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Involvement of mental health professionals in the treatment of tuberous sclerosis complex–associated neuropsychiatric disorders (TAND): results of a multinational European electronic survey

Autor: Waltereit, Robert, Beaure d’Augères, Guillaume, Jancic, Jasna, Kingswood, John Chris, Koleva, Maya, Marques, Ruben, Villanueva, Vicente, Auvin, Stéphane

Publikováno v: Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-14 (2021)
ORPHANET JOURNAL OF RARE DISEASES
r-IIS La Fe. Repositorio Institucional de Producción Científica del Instituto de Investigación Sanitaria La Fe
instname
Orphanet Journal of Rare Diseases

Background Tuberous sclerosis complex (TSC) is a rare, genetic, multisystem disorder characterized by the growth of hamartomas in several organs, including the brain, kidneys, heart, eyes, and lungs. Even though over 90% of patients will have some fo

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid_dedup__::7ae22e4d44bf7157ceb49dc202ced946
https://doaj.org/article/54f55df7ba9c4323bef10d8e08c2ec7d

Additional file 4 of Involvement of mental health professionals in the treatment of tuberous sclerosis complex���associated neuropsychiatric disorders (TAND): results of a multinational European electronic survey

Autor: Waltereit, Robert, Beaure d���Aug��res, Guillaume, Jancic, Jasna, Kingswood, John Chris, Koleva, Maya, Marques, Ruben, Villanueva, Vicente, Auvin, St��phane

Additional file 4. Table S4: Survey questionnaire for psychiatrists or child psychiatrists.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5ad639becefeb467fa7e286b80de39fd

Additional file 2 of Involvement of mental health professionals in the treatment of tuberous sclerosis complex���associated neuropsychiatric disorders (TAND): results of a multinational European electronic survey

Autor: Waltereit, Robert, Beaure d���Aug��res, Guillaume, Jancic, Jasna, Kingswood, John Chris, Koleva, Maya, Marques, Ruben, Villanueva, Vicente, Auvin, St��phane

Additional file 2. Table S2: Survey questionnaire for TSC specialists.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::49804542cda6284ad7b2915439b09c21

Additional file 8 of Involvement of mental health professionals in the treatment of tuberous sclerosis complex���associated neuropsychiatric disorders (TAND): results of a multinational European electronic survey

Autor: Waltereit, Robert, Beaure d���Aug��res, Guillaume, Jancic, Jasna, Kingswood, John Chris, Koleva, Maya, Marques, Ruben, Villanueva, Vicente, Auvin, St��phane

Additional file 8. Fig. S3: Usual investigations done by HCPs with limited experience with TSC.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::80357a4d3a58c18bf9942798bb08317d