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pro vyhledávání: '"Kristin J. Billaud Feragen"'
Autor:
Line Merete Mediå, Lena Fauske, Solrun Sigurdardottir, Kristin J. Billaud Feragen, Anne Waehre
Publikováno v:
Health Psychology and Behavioral Medicine, Vol 12, Iss 1 (2024)
Background: Differences of Sex Development (DSD) are congenital conditions where the chromosomal, gonadal and anatomical sex characteristics do not strictly belong to male or female categories, or that belong to both at the same time. Surgical interv
Externí odkaz:
https://doaj.org/article/69d96d3a1d534d0e938d0d9649ad148f
Autor:
Line Merete Mediå, Lena Fauske, Solrun Sigurdardottir, Kristin J. Billaud Feragen, Charlotte Heggeli, Anne Wæhre
Publikováno v:
Health Psychology and Behavioral Medicine, Vol 10, Iss 1, Pp 579-595 (2022)
Background Differences of sex development (DSD) are a group of congenital conditions that involve variations in sex chromosomes, genes, external and/or internal genitalia, hormones, and secondary sex characteristics. The present study sought to highl
Externí odkaz:
https://doaj.org/article/fa9493a1ea224d5abdf13eace26fc338
Publikováno v:
Health and Quality of Life Outcomes, Vol 16, Iss 1, Pp 1-10 (2018)
Abstract Background LCS1 (Lymphedema Cholestasis Syndrome 1/Aagenaes syndrome) is a rare, hereditary disorder, where the highest known prevalence is in Norway. The disorder is characterized by lymphedema and periodic cholestasis from birth or the neo
Externí odkaz:
https://doaj.org/article/e73952fdac5d41068614ef208546d0e9
Publikováno v:
Journal of Genetic Counseling. 31:1349-1362
Research provides a compelling list of reasons why offspring should be included in honest conversations about disease when the disease affects their caregivers. Despite this, we lack in-depth knowledge about how families affected by the severe and co
Autor:
Deniz Zelihić, Kristin J Billaud Feragen, Are Hugo Pripp, Tine Nordgreen, Heidi Williamson, Johanna Kling
Publikováno v:
JMIR Formative Research. 7:e35669
Background Adolescents with a condition affecting their appearance that results in a visible difference can be at risk of psychosocial distress and impaired adjustment. Evidence for the effectiveness of existing interventions in improving psychosocia