Zobrazeno 1 - 10 of 98 pro vyhledávání: '"M. Soucie"'
1
Population‐based surveillance of haemophilia and patient outcomes in Indiana using multiple data sources
Autor: Scott D. Grosse, Amanda I. Okolo, Amy D. Shapiro, Isaac A. Janson, Chris Roberson, Martha Allen, J. M. Soucie
Publikováno v: Haemophilia
Introduction Epidemiological surveillance of haemophilia through linkage of medical records within a US state has not been conducted in 20 years. Aim The Indiana Haemophilia Surveillance Project aims to identify all persons with haemophilia who resid
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b4ed9901f37535e2f9264bf43c0d0e21
https://doi.org/10.1111/hae.13734
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2
Occurrence rates of von Willebrand disease among people receiving care in specialized treatment centres in the United States
Autor: Peter A. Kouides, Karon Abe, J. M. Soucie, Connie H. Miller, Amanda B. Payne, Robert F. Sidonio, Vanessa R. Byams
Publikováno v: Haemophilia : the official journal of the World Federation of HemophiliaREFERENCES. 27(3)
Introduction In the network of U.S. comprehensive haemophilia treatment centres (HTCs), von Willebrand disease (VWD) is the most common bleeding disorder other than haemophilia. Estimates of the size and characteristics of the VWD population receivin
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d34c2263352308d8d257a212288366b3
https://pubmed.ncbi.nlm.nih.gov/33780098
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3
Occurrence rates of haemophilia among males in the United States based on surveillance conducted in specialized haemophilia treatment centres
Autor: Connie H. Miller, Binh C. Le, J. M. Soucie, Brandi Dupervil, Tyler W. Buckner
Publikováno v: Haemophilia
Introduction Estimates of the size and characteristics of the US haemophilia population are needed for healthcare planning and resource needs assessment. A network of comprehensive haemophilia treatment centres (HTCs) located throughout the United St
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9677d12554358be2185d3a630f94f082
https://pubmed.ncbi.nlm.nih.gov/32329553
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4
The effects of joint disease, inhibitors and other complications on health-related quality of life among males with severe haemophilia A in the United States
Autor: Scott D. Grosse, J. Thierry, Vanessa R. Byams, M. M. Zack, Azfar-e-Alam Siddiqi, J. M. Soucie, Natalie Duncan, Amy D. Shapiro
Publikováno v: Haemophilia. 23:e287-e293
Introduction Health-related quality of life (HRQoL) is reduced among persons with haemophilia. Little is known about how HRQoL varies with complications of haemophilia such as inhibitors and joint disease. Estimates of preference-based HRQoL measures
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::85b839a451b07f590e09d0c1b6458171
https://doi.org/10.1111/hae.13275
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5
Akademický článek
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6
Risk factors associated with invasive orthopaedic interventions in males with haemophilia enrolled in the Universal Data Collection program from 2000 to 2010
Autor: Azfar-e-Alam Siddiqi, J. M. Soucie, S. Ward, R. Ingram‐Rich, P. Tobase, Heidi Lane, Joan Cox Gill
Publikováno v: Haemophilia : the official journal of the World Federation of Hemophilia. 24(6)
BACKGROUND: Invasive orthopaedic interventions (IOI) are often used to control recurrent haemarthrosis, pain and loss of joint function, in males with haemophilia (Factor VIII and Factor IX deficiency). AIM: Identify risk factors associated with IOIs
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9c0665158ece38a30d51178418c60b1d
https://pubmed.ncbi.nlm.nih.gov/29957840
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8
Prophylaxis use among males with haemophilia B in the United States
Autor: Scott D. Grosse, Michael Recht, Q C Zhang, M. Ullman, J. M. Soucie
Publikováno v: Haemophilia : the official journal of the World Federation of Hemophilia. 23(6)
Introduction Prophylaxis is considered the optimal treatment for persons with moderate to severe haemophilia (factor activity between 1-5% of normal and
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9bd385c2b65a64181ba970d7451b655b
https://pubmed.ncbi.nlm.nih.gov/28780772
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10
Association of overweight and obesity with the use of self and home-based infusion therapy among haemophilic men
Autor: Althea M. Grant, Deborah L Brown, J. M. Soucie, M. Ullman, Qiang Zhang
Publikováno v: Haemophilia. 20:340-348
An elevated body mass index (BMI) may make venipuncture more difficult, potentially impacting the use of home infusion (HI) and self-infusion (SI). We sought to determine whether above-normal BMI is associated with decreased use of HI treatment and S
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9bc3138e68c05b1d757b23f18ccc0fca
https://doi.org/10.1111/hae.12303
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