Výsledky vyhledávání - "Leslie Hanrahan"

Patient Experiences, Satisfaction, and Expectations with Current Systemic Lupus Erythematosus Treatment: Results of the SLE-UPDATE Survey

Autor: N. Bello, Laure Delbecque, Diane L. Kamen, Anca Askanase, Leslie Hanrahan, Julie Birt, Nashmel Sargalo, Kirstin Griffing, M Hadi, Paul Swinburn, Karin Tse, Maria E. Silk, Ella Brookes

Publikováno v: Rheumatology and Therapy

Objectives To provide information on systemic lupus erythematosus (SLE) patients’ experiences, satisfaction, and expectations with treatments and examine the association between treatment satisfaction and patient-reported outcomes (PRO). Methods A

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::268fb079c136c9f485b4ad9f27eb25eb
https://doi.org/10.1007/s40744-021-00328-6

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Establishing Consensus Understanding of the Barriers to Drug Development in Lupus

Autor: Eric F Morand, Kenneth A. Getz, Leslie Hanrahan, Yaritza Peña, Annick de Bruin, Karin Tse

Publikováno v: Therapeutic Innovation & Regulatory Science. 54:1159-1165

Due to the extreme heterogeneity of lupus and the lack of consensus among stakeholders, pharmaceutical and biotechnology companies have had limited success in developing treatments for lupus. For this reason, the Lupus Foundation of America (LFA), re

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9c9a550cf3266b8103e89b45e70b56d5
https://doi.org/10.1007/s43441-020-00134-2

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Comparison of the Lupus Foundation of America-Rapid Evaluation of Activity in Lupus to More Complex Disease Activity Instruments As Evaluated by Clinical Investigators or Real-World Clinicians

Autor: Diane L. Kamen, Karen H. Costenbader, Samantha C. Nguyen, Leslie Hanrahan, Mimi Y. Kim, Aikaterini Thanou-Stavraki, Anca D. Askanase, Joan T. Merrill, S. Sam Lim, Cynthia Aranow, Jennifer M. Grossman, De Anna Baker-Frost, Teresa Aberle, Teja Kapoor

Publikováno v: Arthritis Care & Research. 70:1058-1063

Lupus disease measures such as the Systemic Lupus Erythematosus Disease Activity Index (SLEDAI) and the British Isles Lupus Assessment Group (BILAG) index are challenging to interpret. The Lupus Foundation of America-Rapid Evaluation of Activity in L

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3735cd8e8d85023758f613eaea10ac3f
https://doi.org/10.1002/acr.23445

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Individualized decision aid for diverse women with lupus nephritis (IDEA-WON): A randomized controlled trial

Publikováno v: PLoS medicine, vol 16, iss 5
PLoS Medicine, Vol 16, Iss 5, p e1002800 (2019)
PLoS Medicine

Background Treatment decision-making regarding immunosuppressive therapy is challenging for individuals with lupus. We assessed the effectiveness of a decision aid for immunosuppressive therapy in lupus nephritis. Methods and findings In a United Sta

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::204f8bcac97064553f332c44c4edb476
https://escholarship.org/uc/item/5xx5c1r8

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Hydroxychloroquine usage in US patients, their experiences of tolerability and adherence, and implications for treatment: survey results from 3127 patients with SLE conducted by the Lupus Foundation of America

Autor: Michelle Petri, Karin Tse, Leslie Hanrahan, Daniel J. Wallace, Rupert Davies

Publikováno v: Lupus Science & Medicine

The majority of patients with SLE in the USA have been prescribed hydroxychloroquine (HCQ). Given more recent guidelines, the availability of only one strength (200 mg tablets) may limit the flexibility and ability to accurately dose patients with lu

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ed75d4ee6426f1aa3c13109d3abb5bf4
http://europepmc.org/articles/PMC6519405

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THU0253 FATIGUE AND PAIN REMAIN PROMINENT AND IMPACTFUL IN PATIENTS WITH SYSTEMIC LUPUS ERYTHEMATOSUS (SLE): A CROSS-SECTIONAL SURVEY OF SLE PATIENTS IN THE UNITED STATES

Autor: Leslie Hanrahan, E. Brookes, Diane L. Kamen, N. Sargalo, M. Hadi, N. Bello Vega, P. Swinburn, M. Silk, Julie Birt, Kirstin Griffing, L. Delbecque, Karin Tse

Publikováno v: Annals of the Rheumatic Diseases. 79:353.2-354

Background:Systemic lupus erythematosus (SLE) is a chronic autoimmune inflammatory condition impacting multiple organ systems.1,2SLE affects approximately 1.5 million Americans, disproportionately females of reproductive age, and is more prevalent in

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::a763c07df7e72a352296224b10e4e227
https://doi.org/10.1136/annrheumdis-2020-eular.4190

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AB1249 ASSESSMENT OF FATIGUE IN ADULTS WITH MODERATE-TO-SEVERE SYSTEMIC LUPUS ERYTHEMATOSUS (SLE): A QUALITATIVE STUDY TO EXPLORE WHAT PATIENTS FEEL SHOULD BE MEASURED IN CLINICAL TRIALS

Autor: A. Hareendran, S. Mannix, B. Flamion, A. Beyer, Vibeke Strand, Leslie Hanrahan, C. Abél

Publikováno v: Annals of the Rheumatic Diseases. 79:1916-1916

Background:Fatigue is one of the most common symptoms reported by patients with systemic lupus erythematosus (SLE)—it is responsible for considerable loss of work time and greatly impaired quality of life. The Functional Assessment of Chronic Illne

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::25cfbba3a1c2e0d1291cb86b7ee03a0c
https://doi.org/10.1136/annrheumdis-2020-eular.3849

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