Zobrazeno 1 - 10
of 10
pro vyhledávání: '"Luke Pembroke"'
Autor:
Enayet Rasul, Ryan Hallock, Magnus Hellmann, Jay Konduros, Luke Pembroke, Gregory LeCleir, Jean Malacan PharmD, Sylvia von Mackensen PhD
Publikováno v:
Journal of Patient Experience, Vol 10 (2023)
Hemophilia is a bleeding disorder caused by a single absent/defective gene and characterized by a lack of functional clotting factors. People with hemophilia may experience joint damage, pain, and psychological impairments, all of which could contrib
Externí odkaz:
https://doaj.org/article/dfccb57816d540c5bfc5bf919a570d7e
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-9 (2022)
Abstract Background Gene therapy has the potential to change the life experience of people with haemophilia and family members. Few studies have sought to explore the impact of gene therapy on both individuals and families. The aim of this study was
Externí odkaz:
https://doaj.org/article/12e45b570ed64589b8d8caada9e17e75
Publikováno v:
BMJ Open, Vol 12, Iss 8 (2022)
Introduction Gene therapy has the potential to change the life experience of people with haemophilia and their families. A growing number of studies have examined the experience for those who have had gene therapy. A few studies have examined the pro
Externí odkaz:
https://doaj.org/article/e06cbd815e3e49619199c4323370ea7b
Autor:
Laurence Woollard, Luke Pembroke
Publikováno v:
The Journal of Haemophilia Practice. 7:85-91
Introduction A growing body of evidence supports the recommendation of both physiotherapy and physical activity in people with haemophilia. Physical benefits include increasing strength and flexibility and reducing the risks of osteoporosis, arthropa
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::7dd5887888ee268ac6bfff4721381b4a
https://doi.org/10.17225/jhp00164
https://doi.org/10.17225/jhp00164
Publikováno v:
Orphanet journal of rare diseases. 17(1)
Background Gene therapy has the potential to change the life experience of people with haemophilia and family members. Few studies have sought to explore the impact of gene therapy on both individuals and families. The aim of this study was to captur
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::135b77be9e25c79e7a152e1ba48aea3f
https://pubmed.ncbi.nlm.nih.gov/35379279
https://pubmed.ncbi.nlm.nih.gov/35379279
Autor:
Luke Pembroke
Publikováno v:
The Journal of Haemophilia Practice. 8:133-135
As a person with haemophilia B, I have known there are differences between haemophilia A and haemophilia B and their respective treatment throughout my life – though I was shocked when I learnt about the impact inhibitors can have when it comes to
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::4a90dff076e6a839f8a67a8ab0e4f47d
https://doi.org/10.2478/jhp-2021-0014
https://doi.org/10.2478/jhp-2021-0014
Publikováno v:
The Journal of Haemophilia Practice. 5:111-121
Transition is the term used to describe the process of approaching and crossing the chronological boundary between paediatric and adult care services. Transfer of care describes the administrative arrangements associated with moving from a paediatric
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::9553815e1efface7c0b4b887f8f739d0
https://doi.org/10.17225/jhp00120
https://doi.org/10.17225/jhp00120
Autor:
Sandra Dodgson, Luke Pembroke
Publikováno v:
The Journal of Haemophilia Practice. 5:122-129
People with haemophilia and other bleeding disorders, such as von Willebrand’s Disease (vWD), are frequently diagnosed in childhood. There is, therefore, a recognised need to prepare children and young people with these conditions for transfer to l
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::0003f505d2c5ccd31d38982224fe3e60
https://doi.org/10.17225/jhp00127
https://doi.org/10.17225/jhp00127
Publikováno v:
Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions ISBN: 9783030233860
Young adults with long-term health conditions (LTHCs) are increasing due to improvements in care, therapy regimens and medical technology. In the UK, transition to adult services occurs at a stage when they are also learning self-management skills. F
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::10b1fda40388c1dc05093fcb6b1547c0
https://doi.org/10.1007/978-3-030-23384-6_11
https://doi.org/10.1007/978-3-030-23384-6_11
Autor:
Luke Pembroke
Publikováno v:
The Journal of Haemophilia Practice. 6:s33-s35
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::eee570319d45f19e9c2f36f43563d4cb
https://doi.org/10.17225/jhp00137
https://doi.org/10.17225/jhp00137