Výsledky vyhledávání - "MESH: Disclosure"

Autor: Cécile Cazeneuve, P. Corcia, Patrick Vourc'h, K Mouzat, William Camu, Serge Lumbroso

Publikováno v: Revue Neurologique
Revue Neurologique, Elsevier Masson, 2020, 176 (3), pp.166-169. ⟨10.1016/j.neurol.2019.07.027⟩

International audience; Pathophysiology of amyotrophic lateral sclerosis (ALS) remains partially understood even though it is accepted worldwide that motor neuron death results from a pluri-factorial process with a variable role of genetic factors. A

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f73fa82f8d9919e2b5689c6a1c22ac20
https://hal.umontpellier.fr/hal-03351418

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Reproductive Decision-Making in MMR Mutation Carriers After Results Disclosure: Impact of Psychological Status in Childbearing Options

Autor: Frédéric Bibeau, L. Roca, Evelyne Crapez, Hélène de Forges, Julie Courraud, Marc Ychou, Jacqueline Duffour, Florence Boissière-Michot, Audrey Combes, Pierre Senesse

Publikováno v: Journal of Genetic Counseling
Journal of Genetic Counseling, Springer Verlag, 2016, 25 (3), pp.432-442. ⟨10.1007/s10897-015-9888-7⟩

International audience; Reproductive techniques such as prenatal diagnosis (PND) or preimplantation genetic diagnosis (PGD), although debated, are legally forbidden in France in case of Lynch syndrome. The preference of mutation carriers about their

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9e3858ac161d8a5e606b59761b793b40
https://hal.umontpellier.fr/hal-02295670

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Accueil d’un enfant différent à la naissance et accompagnement des parents : évaluation de la formation des professionnels de santé dans l’annonce et l’accompagnement

Autor: Chané, Morgane

Publikováno v: Gynécologie et obstétrique. 2015

At present where prenatal diagnosis gives the illusion of total control of the pregnancy, the National Institute of Health Watch reveals these figures: in 2011, 20,000 live births carry a birth defect or 2 4% of births. The discovery of a birth defec

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=dedup_wf_001::b4697c1520be1ea08437cca8178ef0e6
https://dumas.ccsd.cnrs.fr/dumas-01201536

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Ethical issues related to computerised family medical histories in sickle cell disease: Inforare

Autor: Olivier Cohen, Christian Hervé, Nathalie Duchange, Catherine Quantin, Frédéric Galactéros, Ruben Nzouakou, Sandra Franrenet, Sophie Sudraud, Grégoire Moutel

Publikováno v: Journal of Medical Ethics
Journal of Medical Ethics, BMJ Publishing Group, 2010, 36 (10), pp.604-7. ⟨10.1136/jme.2009.034066⟩
Journal of Medical Ethics, BMJ Publishing Group, 2010, 36 (10), pp.604-7. 〈10.1136/jme.2009.034066〉

International audience; The Inforare project aims to set up a system for the sharing of clinical and familial data, in order to study how genes are related to the severity of sickle cell disease. While the computerisation of clinical records represen

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e7a7a18a17ceb3d0c64b7c5764a03b8e
https://pubmed.ncbi.nlm.nih.gov/20826869

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Disclosure of competing financial interests and role of sponsors in phase III cancer trials

Autor: Jean Jacques Tuech, Simon Schraub, Christian Hervé, Patrick Pessaux, Grégoire Moutel, V. Thoma

Publikováno v: European Journal of Cancer
European Journal of Cancer, Elsevier, 2005, 41 (15), pp.2237-40. 〈10.1016/j.ejca.2004.12.036〉
European Journal of Cancer, Elsevier, 2005, 41 (15), pp.2237-40. ⟨10.1016/j.ejca.2004.12.036⟩

International audience; Financial relationships between industry, researchers and academic institutions are becoming increasingly complex, raising concern about sponsors' involvement in the conduct of biomedical research. A review of published random

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6d35d3f63277111ff957a2406f084656
https://pubmed.ncbi.nlm.nih.gov/16214044

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Disclosure and adverse effects of complementary and alternative medicine used by hospitalized patients in the North East of England

Autor: Nusirat Bello, Kenneth McGarry, Win Winit-Watjana, Wasim Baqir

Publikováno v: Pharmacy Practice
Pharmacy Practice (Granada) v.10 n.3 2012
SciELO España. Revistas Científicas Españolas de Ciencias de la Salud
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Objectives: This study aimed to investigate the prevalence, disclosure and adverse effects of complementary and alternative medicine (CAM) use in hospitalised patients, and to explore the associations between patients’ perceived side-effects and re

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::55a6ec9b9d6d6a9e886df06df2530714
https://pubmed.ncbi.nlm.nih.gov/24155828

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Disclosure of Investigators' Recruitment Performance in Multicenter Clinical Trials: A Further Step for Research Transparency

Autor: Shaun Treweek, Rafael Dal-Ré, Jacques Demotes-Mainard, David Moher, Christian Gluud, Xavier Carné

Publikováno v: PLoS Medicine
PLoS Medicine, Public Library of Science, 2011, 8 (12), pp.e1001149. ⟨10.1371/journal.pmed.1001149⟩
Recercat. Dipósit de la Recerca de Catalunya
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PLoS Medicine, Vol 8, Iss 12, p e1001149 (2011)
Dipòsit Digital de la UB
Universidad de Barcelona

Transparency: A Fundamental Social Obligation for Clinical Research .After 60 years devoted to enhancing the methodology and ethics in clinical research, the last decade has been crucial to the scientific community in refining the transparency on con

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::864c71b08b0e267e8807cea42177b44c
https://doi.org/10.1371/journal.pmed.1001149

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