Zobrazeno 1 - 10
of 48
pro vyhledávání: '"Laura Behan"'
Autor:
Magdalena Anita Roszak, Anna Bręborowicz, Aleksandra Szczepankiewicz, Marcin Mikoś, Zuzanna Bukowy-Bieryłło, Barbara Więckowska, Laura Behan, Hanna Dmeńska, Joanna Goździk-Spychalska, Agata Nowicka, Ewa Sapiejka, Paulina Famulska, Elżbieta Gąsecka, Andrzej Pogorzelski, Irena Wojsyk-Banaszak
Publikováno v:
Advances in Respiratory Medicine, Vol 92, Iss 4, Pp 254-262 (2024)
In recent years, questionnaires were published in English to assess the quality of life of patients with PCD (Primary Ciliary Diskinesia) for adults, adolescents aged 13–17 years, and children aged 6–12 years and their caregivers. This study aime
Externí odkaz:
https://doaj.org/article/43b2a2ce852e444f86fe213a0f422568
Publikováno v:
Health and Human Rights, Vol 26, Iss 1, Pp 115-128 (2024)
Managing residential care facilities (RCFs) includes the ability to manage adverse events while maintaining a human rights-based approach to care and support. Literature investigating rights-based approaches in RCFs is scarce; therefore, an investiga
Externí odkaz:
https://doaj.org/article/f10a887346fa49978213a11f250611dd
Autor:
Myrofora Goutaki, Yin Ting Lam, Bruna Rubbo, James D. Chalmers, Panayiotis Kouis, Gemma Marsh, Jean-François Papon, Johanna Raidt, Phil Robinson, Laura Behan, Jane S. Lucas
Publikováno v:
ERJ Open Research, Vol 10, Iss 5 (2024)
Background Despite advances in primary ciliary dyskinesia (PCD) research, many questions remain; diagnosis is complex and no disease-specific therapies exist. Using a mixed-methods approach, we aimed to identify priorities for clinical and epidemiolo
Externí odkaz:
https://doaj.org/article/1b74592cea244355a1daa4a5db65decb
Publikováno v:
HRB Open Research, Vol 6 (2023)
Background Evidence indicates that the reporting of serious injury in long-term residential care has increased substantially over the past decade. However, what constitutes a serious injury in residential care is poorly and inconsistently defined. Th
Externí odkaz:
https://doaj.org/article/d0c2092ef0034e3d877f94a7e38a51ca
Autor:
Laura Behan, Martin J McMahon, Aisling M O'Connor, Paul Dunbar, Anna Delany, Carol Grogan, Laura M Keyes
Publikováno v:
BMJ Open, Vol 13, Iss 5 (2023)
Objectives To determine incidence of death in residential care facilities for people with disability in Ireland, primary cause of death, associations of facility characteristics and deaths, and to compare characteristics of deaths reported as expecte
Externí odkaz:
https://doaj.org/article/b004b9131e4d4082abf6551f79a473d5
Autor:
Phivos Ioannou, Panayiotis Kouis, Maria G. Kakkoura, Margarita Kaliva, Aristoula Toliopoulou, Kyriacos Andreou, Laura Behan, Jane S. Lucas, Vicky Papanikolaou, George Charalambous, Nicos Middleton, Panayiotis K. Yiallouros
Publikováno v:
Health and Quality of Life Outcomes, Vol 18, Iss 1, Pp 1-9 (2020)
Abstract Background The QOL-PCD questionnaire is a recently developed Health Related Quality of Life (HRQoL) instrument for Primary Ciliary Dyskinesia. The aim of this study was to translate the adult QOL-PCD questionnaire into Greek language and to
Externí odkaz:
https://doaj.org/article/f7783f83546249b0887c4c76f466d59e
Autor:
Florian Gahleitner, James Thompson, Claire L. Jackson, Jana F. Hueppe, Laura Behan, Eleonora Dehlink, Myrofora Goutaki, Florian Halbeisen, Ana Paula L. Queiroz, Guillaume Thouvenin, Claudia E. Kuehni, Philipp Latzin, Jane S. Lucas, Bruna Rubbo
Publikováno v:
ERJ Open Research, Vol 7, Iss 4 (2021)
Objectives Disease-specific, well-defined and validated clinical outcome measures are essential in designing research studies. Poorly defined outcome measures hamper pooling of data and comparisons between studies. We aimed to identify and describe p
Externí odkaz:
https://doaj.org/article/ce34efca1d914674ae85924056fb2ce0
Autor:
Panayiotis Kouis, Myrofora Goutaki, Florian S. Halbeisen, Ifigeneia Gioti, Nicos Middleton, Israel Amirav, on behalf of the Israeli PCD Consortium, Angelo Barbato, on behalf of the Italian PCD Consortium, Laura Behan, Mieke Boon, Nagehan Emiralioglu, Eric G. Haarman, Bulent Karadag, Cordula Koerner-Rettberg, Romain Lazor, on behalf of the Swiss PCD Group, Michael R. Loebinger, Bernard Maitre, on behalf of the French Reference Centre for Rare Lung Diseases, Henryk Mazurek, Lucy Morgan, Kim Gjerum Nielsen, Heymut Omran, Ugur Özçelik, Mareike Price, Andrzej Pogorzelski, Deborah Snijders, on behalf of the PCD Italian Consortium, Guillaume Thouvenin, Claudius Werner, Zorica Zivkovic, Claudia E. Kuehni, Panayiotis K. Yiallouros
Publikováno v:
Respiratory Research, Vol 20, Iss 1, Pp 1-12 (2019)
Abstract Background Lung resection is a controversial and understudied therapeutic modality in Primary Ciliary Dyskinesia (PCD). We assessed the prevalence of lung resection in PCD across countries and compared disease course in lobectomised and non-
Externí odkaz:
https://doaj.org/article/c428f64b0b3e41d1a14ad10bef7262ea
Autor:
Ana Paula Lima de Queiroz, Rodrigo Abensur Athanazio, Mary Anne Kowal Olm, Bruna Rubbo, Yuri Reis Casal, Jane Lucas, Laura Behan
Publikováno v:
Jornal Brasileiro de Pneumologia, Vol 45, Iss 3 (2019)
ABSTRACT Primary ciliary dyskinesia (PCD) is a genetic disorder that is typically inherited in an autosomal recessive manner. It is clinically characterized by recurrent respiratory infections. However, its repercussions for patient quality of life s
Externí odkaz:
https://doaj.org/article/4d580436f2994c3fb3393160b83631a0
Autor:
John Goodwin, Laura Behan
Publikováno v:
Mental Health Review Journal.
Purpose People who experience mental illness often demonstrate limited help-seeking behaviours. There is evidence to suggest that media content can influence negative attitudes towards mental illness; less is known about how media impacts help-seekin
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::2351292fa5091a4a038c4251fc50056b
https://doi.org/10.1108/mhrj-06-2022-0038
https://doi.org/10.1108/mhrj-06-2022-0038