Výsledky vyhledávání - "Larissa Stassek"

Akademický článek

Patient perception of bowel urgency and remission in moderately to severely active Crohn’s disease or ulcerative colitis: a qualitative study

Autor: Theresa Hunter Gibble, Larissa Stassek, Gale Harding, Marissa Stefan, Tsion Fikre, Alison Potts Bleakman, Richard Moses, Marla Dubinsky

Publikováno v: Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-13 (2024)

Abstract Background Bowel urgency, the sudden and immediate need to have a bowel movement, is common in patients with ulcerative colitis (UC) and Crohn’s disease (CD). While its impact in UC is well established, less is known about its importance i

Externí odkaz: https://doaj.org/article/7ecddf7842ce422890918b1df71f5a89

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Akademický článek

Experience and measurement of fatigue in adults with Crohn’s disease: results from qualitative interviews and a longitudinal 2-week daily diary pilot study

Autor: Miguel Regueiro, Laure Delbecque, Theresa Hunter, Larissa Stassek, Gale Harding, James Lewis

Publikováno v: Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-15 (2023)

Abstract Background Fatigue has a detrimental impact on health-related quality of life and functioning in patients with Crohn’s disease (CD). We aimed to confirm the relevance and importance of fatigue, establish the content validity of the Functio

Externí odkaz: https://doaj.org/article/eb3a09d409764f09bb54aebf9e069ca2

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Akademický článek

Qualitative Interviews to Assess the Content Validity and Usability of the Electronic Raynaud Diary in Patients with Systemic Sclerosis

Autor: Robyn T. Domsic, Robin Pokrzywinski, Larissa Stassek, Wade W. Benton, Christa‐Lynn Vampola, Daniel E. Furst, Lorinda Chung, Virginia Steen, Maureen D. Mayes, Ami A. Shah, Jerry A. Molitor, Kelly Oliver, Vivek Nagaraja, Dinesh Khanna

Publikováno v: ACR Open Rheumatology, Vol 5, Iss 3, Pp 132-141 (2023)

Objective To better understand the symptoms and impacts of Raynaud phenomenon (RP) in patients with systemic sclerosis (SSc) and to evaluate the content validity and usability of a new electronic patient‐reported outcome (PRO) measure for RP: the R

Externí odkaz: https://doaj.org/article/2dd35a0153c940ee986f4d2a8674ad51

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Akademický článek

Psychometric evaluation of the Urgency NRS as a new patient-reported outcome measure for patients with ulcerative colitis

Autor: Marla C. Dubinsky, Mingyang Shan, Laure Delbecque, Trevor Lissoos, Theresa Hunter, Gale Harding, Larissa Stassek, David Andrae, James D. Lewis

Publikováno v: Journal of Patient-Reported Outcomes, Vol 6, Iss 1, Pp 1-15 (2022)

Abstract Background The Urgency Numeric Rating Scale (NRS) was developed as a content-valid single-item patient-reported outcome measure to assess severity of bowel urgency. Here, we evaluated the psychometric properties of the Urgency NRS. Methods D

Externí odkaz: https://doaj.org/article/c6a53c14aaa4456ebbad9e13ff396443

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Akademický článek

Symptoms, impacts, and suitability of the Pulmonary Arterial Hypertension-Symptoms and Impact (PAH-SYMPACT™) questionnaire in patients with sarcoidosis-associated pulmonary hypertension (SAPH): a qualitative interview study

Autor: Brooke M. Currie, Evan W. Davies, Amélie Beaudet, Larissa Stassek, Leah Kleinman, Robert P. Baughman

Publikováno v: BMC Pulmonary Medicine, Vol 21, Iss 1, Pp 1-10 (2021)

Abstract Background Sarcoidosis-associated pulmonary hypertension (SAPH) is a prevalent and serious complication of sarcoidosis. No SAPH-specific self-report instruments for assessing SAPH symptoms and their impact on patients are available to date.

Externí odkaz: https://doaj.org/article/b05789a527004990b985ff1c37b6a516

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Akademický článek

Symptoms, impacts, and suitability of the Pulmonary Arterial Hypertension – Symptoms and Impact (PAH-SYMPACT™) questionnaire in patients with chronic thromboembolic pulmonary hypertension (CTEPH): a qualitative interview study

Autor: Brooke Currie, Evan Davies, Amélie Beaudet, Larissa Stassek, Leah Kleinman

Publikováno v: Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-12 (2021)

Abstract Background Chronic thromboembolic pulmonary hypertension (CTEPH) is a rare form of pulmonary hypertension caused by blood clots and scar tissue in the blood vessels of the lungs. Health-related quality of life is often significantly impaired

Externí odkaz: https://doaj.org/article/6f6d74fc78344ff5af9f73a3fd66452d

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Akademický článek

Development and adaptation of patient-reported outcome measures for patients who experience itch associated with primary biliary cholangitis

Autor: Mona L. Martin, Larissa Stassek, Steven I. Blum, Ashish V. Joshi, David Jones

Publikováno v: Journal of Patient-Reported Outcomes, Vol 3, Iss 1, Pp 1-11 (2019)

Abstract Purpose To conduct qualitative interviews to evaluate and refine the Itch Diary (ID) and weekly version of the PBC-40 in patients with itching associated with primary biliary cholangitis (PBC). Methods Twenty adults with self-reported PBC di

Externí odkaz: https://doaj.org/article/a10508c01d354872b5114b144163df8e

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