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Raising rare disease awareness using red flags, role play simulation and patient educators: results of a novel educational workshop on Raynaud phenomenon and systemic sclerosis

Autor: S. Sanges, M.-M. Farhat, M. Assaraf, J. Galland, E. Rivière, C. Roubille, M. Lambert, C. Yelnik, H. Maillard, V. Sobanski, G. Lefèvre, D. Launay, S. Morell-Dubois, E. Hachulla

Publikováno v: Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-10 (2020)

Abstract Background As lack of awareness of rare diseases (RDs) among healthcare professionals results in delayed diagnoses, there is a need for a more efficient approach to RD training during academic education. We designed an experimental workshop

Externí odkaz: https://doaj.org/article/679cdcdb519749518f8c1f6cdc5acbbc

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Akademický článek

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Raising rare disease awareness using red flags, role play simulation and patient educators: results of a novel educational workshop on Raynaud phenomenon and systemic sclerosis

Autor: M. Assaraf, J. Galland, David Launay, Eric Hachulla, Etienne Rivière, C. Yelnik, M.M. Farhat, Sandrine Morell-Dubois, Hélène Maillard, Marc Lambert, C. Roubille, Guillaume Lefèvre, Vincent Sobanski, S. Sanges

Publikováno v: Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases, BioMed Central, 2020, 15 (1), ⟨10.1186/s13023-020-01439-z⟩
Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-10 (2020)
Orphanet Journal of Rare Diseases, 2020, 15 (1), ⟨10.1186/s13023-020-01439-z⟩

Background As lack of awareness of rare diseases (RDs) among healthcare professionals results in delayed diagnoses, there is a need for a more efficient approach to RD training during academic education. We designed an experimental workshop that used

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d30c346df336a7b6b4df8c7e1220545c
https://hal.archives-ouvertes.fr/hal-02880743/document

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POS0818 TREATMENT OF POLYMYALGIA RHEUMATICA WITH TOCILIZUMAB: RESULTS OF AN OBSERVATIONAL RETROSPECTIVE MULTICENTER STUDY

Autor: Julien Paccou, B. Chevet, R.M. Flipo, Jérôme Avouac, Valérie Devauchelle-Pensec, M. Delacour, Tristan Pascart, Bernard Cortet, Daniel Wendling, Eric Houvenagel, C. Roux, J. Henry, Peggy Philippe, M. Assaraf

Publikováno v: Annals of the Rheumatic Diseases. 80:662.1-662

Background:In 2017, TOCILIZUMAB (TCZ) obtained marketing authorization for treatment of giant cell arteritis (GCA); however, this doesn’t extend to polymyalgia rheumatica (PMR) therapy. Based on efficacy data for TCZ in GCA, TCZ is sometimes used a

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::dac97b21ad08b2ebcaded04b6c6e7eb1
https://doi.org/10.1136/annrheumdis-2021-eular.3885

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Traitement de la pseudopolyarthrite rhizomélique par tocilizumab : résultats d’une étude observationnelle multicentrique

Autor: Bernard Cortet, Julien Paccou, V. Devauchelle Pensec, M. Delacour, M. Assaraf, J. Avouac, B. Chevet, R.M. Flipo, P. Philippe, Eric Houvenagel

Publikováno v: Revue du Rhumatisme. 87:A106

Introduction Depuis 2017, le TOCILIZUMAB (TCZ) beneficie d’une AMM dans le traitement de l’arterite a cellules geantes (ACG), ce qui n’est pas le cas dans la pseudo polyarthrite rhizomelique (PPR). Sur la base des donnees d’efficacite du TCZ

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::2d09e927d871d054ce6a83203d0c34c3
https://doi.org/10.1016/j.rhum.2020.10.181

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AB1273 TEACHING RARE DISEASES THROUGH ROLE PLAY: RESULTS OF AN EXPERIMENTAL WORKSHOP ON RAYNAUD PHENOMENON

Autor: David Launay, Méryem-Maud Farhat, M. Assaraf, Sandrine Morell-Dubois, E. Hachlla, Marc Lambert, Sébastien Sanges, Vincent Sobanski

Publikováno v: Annals of the Rheumatic Diseases. 79:1927.1-1928

Background:Systemic autoimmune diseases are mostly taught through theoretical lectures, which do not allow for the acquisition of physical examination skills and semiologic confrontation.Objectives:We report herein the results of a pilot experiment u

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::bcd94ffed8b3a916b05151f76a70b86a
https://doi.org/10.1136/annrheumdis-2020-eular.3903

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