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Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND)

Autor: Kwakkenbos, L., Carrier, M.E., Welling, J.J.K.C., Turner, K.A., Cumin, J., Pépin, M.R., Ende, C.H.M. van den, Schouffoer, A.A., Hudson, M., Breda, W. van, Sauvé, M., Mayes, M.D., Malcarne, V.L., Nielson, W.R., Nguyen, C., Boutron, I., Rannou, F., Thombs, B.D., Mouthon, L.

Publikováno v: PeerJ, 10:e13471, 1-32. PeerJ
PeerJ, 10
The SPIN Investigators 2022, ' Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND) ', PeerJ, vol. 10, e13471, pp. 1-32 . https://doi.org/10.7717/peerj.13471

Purpose The Scleroderma Patient-centered Intervention Network (SPIN) online hand exercise program (SPIN-HAND), is an online self-help program of hand exercises designed to improve hand function for people with scleroderma. The objective of this feasi

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0329fcc3170ca5b171bbea7ade6b4240
https://doi.org/10.7717/peerj.13471

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Exploring research team members' and trial participants' perceptions of acceptability and implementation within one videoconference-based supportive care program for individuals affected by systemic sclerosis during COVID-19: A qualitative interview study

Autor: Wurz, A., Ellis, K., Duchek, D., Bansal, M., Carrier, M.E., Tao, L.X., Dyas, L., Kwakkenbos, L., Levis, B., El-Baalbaki, G., Rice, D.B., Wu, Y., Henry, R.S., Bustamante, L., Harb, S., Hebblethwaite, S., Patten, S.B., Bartlett, S.J., Varga, J., Mouthon, L., Markham, S., Thombs, B.D., Culos-Reed, S.N.

Publikováno v: Translational behavioral medicine, 13, 7, pp. 442-452
Translational behavioral medicine

Contains fulltext : 293092.pdf (Publisher’s version ) (Open Access) The SPIN-CHAT Program was designed to support mental health among individuals with systemic sclerosis (SSc; commonly known as scleroderma) and at least mild anxiety symptoms at the

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=dedup_wf_001::068975a21d5fdb1c8761d2e4441aacf4
https://repository.ubn.ru.nl/handle/2066/293092