Development of the sickle Pan-African research consortium registry in Tanzania: opportunity to harness data science for sickle cell disease.

Autor: Kandonga D; Sickle Cell Programme, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania., Sangeda RZ; Sickle Cell Programme, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.; Department of Pharmaceutical Microbiology, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania., Masamu U; Sickle Cell Programme, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania., Kazumali E; Statistics Department, Eastern Africa Statistical Training Centre, Dar es Salaam, Tanzania., Jonathan A; Sickle Cell Programme, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania., Msangawale M; Sickle Cell Programme, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania., Kaihula W; Sickle Cell Programme, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania., Rwegalulila J; Sickle Cell Programme, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania., Ondego J; Sickle Cell Programme, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania., Tutuba HJ; Sickle Cell Programme, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania., Ndunguru J; Sickle Cell Programme, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania., Ambrose EE; Department of Paediatrics and Child Health, Catholic University of Health and Allied Sciences, Mwanza, Tanzania., Kidenya BR; Sickle Cell Programme, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.; Department of Biochemistry and Molecular Biology, Catholic University of Health and Allied Sciences, Mwanza, Tanzania., Yonazi M; Department of Hematology and Blood Transfusion, Muhimbili National Hospital, Dar es Salaam, Tanzania., Kyomugisha I; Department of Pathology, Division of Human Genetics, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa., Mupfururirwa W; Department of Pathology, Division of Human Genetics, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa., Jonas M; Department of Pathology, Division of Human Genetics, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa., Nembaware V; Department of Pathology, Division of Human Genetics, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa., Mazandu GK; Department of Pathology, Division of Human Genetics, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa., Kengne AP; Non-Communicable Diseases Research Unit, South African Medical Research Council, Cape Town, South Africa., Wonkam A; Department of Pathology, Division of Human Genetics, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa.; Department of Genetic Medicine, Johns-Hopkins University School of Medicine, Baltimore, MD, United States., Makani J; Sickle Cell Programme, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.; SickleInAfrica Clinical Coordinating Centre (CCC), Muhimbili National Hospital, Dar es Salaam, Tanzania., Balandya E; Sickle Cell Programme, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.; Department of Physiology, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.

Publikováno v: Frontiers in hematology [Front Hematol] 2023; Vol. 2. Date of Electronic Publication: 2023 Apr 10.