MyHospitalVoice – a digital tool co-created with children and adolescents that captures patient-reported experience measures: a study protocol

Autor: Jane Hybschmann, Jette Led Sørensen, Jakob Thestrup, Helle Pappot, Kirsten Arntz Boisen, Thomas Leth Frandsen, Line Klingen Gjærde

Publikováno v: Research Involvement and Engagement, Vol 10, Iss 1, Pp 1-9 (2024)

Abstract Background Children and adolescents have the right to participate in decisions concerning their health and express their views, also regarding hospital experiences. Patient-reported experience measures (PREMs) are valuable tools for systemat

Externí odkaz: https://doaj.org/article/2ff2beabb8d44d6785ba1e2d7667029b

Development of a complex intervention to support parents of adolescents with chronic illness transferring from pediatrics to adult care (ParTNerSTEPs)

Autor: Ena Lindhart Thomsen, Bente Appel Esbensen, Signe Hanghøj, Helena Hansson, Kirsten Arntz Boisen

Publikováno v: BMC Health Services Research, Vol 22, Iss 1, Pp 1-11 (2022)

Abstract Background Transition from pediatric to adult care for adolescents with chronic illness is associated with outpatient non-attendance and low treatment adherence in adolescents, and with anxiety and concerns among parents. Recent studies have

Externí odkaz: https://doaj.org/article/a719621fa3ab45b69dcea06347f60d96

Experiences of Social Isolation During the COVID-19 Lockdown Among Adolescents and Young Adult Cancer Patients and Survivors

Autor: Maiken Hjerming, Gry Assam Taarnhøj, Kirsten A Boisen, Nina Pappot, Helle Pappot, Signe Hanghøj

Publikováno v: Journal of Adolescent and Young Adult Oncology. 10:142-147

Purpose: COVID-19 is a worldwide pandemic affecting populations by massive lockdowns, including strict precautions and quarantines. Research on the lives of adolescents and young adults (AYAs) with cancer during the COVID-19 pandemic is highly releva

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8682722f3ff27fdd2e2610c2b6347214
https://doi.org/10.1089/jayao.2020.0202

A Photo Elicitation Study on Chronically Ill Adolescents’ Identity Constructions During Transition

Autor: Signe Hanghøj, Kirsten A. Boisen, Kjeld Schmiegelow, Bibi Hølge-Hazelton

Publikováno v: Global Qualitative Nursing Research, Vol 3 (2016)

Adolescence is an important phase of life with increasing independence and identity development, and a vulnerable period of life for chronically ill adolescents with a high occurrence of insufficient treatment adherence. We conducted four photo elici

Externí odkaz: https://doaj.org/article/5b77204f912a4cde9286723b1678973d

A Qualitative Evaluation of the Youth-Check Program: A Psychosocial Intervention Aimed at Young People with Cancer

Autor: Signe Hanghøj, Kirsten A. Boisen, Margrethe Fogh Nielsen, Helle Pappot, Lisa Lyngsie Hjalgrim

Publikováno v: Hanghøj, S, Boisen, K A, Nielsen, M F, Pappot, H & Hjalgrim, L L 2022, ' A Qualitative Evaluation of the Youth-Check Program : A Psychosocial Intervention Aimed at Young People with Cancer ', Seminars in Oncology Nursing, vol. 38, no. 4, 151268 . https://doi.org/10.1016/j.soncn.2022.151268

Objectives: In many countries, there is a lack of structured psychosocial health interventions to support young people with cancer. Thus, we developed the nurse-led intervention the Youth-Check Program with the aim of supporting young people with can

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::fa0addcc637f46d89adc86b1c287c42f
https://pubmed.ncbi.nlm.nih.gov/35527090