Zobrazeno 1 - 4
of 4
pro vyhledávání: '"Lindsay Jesteadt"'
Publikováno v:
J Clin Sleep Med
STUDY OBJECTIVES: To clarify the most common and problematic symptoms, psychosocial challenges, and comorbidities among youth with narcolepsy based on input from key stakeholders. METHODS: A nationwide cross-sectional survey of youth with narcolepsy,
Autor:
Kiran Maski, Jennifer Worhach, Erin Steinhart, Madeline Boduch, Anne Marie Morse, Michael Strunc, Thomas Scammell, Judith Owens, Lindsay Jesteadt, Claire Crisp, David Williams, Georgios Sideridis
Publikováno v:
Neurology
Background and ObjectivesNarcolepsy and idiopathic hypersomnia usually begin in early adolescence, but diagnostic delays ranging from 5 to 10 years are common, affecting disease burden. To improve early identification of these treatable conditions, w
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::91529f32e49e2069b714a394a31852f6
https://europepmc.org/articles/PMC9141629/
https://europepmc.org/articles/PMC9141629/
Autor:
Anna C Pfalzer, Theresa V Strong, Marisa F. Naujokas, Erica Kelly, Maria Picone, Jeremy Kelly, Sharon O’Shaughnessy, Rebecca King, Lara C. Pullen, Lindsay Jesteadt, Terry Jo Bichell, Paige Rivard, Steve Maier, Casey Gorman
Background: Disorders of sleep-wake stability have a negative impact on patient and caregiver quality of life. There is evidence that sleep disorders and their sequelae may be an underrecognized burden for people living with rare diseases. Given that
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::9dc5e09efa940811feb1d2a85ecc07a5
https://doi.org/10.21203/rs.3.rs-555846/v1
https://doi.org/10.21203/rs.3.rs-555846/v1
Publikováno v:
J Clin Sleep Med
STUDY OBJECTIVES: To describe the most commonly used treatments in pediatric narcolepsy and their perceived effectiveness, as well as to elicit key stakeholder perspectives on the most optimal manner in which care ought to be delivered to youth with