Zobrazeno 1 - 10
of 19
pro vyhledávání: '"M. J. Manco-Johnson"'
Choosing outcome assessment tools in haemophilia care and research : A multidisciplinary perspective
Autor:
K, Fischer, P, Poonnoose, A L, Dunn, P, Babyn, M J, Manco-Johnson, J A, David, J, van der Net, B, Feldman, K, Berger, M, Carcao, P, de Kleijn, M, Silva, P, Hilliard, A, Doria, A, Srivastava, V, Blanchette, Runhui, Wu
Publikováno v:
Haemophilia, 23(1), 11–24. Wiley-Blackwell
Introduction The implementation of early long-term, regular clotting factor concentrate (CFC) replacement therapy (‘prophylaxis’) has made it possible to offer boys with haemophilia a near normal life. Many different regimens have reported favour
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f7c9690f6dbb0e69760e5b3fb9d04752
https://dspace.library.uu.nl/handle/1874/353328
https://dspace.library.uu.nl/handle/1874/353328
Autor:
B, Lundin, M L, Manco-Johnson, D M, Ignas, R, Moineddin, V S, Blanchette, A L, Dunn, S V, Gibikote, S N, Keshava, R, Ljung, M J, Manco-Johnson, S F, Miller, G E, Rivard, A S, Doria, Marijke, van den Berg
Publikováno v:
Haemophilia. 18:962-970
Evaluation of prophylactic treatment of haemophilia requires sensitive methods. To design and test a new magnetic resonance imaging (MRI) scale for haemophilic arthropathy, two scales of a combined MRI scoring scheme were merged into a single scale w
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::567e446a112a9e183beda1f332781f43
https://doi.org/10.1111/j.1365-2516.2012.02883.x
https://doi.org/10.1111/j.1365-2516.2012.02883.x
Autor:
M L Manco-Johnson, Leonard A. Valentino, Desiree Medeiros, Prasad Mathew, Amy D. Shapiro, Nattee Narkbunnam, J. Michael Soucie, Brenda Riske, Harlan Austin, Gregory Thomas, Ray F. Kilcoyne, Linda J. Jacobson, Genlin Hu, W. Keith Hoots, L. J. Jacobson, Paul E. Monahan, Michael Recht, Sharon Funk, Donna DiMichele, J. David Ingram, Diane J. Nugent, Richard Jude Samulski, Bruce L. Evatt, Thomas C. Abshire, Deborah L Brown, Shirley Bleak, Alan R. Cohen, Aravind Asokan, Alexis A. Thompson, Michele R. Hacker, Marilyn J. Manco-Johnson, Alison Matsunaga, George R. Buchanan, Cindy A. Leissinger, M. J. Manco-Johnson, Chengwen Li, Kevin McRedmond
Publikováno v:
Gene therapy. 19(3)
Recombinant adeno-associated virus (rAAV) is a promising gene delivery vector and has recently been used in patients with hemophilia. One limitation of AAV application is that most humans have experienced wild-type AAV serotype 2 exposure, which freq
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ffe25dafb23d018df26e418031d4f436
https://pubmed.ncbi.nlm.nih.gov/21697954
https://pubmed.ncbi.nlm.nih.gov/21697954
Autor:
V S, Blanchette, M J, Manco-Johnson
Publikováno v:
Haemophilia : the official journal of the World Federation of Hemophilia. 16
For patients with haemophilia, the development of inhibitors complicates treatment, and inhibitor patients may thus have a range of unmet needs. Although successful inhibitor eradication will render patients responsive to factor replacement therapy,
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::089047f1abe5e35471abc86ab6c16544
https://pubmed.ncbi.nlm.nih.gov/20586802
https://pubmed.ncbi.nlm.nih.gov/20586802
Autor:
N A, Goldenberg, M J, Manco-Johnson
Publikováno v:
Haemophilia : the official journal of the World Federation of Hemophilia. 14(6)
Severe protein C deficiency (i.e. protein C activity1 IU dL(-1)) is a rare autosomal recessive disorder that usually presents in the neonatal period with purpura fulminans (PF) and severe disseminated intravascular coagulation (DIC), often with conco
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::bd6fac42fabe77f1755b1b3bebbfe3a9
https://pubmed.ncbi.nlm.nih.gov/19141162
https://pubmed.ncbi.nlm.nih.gov/19141162
Autor:
M J, Manco-Johnson, V S, Blanchette
Publikováno v:
Haemophilia : the official journal of the World Federation of Hemophilia. 9
Arthropathy is associated with the greatest cost and morbidity to persons with haemophilia. Clinical protocols have been developed empirically to prevent or retard the development of joint disease using routine infusions of replacement factor concent
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::ceed5288d17d72274071d4fad2e4962a
https://pubmed.ncbi.nlm.nih.gov/12709037
https://pubmed.ncbi.nlm.nih.gov/12709037
Publikováno v:
Haemophilia : the official journal of the World Federation of Hemophilia. 9
A survey was conducted in 2002 to determine the pattern of factor prophylaxis use in boysor=18 years of age with haemophilia followed in North American treatment centres. Responses were obtained from 4553 cases (74% haemophilia A, 26% haemophilia B).
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::716c29178953993bf7cbb155650e0d2d
https://pubmed.ncbi.nlm.nih.gov/12709033
https://pubmed.ncbi.nlm.nih.gov/12709033
Autor:
M J, Manco-Johnson, R, Nuss
Publikováno v:
Advances in pediatrics. 48
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::ba33cea068efaef4611998ac75879f6f
https://pubmed.ncbi.nlm.nih.gov/11480763
https://pubmed.ncbi.nlm.nih.gov/11480763
Publikováno v:
Haemophilia : the official journal of the World Federation of Hemophilia. 6(6)
With the heightened interest in protocols to prevent or treat complications of haemophilia related to recurrent haemarthroses, there is a need for sensitive joint-evaluation tools. The World Federation of Haemophilia (WFH) Physical Joint Examination
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::4cf320605b048c365debf5c441589ca7
https://pubmed.ncbi.nlm.nih.gov/11122391
https://pubmed.ncbi.nlm.nih.gov/11122391
Autor:
M J, Manco-Johnson
Publikováno v:
Thrombosis and haemostasis. 78(1)
In both children and neonates with venous thrombosis, one or more predisposing risk factors can generally be identified. Underlying prothrombotic medical conditions are common in these patients. In addition, a "trigger factor" such as a catheter, sur
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::64b33680f755e07f15f587219de78e11
https://pubmed.ncbi.nlm.nih.gov/9198244
https://pubmed.ncbi.nlm.nih.gov/9198244