Informal Caregiving in Amyotrophic Lateral Sclerosis (ALS): A High Caregiver Burden and Drastic Consequences on Caregivers' Lives

Autor: Schischlevskij, Pavel, Cordts, Isabell, Günther, René, Stolte, Benjamin, Zeller, Daniel, Schröter, Carsten, Weyen, Ute, Regensburger, Martin, Wolf, Joachim, Schneider, Ilka, Hermann, Andreas, Metelmann, Moritz, Kohl, Zacharias, Linker, Ralf A., Koch, Jan Christoph, Stendel, Claudia, Müschen, Lars H., Osmanovic, Alma, Binz, Camilla, Klopstock, Thomas, Dorst, Johannes, Ludolph, Albert C., Boentert, Matthias, Hagenacker, Tim, Deschauer, Marcus, Lingor, Paul, Petri, Susanne, Schreiber-Katz, Olivia

Amyotrophic lateral sclerosis (ALS) is a fatal neurodegenerative disease that causes progressive autonomy loss and need for care. This does not only affect patients themselves, but also the patients’ informal caregivers (CGs) in their health, perso

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Informal Caregiving in Amyotrophic Lateral Sclerosis (ALS): A High Caregiver Burden and Drastic Consequences on Caregivers' Lives.

Autor: Schischlevskij P; Department of Neurology, Hannover Medical School, 30625 Hannover, Germany., Cordts I; Department of Neurology, Klinikum Rechts der Isar, Technical University of Munich, 81675 Munich, Germany., Günther R; Department of Neurology, University Hospital Carl Gustav Carus, Technische Universität Dresden, 01307 Dresden, Germany.; German Center for Neurodegenerative Diseases (DZNE), 01307 Dresden, Germany., Stolte B; Department of Neurology, University Medicine Essen, 45147 Essen, Germany., Zeller D; Department of Neurology, University of Würzburg, 97080 Würzburg, Germany., Schröter C; Hoher Meißner Clinic, Neurology, 37242 Bad Sooden-Allendorf, Germany., Weyen U; Department of Neurology, Ruhr-University Bochum, BG-Kliniken Bergmannsheil, 44789 Bochum, Germany., Regensburger M; Department of Molecular Neurology, Friedrich-Alexander-University Erlangen-Nürnberg, 91054 Erlangen, Germany., Wolf J; Department of Neurology, Diakonissen Hospital Mannheim, 68163 Mannheim, Germany., Schneider I; Department of Neurology, Martin-Luther University Halle/Saale, 06120 Halle, Germany.; Department of Neurology, Klinikum Sankt Georg, 04129 Leipzig, Germany., Hermann A; Translational Neurodegeneration Section 'Albrecht-Kossel', Department of Neurology, University Medical Center Rostock, University of Rostock, 18147 Rostock, Germany.; German Center for Neurodegenerative Diseases (DZNE), Rostock/Greifswald, 18147 Rostock, Germany., Metelmann M; Department of Neurology, University Hospital Leipzig, 04103 Leipzig, Germany., Kohl Z; Department of Neurology, University of Regensburg, 93053 Regensburg, Germany., Linker RA; Department of Neurology, University of Regensburg, 93053 Regensburg, Germany., Koch JC; Department of Neurology, University Medicine Göttingen, 37075 Göttingen, Germany., Stendel C; Department of Neurology, Friedrich-Baur Institute, University Hospital, Ludwig Maximilian University of Munich, 80336 Munich, Germany.; German Center for Neurodegenerative Diseases (DZNE), 80336 Munich, Germany., Müschen LH; Department of Neurology, Hannover Medical School, 30625 Hannover, Germany., Osmanovic A; Department of Neurology, Hannover Medical School, 30625 Hannover, Germany., Binz C; Department of Neurology, Hannover Medical School, 30625 Hannover, Germany., Klopstock T; Department of Neurology, Friedrich-Baur Institute, University Hospital, Ludwig Maximilian University of Munich, 80336 Munich, Germany.; German Center for Neurodegenerative Diseases (DZNE), 80336 Munich, Germany.; Munich Cluster for Systems Neurology (SyNergy), 80336 Munich, Germany., Dorst J; Department of Neurology, University of Ulm, 89081 Ulm, Germany., Ludolph AC; Department of Neurology, University of Ulm, 89081 Ulm, Germany.; German Center for Neurodegenerative Diseases (DZNE), 89081 Ulm, Germany., Boentert M; Department of Neurology, Institute of Translational Neurology, University Hospital Münster, 48149 Münster, Germany.; Department of Medicine, UKM Marienhospital, 48565 Steinfurt, Germany., Hagenacker T; Department of Neurology, University Medicine Essen, 45147 Essen, Germany., Deschauer M; Department of Neurology, Klinikum Rechts der Isar, Technical University of Munich, 81675 Munich, Germany., Lingor P; Department of Neurology, Klinikum Rechts der Isar, Technical University of Munich, 81675 Munich, Germany., Petri S; Department of Neurology, Hannover Medical School, 30625 Hannover, Germany., Schreiber-Katz O; Department of Neurology, Hannover Medical School, 30625 Hannover, Germany.

Publikováno v: Brain sciences [Brain Sci] 2021 Jun 04; Vol. 11 (6). Date of Electronic Publication: 2021 Jun 04.