Zobrazeno 1 - 3
of 3
pro vyhledávání: '"Kyle Bertram Brothers"'
Autor:
Janet Elizabeth Childerhose, Carla Rich, Kelly M. East, Whitley V. Kelley, Shirley Simmons, Candice R. Finnila, Kevin Bowling, Michelle Amaral, Susan M. Hiatt, Michelle Thompson, David E. Gray, James M. J. Lawlor, Richard M. Myers, Gregory S. Barsh, Edward J. Lose, Martina E. Bebin, Greg M. Cooper, Kyle Bertram Brothers
Publikováno v:
AJOB Empir Bioeth
BACKGROUND: The desire of parents to obtain a genetic diagnosis for their child with intellectual disability and associated symptoms has long been framed as a diagnostic odyssey, an arduous and sometimes perilous journey focused on the goal of identi
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::03408315ddb9d6a3dc8a45e8476ca8dd
https://doi.org/10.1080/23294515.2021.1907475
https://doi.org/10.1080/23294515.2021.1907475
Publikováno v:
The American Journal of Bioethics. 10:15-17
The provisions and categories delineated under the Common Rule have become such an integral part of the research enterprise that we sometimes direct more attention to its provisions than we do to t...
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::2c375e28979df146bdeb24d6ae243e1b
https://doi.org/10.1080/15265161.2010.492891
https://doi.org/10.1080/15265161.2010.492891
Autor:
Kyle Bertram Brothers
Publikováno v:
Personalized medicine. 8(1)
Pediatric biobanks are an indispensible resource for the research that will be needed to bring advances in personalized medicine into pediatric medical care. Investigators developing pediatric biobanks have struggled with the ethical and legal challe
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f79ac01853676808e604e120ef6fdde3
https://pubmed.ncbi.nlm.nih.gov/21691419
https://pubmed.ncbi.nlm.nih.gov/21691419