Výsledky vyhledávání - "Kristen L, McCausland"

Akademický článek

Mental health impact on healthcare workers due to the COVID-19 pandemic: a U.S. cross-sectional survey study

Autor: Joshua Biber, Bethany Ranes, Shanieek Lawrence, Vishal Malpani, Trong Tony Trinh, Andrew Cyders, Steven English, Charles L. Staub, Kristen L. McCausland, Mark Kosinski, Nishtha Baranwal, Daniel Berg, Rodica Pop

Publikováno v: Journal of Patient-Reported Outcomes, Vol 6, Iss 1, Pp 1-14 (2022)

Abstract Background The COVID-19 pandemic has impacted the mental health and well-being of health care workers (HCWs). This study examined mental health outcomes and COVID-related stress impacts among a diverse sample of ambulatory HCWs, including cl

Externí odkaz: https://doaj.org/article/6aaaf79df5d9485d8ac4f2dd8ffb23b3

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Akademický článek

Content validation of the SF-36v2® health survey with AL amyloidosis patients

Autor: Michelle K. White, Martha S. Bayliss, Spencer D. Guthrie, Kimberly P. Raymond, Avery A. Rizio, Kristen L. McCausland

Publikováno v: Journal of Patient-Reported Outcomes, Vol 1, Iss 1, Pp 1-10 (2017)

Abstract Background This study examined the content validity of the SF-36v2® Health Survey (SF-36v2) in patients with AL amyloidosis using qualitative interviews with physicians and patients. The study included three distinct phases of qualitative r

Externí odkaz: https://doaj.org/article/918b4a2194774dea8dcdabb18dfa6bb6

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Work Outcomes Among Patients with Light Chain (AL) Amyloidosis: Findings from Three Patient Cohorts

Autor: Avery A Rizio, Kristen L McCausland, Michelle K White, Tiffany P Quock

Publikováno v: Patient Related Outcome Measures

Avery A Rizio,1 Kristen L McCausland,1 Michelle K White,1 Tiffany P Quock2 1QualityMetric Incorporated, LLC, Johnston, RI, USA; 2Prothena Biosciences Inc, South San Francisco, CA, USACorrespondence: Avery A RizioQualityMetric Incorporated, LLC, 1301

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e8720a11ba00dd20e6acee4ada036820
https://doi.org/10.2147/prom.s337676

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Early Data on Long-term Impact of Inotersen on Quality-of-Life in Patients with Hereditary Transthyretin Amyloidosis Polyneuropathy: Open-Label Extension of NEURO-TTR

Autor: Duncan Brown, Montserrat Vera-Llonch, Márcia Waddington-Cruz, Andrew Lovley, Laura Obici, Aaron Yarlas, Chafic Karam, Sami Khella, Kristen L. McCausland, Isabel Conceição

Publikováno v: Neurology and Therapy

Introduction Patients with hereditary transthyretin amyloidosis associated with polyneuropathy (ATTRv-PN) experience deterioration in health-related quality of life (HRQOL) as the disease progresses. Findings from the randomized placebo-controlled ph

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::687cdd2d6500bebd96d78c8492196b6c
https://doi.org/10.1007/s40120-021-00268-x

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The relationship between frequency and severity of vaso-occlusive crises and health-related quality of life and work productivity in adults with sickle cell disease

Autor: Savita Nandal, Xiaochen Lin, Jincy Paulose, Kristen L. McCausland, Rashid Halloway, Michelle K. White, Avery A. Rizio, Lanetta Bronté-Hall, Menaka Bhor

Publikováno v: Quality of Life Research

Purpose Patients with sickle cell disease (SCD) may experience sickle cell-related pain crises, also referred to as vaso-occlusive crises (VOCs), which are a substantial cause of morbidity and mortality. The study explored how VOC frequency and sever

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d20989d8f548eabefb84c5b476121196
https://doi.org/10.1007/s11136-019-02412-5

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Mental health impact on healthcare workers due to the COVID-19 pandemic: a U.S. cross-sectional survey study

Publikováno v: Journal of patient-reported outcomes. 6(1)

Background The COVID-19 pandemic has impacted the mental health and well-being of health care workers (HCWs). This study examined mental health outcomes and COVID-related stress impacts among a diverse sample of ambulatory HCWs, including clinicians

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e87aadd3d8078756c3f28e0d4b63f315
https://pubmed.ncbi.nlm.nih.gov/35696006

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Associations between Health-Related Quality of Life and Self-Reported Emergency Room Department Visits and Inpatient Hospitalizations: Insights from a Secondary Data Analysis of Patients with Light-Chain (AL) Amyloidosis

Autor: Avery A. Rizio, Kristen L. McCausland, Martha S. Bayliss, Michelle K. White, Tiffany P. Quock

Publikováno v: PharmacoEconomics Open

Introduction Light-chain (AL) amyloidosis is a rare, progressive, and typically fatal disease. Health-related quality of life (HRQoL) has been shown to be a significant prognostic factor associated with clinical outcomes such as survival and response

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c43f2bacf048c0c90363356a348a7239
https://doi.org/10.1007/s41669-019-0122-7

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Frequency of Vaso-Occlusive Crises Is Associated with Health-Related Quality of Life in Pediatric Patients with Sickle Cell Disease: US Cross-Sectional Surveys of Adolescents and Caregivers

Autor: Kristen L. McCausland, Soyon Lee, Avery A. Rizio, Şerban R. Iorga, Andrew D. Campbell, Glorian P. Yen, Jincy Paulose

Publikováno v: Blood. 138:490-490

Introduction: Pediatric patients with sickle cell disease (SCD) experience considerable disease-related burden. SCD-related morbidity is characterized by vaso-occlusive crises (VOCs), which are acutely painful events that may cause chronic and potent

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::07a0a5e16089b4b47c12bff4d29c502e
https://doi.org/10.1182/blood-2021-144937

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