Zobrazeno 1 - 10
of 61
pro vyhledávání: '"Louise Newton"'
Autor:
Siobhan Connor-Ahmad, Jorrit Tjeertes, Michael Chladek, Louise Newton, Tara Symonds, Susanne Clinch, Brenda Vincenzi, Fiona McDougall
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 18, Iss 1, Pp 1-13 (2023)
Abstract Background Angelman syndrome (AS) is a rare, heterogenous neurogenetic condition, which significantly impacts the lives of people with AS and their families. Valid and reliable measures reporting key symptoms and functional impairments of AS
Externí odkaz:
https://doaj.org/article/d6e5194735474effb249e822f2a4841f
Autor:
Stacie Hudgens, Louise Newton, Sonya Eremenco, Mabel Crescioni, Tara Symonds, Philip C. G. Griffiths, David S. Reasner, Bill Byrom, Paul O’Donohoe, Susan Vallow, the Patient-Reported Outcome (PRO) Consortium and Electronic Clinical Outcome Assessment (eCOA) Consortium
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 6, Iss 1, Pp 1-11 (2022)
Highlights Historically, provisioned handheld devices [PD] have been provided to participants to enter patient-reported outcome (PRO) data during a clinical trial. Allowing participants to report data using their own smartphone or other internet-conn
Externí odkaz:
https://doaj.org/article/a407510cc9d34ac78f2e64910616f248
Autor:
Louise Newton, Oliver Knight-West, Sonya Eremenco, Stacie Hudgens, Mabel Crescioni, Tara Symonds, David S. Reasner, Bill Byrom, Paul O’Donohoe, Susan Vallow, the Patient-Reported Outcome (PRO) Consortium, Electronic Clinical Outcome Assessment (eCOA) Consortium
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 6, Iss 1, Pp 1-11 (2022)
Abstract Background There is interest in participants using their own smartphones or tablets (“bring your own device”; BYOD) to complete patient-reported outcome (PRO) measures in clinical studies. Our study aimed to qualitatively evaluate partic
Externí odkaz:
https://doaj.org/article/79c67cc927574a8b9e4e4fadb138151b
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-16 (2021)
Abstract Background Crohn’s disease (CD) is a chronic inflammatory condition of the gastrointestinal tract that affects people across the age spectrum but often starts in childhood or early adulthood. Despite this, almost all published research exa
Externí odkaz:
https://doaj.org/article/3c0e949a9378476dafaaefced35cba99
Autor:
Jason A. Randall, Aiste Guobyte, Laure Delbecque, Louise Newton, Tara Symonds, Theresa Hunter
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 4, Iss 1, Pp 1-13 (2020)
Abstract Background Ulcerative Colitis (UC) is a chronic gastrointestinal disease that often presents during one’s most productive years and is characterized by colon inflammation. Key symptoms and impacts in adults are well-known, however, experie
Externí odkaz:
https://doaj.org/article/a6d242ed522e40bc96079659be847f96
Autor:
Louise Newton, Jason A. Randall, Theresa Hunter, Shannon Keith, Tara Symonds, Roberta J. Secrest, Wendy J. Komocsar, Sarah E. Curtis, Linda Abetz-Webb, Michael Kappelman, April N. Naegeli
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 3, Iss 1, Pp 1-13 (2019)
Abstract Background Ulcerative colitis (UC) often first presents during adolescence and early adulthood. Primary symptoms of UC are well known, yet similarities and differences of disease experience in adults and adolescents are not well characterize
Externí odkaz:
https://doaj.org/article/edce99cbb88d4ed2871697ee8cf155ca
Autor:
Louise Newton, Amy M. DeLozier, Philip C. Griffiths, Jennifer N. Hill, Stacie Hudgens, Tara Symonds, Jonathon C. Gable, Jim Paik, Kathleen W. Wyrwich, Lawrence F. Eichenfield, Linda Abetz-Webb, Jonathan I. Silverberg
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 3, Iss 1, Pp 1-12 (2019)
Abstract Background Atopic dermatitis (AD) is a common skin disorder characterized by chronic inflammation, altered skin barrier function, and inflammatory cell skin infiltration that decreases health-related quality of life (HRQoL). The study object
Externí odkaz:
https://doaj.org/article/32d1a2b495074b8f9ac3f17e1f886d0a
Autor:
Marla C Dubinsky, Louise Newton, Laure Delbecque, Theresa Hunter, Aiste Guobyte, April N Naegeli, Shehan McFadden, Jill Donaldson, Tara Symonds, James D Lewis
Publikováno v:
Patient Related Outcome Measures.
Marla C Dubinsky,1 Louise Newton,2 Laure Delbecque,3 Theresa Hunter,4 Aiste Guobyte,5 April N Naegeli,4 Shehan McFadden,5 Jill Donaldson,6 Tara Symonds,2 James D Lewis7 1Icahn School of Medicine, Mount Sinai, NY, USA; 2Clinical Outcomes Solutions, Fo
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::07d75bbcfe6e7006f1602b39ba5d903e
https://www.dovepress.com/exploring-disease-remission-and-bowel-urgency-severity-among-adults-wi-peer-reviewed-fulltext-article-PROM
https://www.dovepress.com/exploring-disease-remission-and-bowel-urgency-severity-among-adults-wi-peer-reviewed-fulltext-article-PROM
Autor:
Adam Fullagar, Judith Christian, Sofia Kordolaimi, Louise Newton, Francis Carey, Joshua Gardiner
Publikováno v:
Clinical Oncology. 34:e1-e2
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::ba4e549633408c338fdce861bb0aa4f8
https://doi.org/10.1016/j.clon.2022.08.005
https://doi.org/10.1016/j.clon.2022.08.005
Publikováno v:
The Patient
Background and Objective Chronic insomnia has major consequences for daytime functioning, yet no fully validated patient-reported outcome instrument for once-daily assessments is available to measure these consequences. This study describes the devel
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::06fba3bd9195bb0d423880de18639e51
https://doi.org/10.1007/s40271-020-00474-z
https://doi.org/10.1007/s40271-020-00474-z