Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries

Autor: Chun‐Wei Lu, Jou‐Kou Wang, Hsiao‐Ling Yang, Adrienne H. Kovacs, Koen Luyckx, Francisco Javier Ruperti‐Repilado, Alexander Van De Bruaene, Junko Enomoto, Maayke A. Sluman, Jamie L. Jackson, Paul Khairy, Stephen C. Cook, Shanthi Chidambarathanu, Luis Alday, Erwin Oechslin, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S. Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M. Fernandes, Kamila White, Edward Callus, Shelby Kutty, Silke Apers, Philip Moons, Héctor Maisuls, Betina Vega, Sarah Eaton, Qi Feng Wang, Ruth Larion, Werner Budts, Kristien Van Deyk, Eva Goossens, Jessica Rassart, Gwen Rempel, Andrew Mackie, Ross Ballantyne, Kathryn Rankin, Colleen Norris, Dylan Taylor, Isabelle Vondermuhll, Jonathan Windram, Pamela Heggie, Gerri Lasiuk, Anna Proietti, Annie Dore, Lise‐Andrée Mercier, François‐Pierre Mongeon, François Marcotte, Reda Ibrahim, Blandine Mondésert, Marie‐Claude Côté, Adrienne Kovacs, Mimi Bandyopadhyay, Sylvie Di Filippo, François Sassolas, André Bozio, Cécile Chareyras, Farida Farzana, Nitya Lakshmi, Emilia Quadri, Massimo Chessa, Giovanna Campioni, Alessandro Giamberti, Yoshiko Mizuno, Victor Grech, Sheena Vella, Anabel Mifsud, Neville Borg, Daniel Chircop, Matthew Mercieca Balbi, Rachel Vella Critien, James Farrugia, Yanika Gatt, Darlene Muscat, Mette‐Elise Estensen, Eva Mattsson, Anita Strandberg, Pia Karlström‐Hallberg, Anna‐Karin Kronhamn, Markus Schwerzman, Corina Thomet, Margrit Huber, Yu Chuan Hua, Barbara Mulder, Maayke Sluman, Marco Post, Els Pieper, Kathinka Peels, Marc Waskowsky, Michelle Faust, Colin Lozier, Christy Reed, Jamie Hilfer, Curt Daniels, Jamie Jackson, Carolyn Chamberlain, Sara Warta, Stephen Cook, Morgan Hindes, Ari Cedars, Susan Fernandes, Anitra Romfh, Kirstie MacMillen

Publikováno v: Journal of the American Heart Association, 11(9):e024993. Wiley-Blackwell
Lu, Chun-Wei; Wang, Jou-Kou; Yang, Hsiao-Ling; Kovacs, Adrienne H; Luyckx, Koen; Ruperti-Repilado, Francisco Javier; Van De Bruaene, Alexander; Enomoto, Junko; Sluman, Maayke A; Jackson, Jamie L; Khairy, Paul; Cook, Stephen C; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S; ... (2022). Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries. Journal of the American Heart Association, 11(9), e024993. American Heart Association 10.1161/JAHA.121.024993

Background Heart failure (HF) is the leading cause of mortality and associated with significant morbidity in adults with congenital heart disease. We sought to assess the association between HF and patient‐report outcomes in adults with congenital

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ae8381fa04ecc78f1245f52622917d7c
https://pure.amc.nl/en/publications/heart-failure-and-patientreported-outcomes-in-adults-with-congenital-heart-disease-from-15-countries(4bbeb5dc-c93e-4364-9e41-485aad8ee8cc).html

Late Onset Postcapillary Pulmonary Hypertension in Patients With Transposition of the Great Arteries and Mustard or Senning Baffles

Autor: François Marcotte, Annie Dore, Fabien Labombarda, Lise-Andrée Mercier, François-Pierre Mongeon, Anita W. Asgar, Blandine Mondésert, Reda Ibrahim, Azadeh Shohoudi, Nancy Poirier, Marie-A. Chaix, Paul Khairy

Publikováno v: Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease

Background There is a paucity of data regarding late‐onset pulmonary hypertension ( PH ) in patients with transposition of the great arteries and atrial switch surgery. Methods and Results A retrospective cohort study was conducted on 140 adults wi

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::54ca3349feb7db33572d12d4c797a07f
http://europepmc.org/articles/PMC5721856

Shone Complex: An Under-recognized Congenital Heart Disease With Substantial Morbidity in Adulthood

Autor: Annie Dore, François-Pierre Mongeon, Sajid Aslam, Paul Khairy, Pablo Avila-Alonso, Reda Ibrahim, Nancy Poirier, Azadeh Shohoudi, Joaquim Miro, Lise-Andrée Mercier, Anita W. Asgar, François Marcotte

Publikováno v: The Canadian journal of cardiology. 33(2)

Background Shone complex consists of a constellation of left-sided, usually obstructive, cardiac lesions, including supravalvar mitral ring, parachute mitral valve, subaortic stenosis, and aortic coarctation. Incomplete Shone complex consists of a mi

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2e8fb725ba5d27fcb3341a23ebe43200
https://pubmed.ncbi.nlm.nih.gov/28011108

Structure and process measures of quality of care in adult congenital heart disease patients: A pan-Canadian study

Autor: Nanette Alvarez, Elaine Gordon, Anne Williams, Philippe Chetaille, Candice K. Silversides, Catherine M. Kells, Lynn Bergin, Judith Therrien, Ariane Marelli, Marla Kiess, Dylan A. Taylor, Jeffrey Stein, James W. Tam, Paul Khairy, Andrew S. Mackie, Erwin Oechslin, Gary W. Burggraf, Luc M. Beauchesne, Lise-Andrée Mercier

Publikováno v: International Journal of Cardiology. 157:70-74

Background There are more adults than children with congenital heart disease. Of over 96,000 ACHD patients in Canada, approximately 50% require ongoing expert care. In spite of published recommendations, data on the quality of care for ACHD patients

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::67e6dd164dd7aaf026431bebb530a34d
https://doi.org/10.1016/j.ijcard.2010.12.024

Recent Advances in Adult Congenital Heart Disease

Autor: Annie Dore, Anita W. Asgar, Lise-Andrée Mercier, Nancy Poirier, François-Pierre Mongeon, Laurianne Le Gloan, Reda Ibrahim, François Marcotte, Joaquim Miro, Paul Khairy

Publikováno v: Circulation Journal. 75:2287-2295

As a result of major achievements in pediatric cardiac care, a growing number of patients with congenital heart disease (CHD) are flourishing well into adulthood. This heterogeneous and aging population of patients, many of whom represent the first g

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::10703c81f91fc0014ce96632a1f5228a
https://doi.org/10.1253/circj.cj-11-0601