Zobrazeno 1 - 2
of 2
pro vyhledávání: '"Kristine Alba-Concepcion"'
Autor:
Christina Q. Nguyen, Didu Kariyawasam, Kristine Alba‐Concepcion, Sarah Grattan, Kate Hetherington, Claire E. Wakefield, Susan Woolfenden, Russell C. Dale, Elizabeth E. Palmer, Michelle A. Farrar
Publikováno v:
Health Expectations, Vol 25, Iss 6, Pp 3175-3191 (2022)
Abstract Introduction Biomedical progress has facilitated breakthrough advanced neurotherapeutic interventions, whose potential to improve outcomes in rare neurological diseases has increased hope among people with lived experiences and their carers.
Externí odkaz:
https://doaj.org/article/e04dbdf2676f4e968daf5b3c5cefeaa9
Autor:
Christina Q. Nguyen, Kristine Alba-Concepcion, Elizabeth E. Palmer, Jackie L. Scully, Nicole Millis, Michelle A. Farrar
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-10 (2022)
Abstract Background The patient voice is becoming increasingly prominent across all stages of therapeutic innovation. It pervades research domains from funding and recruitment, to translation, care, and support. Advances in genomic technologies have
Externí odkaz:
https://doaj.org/article/a2b2b11a945f4e20a7c8decd5cfced22