Zobrazeno 1 - 10
of 29
pro vyhledávání: '"Lucía Páramo-Rodríguez"'
Autor:
Lucía Páramo-Rodríguez, Clara Cavero-Carbonell, Sandra Guardiola-Vilarroig, Aurora López-Maside, M. Eugenia González Sanjuán, Óscar Zurriaga
Publikováno v:
Gaceta Sanitaria, Vol 37, Iss , Pp 102272- (2023)
Resumen: Objetivo: Describir el impacto de la demora diagnóstica de enfermedades raras y analizar las necesidades psicosociales de las personas afectadas en relación con dicha demora. Método: Se ha empleado el enfoque cualitativo mediante la reali
Externí odkaz:
https://doaj.org/article/4000f5d39d8840c59f54d55603062c4e
Autor:
Sandra Moreno-Marro, Laia Barrachina-Bonet, Lucía Páramo-Rodríguez, Verónica Alonso-Ferreira, Sandra Guardiola-Vilarroig, Esther Vicente, María García-López, Joaquín Palomar-Rodríguez, Ana Clara Zoni, Óscar Zurriaga, Clara Cavero-Carbonell
Publikováno v:
Gaceta Sanitaria, Vol 35, Iss 6, Pp 551-558 (2021)
Resumen: Objetivo: Evaluar las fuentes de información empleadas por los Registros Autonómicos de Enfermedades Raras (RAER) para la captación de la enfermedad de Wilson en España, calcular su prevalencia y mortalidad, y describir las característi
Externí odkaz:
https://doaj.org/article/9518747076f544c093c93bbaadbf6d42
Autor:
Ingeborg Barisic, Carlos Matias Dias, Amanda Neville, Anna Pierini, Anke Rissmann, Joan K Morris, Judith Rankin, Ester Garne, Anna Latos-Bielenska, Elena Marcus, Anna Jamry-Dziurla, Ljubica Odak, Clara Cavero- Carbonell, Elly Den Hond, Lucas Genard, Ana João Santos, L Renée Lutke, Christina Neergaard Pedersen, Annika Niemann, Lucía Páramo-Rodríguez
Publikováno v:
BMJ Open, Vol 12, Iss 7 (2022)
Objective To survey parents and carers of children with a congenital anomaly across Europe about their experiences of healthcare services and support during the COVID-19 pandemic.Design Cross-sectional study.Setting Online survey in 10 European count
Externí odkaz:
https://doaj.org/article/86d7e4d9fa0b47b98e1c2f7ad792bcf5
Autor:
Marlene Sinclair, Julie E M McCullough, David Elliott, Paula Braz, Clara Cavero-Carbonell, Lesley Dornan, Anna Jamry-Dziurla, Ana João Santos, Anna Latos-Bieleńska, Ausenda Machado, Lucía Páramo-Rodríguez
Publikováno v:
JMIR Pediatrics and Parenting, Vol 4, Iss 4, p e18483 (2021)
BackgroundLimited research evidence exists on the development of web-based platforms for reciprocal communication, coproduction research, and dissemination of information among parents, professionals, and researchers. This paper provides learning and
Externí odkaz:
https://doaj.org/article/0ee4660ec5654f3e9c9b82b91f5a0abd
Autor:
Lucía Páramo-Rodríguez, Rosa Mas Pons, Clara Cavero-Carbonell, Carmen Martos-Jiménez, Óscar Zurriaga, Carmen Barona Vilar
Publikováno v:
Gaceta Sanitaria, Vol 29, Iss 6, Pp 445-450 (2015)
Objetivo: Explorar con perspectiva de género las vivencias de madres y padres en los primeros momentos tras el diagnóstico de una anomalía congénita cardiaca en un/una hijo/a, integrando la visión de personal sanitario que atiende a estos/as men
Externí odkaz:
https://doaj.org/article/f021eb19ba264f509e70cdc6170a45cf
Autor:
Lucía Páramo-Rodríguez, Rosa Mas Pons, Clara Cavero-Carbonell, Carmen Martos-Jiménez, Óscar Zurriaga, Carmen Barona Vilar
Publikováno v:
Gaceta Sanitaria, Vol 30, Iss 2, p 166 (2016)
Externí odkaz:
https://doaj.org/article/1466a0adeef14724b37a7ad893beb488
Autor:
Adriana Agurto-Ramírez, Laura García-Villodre, Ana Ruiz-Palacio, Berta Arribas-Díaz, Laia Barrachina-Bonet, Lucía Páramo-Rodríguez, Óscar Zurriaga, Clara Cavero-Carbonell
Publikováno v:
International Journal of Environmental Research and Public Health
Volume 20
Issue 5
Pages: 4042
Volume 20
Issue 5
Pages: 4042
The objective was to determine the prevalence of oesophageal atresia (OA) and describe the characteristics of OA cases diagnosed before the first year of life, born between 2007 and 2019, and residents in the Valencian Region (VR), Spain. Live births
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a0bf2efeaedb372386073d8382786e3a
Autor:
Lucía, Páramo-Rodríguez, Clara, Cavero-Carbonell, Sandra, Guardiola-Vilarroig, Aurora, López-Maside, M Eugenia, González Sanjuán, Óscar, Zurriaga
Publikováno v:
Gaceta sanitaria. 37
To describe the impact of diagnosis delay in rare diseases and analyze psychosocial needs related to this delay in patients.The qualitative approach has been used by conducting online group interviews with patients and family members in the Valencian
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::986be33b51c673d505c98223cda06a6b
https://pubmed.ncbi.nlm.nih.gov/36542890
https://pubmed.ncbi.nlm.nih.gov/36542890
Autor:
Anna Latos-Bieleńska, Elena Marcus, Anna Jamry-Dziurla, Judith Rankin, Ingeborg Barisic, Clara Cavero- Carbonell, Elly Den Hond, Ester Garne, Lucas Genard, Ana João Santos, L Renée Lutke, Carlos Matias Dias, Christina Neergaard Pedersen, Amanda Neville, Annika Niemann, Ljubica Odak, Lucía Páramo-Rodríguez, Anna Pierini, Anke Rissmann, Joan K Morris
Publikováno v:
BMJ Open
r-FISABIO. Repositorio Institucional de Producción Científica
instname
BMJ Open, 12(7):e061428. BMJ PUBLISHING GROUP
r-FISABIO. Repositorio Institucional de Producción Científica
instname
BMJ Open, 12(7):e061428. BMJ PUBLISHING GROUP
ObjectiveTo survey parents and carers of children with a congenital anomaly across Europe about their experiences of healthcare services and support during the COVID-19 pandemic.DesignCross-sectional study.SettingOnline survey in 10 European countrie
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e9ffb5af22965559633ccdc61613864b
https://hdl.handle.net/10400.18/8459
https://hdl.handle.net/10400.18/8459
Autor:
Paula Braz, Anna Latos-Bielenska, Ana João Santos, David Elliott, Lesley Dornan, Clara Cavero-Carbonell, Anna Jamry-Dziurla, Lucía Páramo-Rodríguez, Ausenda Machado, Marlene Sinclair, Julie E.M. McCullough
Publikováno v:
JMIR Pediatrics and Parenting
Background Limited research evidence exists on the development of web-based platforms for reciprocal communication, coproduction research, and dissemination of information among parents, professionals, and researchers. This paper provides learning an
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5a27786a2ce42aabc47e0835b2d05579
http://europepmc.org/articles/PMC8663440
http://europepmc.org/articles/PMC8663440