centre, Rotterdam, The Netherlands., Cnossen MH; Department of Paediatric Haematology, Erasmus University Medical Centre - Sophia Children's Hospital, Rotterdam, The Netherlands.

Publikováno v: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2016 Jan; Vol. 22 (1), pp. e1-e10. Date of Electronic Publication: 2015 Nov 27.

Endoglin has a crucial role in blood cell-mediated vascular repair.

Autor: van Laake LW; Hubrecht Laboratory, Netherlands Institute for Developmental Biology, Uppsalalaan 8, 3584 CT Utrecht, The Netherlands., van den Driesche S, Post S, Feijen A, Jansen MA, Driessens MH, Mager JJ, Snijder RJ, Westermann CJ, Doevendans PA, van Echteld CJ, ten Dijke P, Arthur HM, Goumans MJ, Lebrin F, Mummery CL

Publikováno v: Circulation [Circulation] 2006 Nov 21; Vol. 114 (21), pp. 2288-97. Date of Electronic Publication: 2006 Nov 06.