Zobrazeno 1 - 3
of 3
pro vyhledávání: '"Lisa Bonebrake"'
Autor:
Lisa Bonebrake
Publikováno v:
Glomerular Diseases, Vol 3, Iss 1, Pp 42-46 (2023)
As an Alport syndrome patient, caregiver, and executive director of Alport Syndrome Foundation, I am aware of the frequently challenging road in seeking an accurate diagnosis. Our journeys are scattered with misdiagnosis, missed opportunities for acc
Externí odkaz:
https://doaj.org/article/96ec2ef6d16843748d0545d4dbac8674
Autor:
Lesley A. Inker, Silvia Ferrè, Mary Baliker, Anne Barr, Lisa Bonebrake, Alexander R. Chang, Juhi Chaudhari, Kerry Cooper, Clarissa J. Diamantidis, Derek Forfang, Barbara Gillespie, Petros Gregoriou, Femida Gwadry-Sridhar, Keren Ladin, Cari Maxwell, Kristi R. Mitchell, Kathleen P. Murphy, Muhammad Rakibuz-Zaman, Michael V. Rocco, Leslie A. Spry, Amit Sharma, Navdeep Tangri, Curtis Warfield, Kerry Willis
Publikováno v:
American journal of kidney diseases : the official journal of the National Kidney Foundation.
The National Kidney Foundation (NKF) launched the first national U.S. kidney disease patient registry, the NKF Patient Network, opened to patients throughout the continuum of chronic kidney disease (CKD). The Network provides individualized education
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3b57447e39bca78aa5e2f4e7c2f0fcc1
https://pubmed.ncbi.nlm.nih.gov/36191726
https://pubmed.ncbi.nlm.nih.gov/36191726
Autor:
B. André Weinstock, David L. Feldman, Alessia Fornoni, Oliver Gross, Clifford E. Kashtan, Sharon Lagas, Rachel Lennon, Jeffrey H. Miner, Michelle N. Rheault, James F. Simon, Lisa Bonebrake, Marty Dunleavy, Phil Kumnick, Gina Parziale, Janine Reed, André Weinstock, Susie Gear, Kristen Binaso, Raymond Manuel, James Simon, Gerald Appel, Melanie Blank, Winson Tang, Aliza Thompson, Roser Torra, Kenneth Lieberman, Christoph Licht, Karin Dahan, Kandai Nozu, Hirofumi Kai, Sharon Ricardo, Anne Pariser, David Feldman, Heather Cook, Melanie Chin, Angela Goldsberry, Colin Meyer, Lisa Anne Melia, Radko Komers, Michael Markels, Alex Mercer, Marco Prunotto, Bruce Morgenstern, Ali Hariri, Vijay Modur, Neil Turner, Clifford Kashtan, Michelle Rheault, Colin Baigent, Stephano DeSacco, Laura Perin, Moumita Barua, Koichi Nakanishi, George Jarad, Jeffrey Miner
Publikováno v:
Weinstock, B A, Feldman, D L, Fornoni, A, Gross, O, Kashtan, C E, Lagas, S, Lennon, R, Miner, J H, Rheault, M N, Simon, J F, Bonebrake, L, Dunleavy, M, Kumnick, P, Lagas, S, Parziale, G, Reed, J, Weinstock, A, Gear, S, Binaso, K, Manuel, R, Simon, J, Appel, G, Blank, M, Tang, W, Thompson, A, Torra, R, Lieberman, K, Licht, C, Dahan, K, Nozu, K, Kai, H, Ricardo, S, Pariser, A, Feldman, D, Cook, H, Chin, M, Goldsberry, A, Meyer, C, Melia, L A, Komers, R, Markels, M, Mercer, A, Prunotto, M, Morgenstern, B, Hariri, A, Modur, V, Turner, N, Gross, O, Fornoni, A, Kashtan, C, Rheault, M, Baigent, C, Desacco, S, Perin, L, Barua, M, Nakanishi, K, Jarad, G & Miner, J 2020, ' Clinical trial recommendations for potential Alport syndrome therapies ', Kidney International, vol. 97, no. 6, pp. 1109-1116 . https://doi.org/10.1016/j.kint.2020.02.029
Alport syndrome is experiencing a remarkable increase in preclinical investigations. To proactively address the needs of the Alport syndrome community, as well as offer clarity for future clinical research sponsors, the Alport Syndrome Foundation hos
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f7cd31a3ba1cfa1d09aa0e0800dd0db1
https://pubmed.ncbi.nlm.nih.gov/32386680
https://pubmed.ncbi.nlm.nih.gov/32386680