Zobrazeno 1 - 10
of 39
pro vyhledávání: '"Kristina Staley"'
Autor:
Katherine Cowan, Kristina Staley, Kourosh R Ahmadi, Karyl Carter, Heidi Seage, Petra Visser, Nicola Ward, Martyn Hooper
Publikováno v:
BMJ Open, Vol 12, Iss 8 (2022)
Objectives To form a James Lind Alliance (JLA) Priority Setting Partnership (PSP) to determine research priorities related to the cause, diagnosis, treatment and management of pernicious anaemia (PA) from the perspectives of patients, carers and clin
Externí odkaz:
https://doaj.org/article/96ac04e593154ef8bea1c546cf004a84
Publikováno v:
Research Involvement and Engagement, Vol 7, Iss 1, Pp 1-8 (2021)
Plain English summary Patient and public involvement in research helps to make it more relevant and useful to the end-users. Researchers are therefore keen to involve people but are sometimes uncertain about who to involve. Some confusion comes from
Externí odkaz:
https://doaj.org/article/6f904543f5154db18a5034b61acf0bb4
Publikováno v:
Research Involvement and Engagement, Vol 6, Iss 1, Pp 1-10 (2020)
Abstract Background The James Lind Alliance (JLA) supports priority setting partnerships (PSPs) in which patients, carers and health professionals collaborate to identify a Top 10 list of research priorities. Few studies have examined how partnership
Externí odkaz:
https://doaj.org/article/647938b7c605438eab6f6351ca32c012
Autor:
Gerda Mickute, Kristina Staley, Heather Delaney, Oliver Gardiner, Amy Hunter, Richard Keen, Lorraine Lockhart, Nick Meade, Maria Newman, Stuart Ralston, Elaine Rush, Sheela Upadhyaya, Sandra Regan, Laura Watts, Jennifer Walsh, Paul White, Roger M. Francis, M. Kassim Javaid
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-7 (2020)
Abstract Background Osteogenesis imperfecta, fibrous dysplasia/McCune-Albright syndrome and X-linked hypophosphatemia are three rare musculoskeletal diseases characterised by bone deformities, frequent fractures and pain. Little high-quality research
Externí odkaz:
https://doaj.org/article/4ae5dac3f5014699af4faf4104d0e118
Autor:
Kristina Staley, Duncan Barron
Publikováno v:
Research Involvement and Engagement, Vol 5, Iss 1, Pp 1-9 (2019)
Abstract Public involvement in research has evolved over the last two decades in a culture dominated by the principles of evidence-based medicine. It is therefore unsurprising that some researchers have applied the same thinking to involvement, parti
Externí odkaz:
https://doaj.org/article/beb09e0982a545e0ba574814e48fd678
Publikováno v:
Research Involvement and Engagement, Vol 5, Iss 1, Pp 1-6 (2019)
Abstract For patients and the public to work collaboratively with researchers, they need support and opportunities to engage in learning that builds on their skills and grows their confidence. In this article, we argue for a different approach to thi
Externí odkaz:
https://doaj.org/article/382dfe905a8c4b28b369383693fa1dfb
Public involvement could usefully inform ethical review, but rarely does: what are the implications?
Autor:
Kristina Staley, Jim Elliott
Publikováno v:
Research Involvement and Engagement, Vol 3, Iss 1, Pp 1-17 (2017)
Plain English summary Researchers carrying out research in the NHS in England have to obtain approval for their study from an NHS Research Ethics Committee (REC). Involving the public in research helps to ensure studies are ethically acceptable to th
Externí odkaz:
https://doaj.org/article/e5417774aa6a4245b234e833049756e3
Publikováno v:
Research Involvement and Engagement, Vol 3, Iss 1, Pp 1-9 (2017)
Plain English summary The impacts of involvement in research are often described in terms of the difference made to the research, the people involved and less frequently the researchers. This paper focuses on the researchers’ experiences of involve
Externí odkaz:
https://doaj.org/article/35e0b9b698c74fd291b22ce4262faa59
Autor:
Christopher J Black, Yvonne A McKenzie, Morgan Scofield-Marlowe, Peter Setter, Maryrose Tarpey, Alexander C Ford, Helen West, Esther Southey, Julie Thompson, Maura Corsetti, Hazel A Everitt, David Greenwood, Pauline Hunt, Lesley Kirkpatrick, Yvonne McKenzie, Rona Moss-Morris, Christine Pollard, Margaret Surginor, Kristina Staley
Publikováno v:
The Lancet Gastroenterology & Hepatology. 8:499-501
Autor:
Rhys H. Thomas, Amy Hunter, Lyndsey Butterworth, Catherine Feeney, Tracey D. Graves, Sarah Holmes, Pushpa Hossain, Jo Lowndes, Jenny Sharpe, Sheela Upadhyaya, Kristin N. Varhaug, Marcela Votruba, Russell Wheeler, Kristina Staley, Shamima Rahman
Publikováno v:
Journal of Inherited Metabolic Disease. 45:796-803
Primary mitochondrial disorders encompass a wide range of clinical presentations and a spectrum of severity. They currently lack effective disease-modifying therapies and have a high mortality and morbidity rate. It is therefore essential to know tha