Zobrazeno 1 - 10
of 301
pro vyhledávání: '"Linda Nguyen"'
Autor:
Chad Smith, Kiel M. Telesford, Sara G. M. Piccirillo, Yamhilette Licon-Munoz, Wei Zhang, Key M. Tse, Jacqueline R. Rivas, Chaitanya Joshi, Dilan S. Shah, Angela X. Wu, Ritu Trivedi, Scott Christley, Yu Qian, Lindsay G. Cowell, Richard H. Scheuermann, Ann M. Stowe, Linda Nguyen, Benjamin M. Greenberg, Nancy L. Monson
Publikováno v:
Journal of Neuroinflammation, Vol 21, Iss 1, Pp 1-16 (2024)
Abstract Background Pediatric acute transverse myelitis (ATM) accounts for 20–30% of children presenting with a first acquired demyelinating syndrome (ADS) and may be the first clinical presentation of a relapsing ADS such as multiple sclerosis (MS
Externí odkaz:
https://doaj.org/article/db4c00b3e57e4dff88091e62118c9448
Autor:
Ariane Marelli, Ronen Rozenblum, Clara Bolster-Foucault, Alicia Via-Dufresne Ley, Noemie Maynard, Khush Amaria, Barb Galuppi, Sonya Strohm, Linda Nguyen, Claire Dawe-McCord, Connie Putterman, Adrienne H Kovacs, Jan Willem Gorter
Publikováno v:
JMIR Pediatrics and Parenting, Vol 7, p e51606 (2024)
BackgroundTransition from pediatric to adult health care varies and is resource intensive. Patient-centered health information technology (HIT) interventions are increasingly being developed in partnership with patients. ObjectiveThis study aims to
Externí odkaz:
https://doaj.org/article/4f85bbd9799545ac99c944941bd872c0
Autor:
Linda Nguyen, Kinga Pozniak, Sonya Strohm, Jessica Havens, Claire Dawe-McCord, Donna Thomson, Connie Putterman, Dana Arafeh, Barb Galuppi, Alicia Via-Dufresne Ley, Shelley Doucet, Khush Amaria, Adrienne H. Kovacs, Ariane Marelli, Ronen Rozenblum, Jan Willem Gorter, CHILD-BRIGHT READYorNot™ Brain-Based Disabilities Trial Study Group
Publikováno v:
Research Involvement and Engagement, Vol 10, Iss 1, Pp 1-13 (2024)
Abstract Background While patient and family engagement in research has become a widespread practice, meaningful and authentic engagement remains a challenge. In the READYorNot™ Brain-Based Disabilities Study, we developed the MyREADY Transition™
Externí odkaz:
https://doaj.org/article/db96c7c5cd7f43c78cabb1306870b25d
Youth engagement in research: exploring training needs of youth with neurodevelopmental disabilities
Autor:
Samantha Yimeng Dong, Linda Nguyen, Andrea Cross, Amanda Doherty-Kirby, Jessica Geboers, Dayle McCauley, Alice Kelen Soper, Amanda St. Dennis, Danny Steeves, Natasha Trehan, Jan Willem Gorter
Publikováno v:
Research Involvement and Engagement, Vol 9, Iss 1, Pp 1-15 (2023)
Abstract Background Authentic researcher-youth partnerships in patient-oriented research (POR) where the research responds to the needs expressed by youth themselves are essential to make research meaningful. While patient-oriented research (POR) is
Externí odkaz:
https://doaj.org/article/f49b0c9e4ddf4888bae7dd36f64d3d16
Autor:
Khoa Tran, HyeYuong Shon, Jonathan Phan, Tina Cheng, Gloria S Kim, Armaan Jamal, Malathi Srinivasan, Latha P Palaniappan, Linda Nguyen, Robert J Huang
Publikováno v:
PLoS ONE, Vol 19, Iss 5, p e0303195 (2024)
BackgroundDisaggregated data is a cornerstone of precision health. Vietnamese Americans (VietAms) are the fourth-largest Asian subgroup in the United States (US), and demonstrate a unique burden of disease and mortality. However, most prior studies h
Externí odkaz:
https://doaj.org/article/ee3829d0310c418fa6b145815b28a861
Autor:
Frances Tiffany Cava Morden, Bao Xin Liang, Linda Nguyen, Enrique Carrazana, Arash Ghaffari-Rafi, Kore Kai Liow
Publikováno v:
Epilepsy & Behavior Reports, Vol 27, Iss , Pp 100688- (2024)
Gomez-Lopez-Hernandez syndrome (GLHS), also known as cerebello-trigeminal-dermal dysplasia, is a neurocutaneous disorder typically presenting in childhood. GLHS is characterized by rhombencephalosynapsis (RES) and partial alopecia, with or without tr
Externí odkaz:
https://doaj.org/article/7dec3d23b7f14bd5aa8708bac1dc7628
Autor:
Linda Nguyen, Claire Dawe-McCord, Michael Frost, Musa Arafeh, Kyle Chambers, Dana Arafeh, Kinga Pozniak, Donna Thomson, JoAnne Mosel, Roberta Cardoso, Barb Galuppi, Sonya Strohm, Alicia Via-Dufresne Ley, Caitlin Cassidy, Dayle McCauley, Shelley Doucet, Hana Alazem, Anne Fournier, Ariane Marelli, Jan Willem Gorter
Publikováno v:
Frontiers in Rehabilitation Sciences, Vol 4 (2023)
There is a growing number of youth with healthcare needs such as disabilities or chronic health conditions who require lifelong care. In Canada, transfer to the adult healthcare system typically occurs at age 18 and is set by policy regardless of whe
Externí odkaz:
https://doaj.org/article/6168b37541f94624b5041e9958281b4b
Autor:
Monika Novak-Pavlic, Jan Willem Gorter, Michelle P. Phoenix, Samantha K. Micsinszki, Kinga Pozniak, Lin Li, Linda Nguyen, Alice K. Soper, Elaine Yuen Ling Kwok, Jael N. Bootsma, Francine Buchanan, Hanae Davis, Sandra Abdel Malek, Karen M. van Meeteren, Peter L. Rosenbaum
Publikováno v:
Journal of Patient-Centered Research and Reviews, Vol 10, Iss 2, Pp 82-90 (2023)
Patient and family engagement has become a widely accepted approach in health care research. We recognize that research conducted in partnership with people with relevant lived experience can substantially improve the quality of that research and lea
Externí odkaz:
https://doaj.org/article/45acd0e606574c78b4fbb86672709243
Publikováno v:
BMC Neurology, Vol 22, Iss 1, Pp 1-7 (2022)
Abstract Background To determine whether restricted diffusion of the callosal splenium is specific for seizure activity in neonates. Methods We performed a retrospective chart review of 123 neonates who had a diagnosis of hypoxic ischemic encephalopa
Externí odkaz:
https://doaj.org/article/70babd9dc2e04bb8b476bc349f0c63d3
Autor:
Linda Nguyen, Bente van Oort, Hanae Davis, Eline van der Meulen, Claire Dawe-McCord, Anita Franklin, Jan Willem Gorter, Christopher Morris, Marjolijn Ketelaar
Publikováno v:
Research Involvement and Engagement, Vol 8, Iss 1, Pp 1-14 (2022)
Plain English summary In more and more projects, researchers and young people are working together in partnership; but there is little guidance about how to organize this partnership. In this paper, we share what partnerships in six projects from Can
Externí odkaz:
https://doaj.org/article/75338d2ceaa647bf95edeef37bd63f43