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Association of hydroxyurea adherence with transcranial Doppler screenings in children with sickle cell disease.

Autor: Knight LMJ; Duke University School of Nursing, Durham, North Carolina, USA., Tanabe P; Duke University School of Nursing and Medicine, Durham, North Carolina, USA., Blewer AL; Duke University School of Nursing, Durham, North Carolina, USA.; Department of Family Medicine, Community Health, and Population Health Sciences, Duke University School of Medicine, Durham, North Carolina, USA., Goodrich J; Department of Psychiatry & Behavioral Sciences, Duke University School of Medicine, Durham, North Carolina, USA., King AA; Departments of Pediatrics, Hematology and Oncology, Washington University School of Medicine, St. Louis, Missouri, USA., Reuter-Rice K; Duke University School of Nursing, Durham, North Carolina, USA.; Departments of Pediatrics and Neurosurgery, Duke University School of Medicine, Durham, North Carolina, USA., Crego N; Duke University School of Nursing, Durham, North Carolina, USA.

Publikováno v: Pediatric blood & cancer [Pediatr Blood Cancer] 2024 Jul; Vol. 71 (7), pp. e31017. Date of Electronic Publication: 2024 May 05.

"I was very scared when I found out my son had sickle cell": Caregiver knowledge and attitudes toward early intervention for young children with sickle cell disease: Implications for policy and practice from a multi-site study.

Autor: Hoyt CR; Washington University School of Medicine, Program in Occupational Therapy, St. Louis, Missouri, USA.; Washington University School of Medicine, Department of Pediatrics, St. Louis, Missouri, USA.; Washington University School of Medicine, Department of Neurology, St. Louis, Missouri, USA., MacArthur E; St. Jude Children's Research Hospital, Department of Psychology and Biobehavioral Sciences, Memphis, Tennessee, USA., Leaver H; Washington University School of Medicine, Program in Occupational Therapy, St. Louis, Missouri, USA., Wilson AL; Washington University School of Medicine, Program in Occupational Therapy, St. Louis, Missouri, USA., Davis K; Washington University School of Medicine, Program in Occupational Therapy, St. Louis, Missouri, USA., Harris KM; Washington University School of Medicine, Program in Occupational Therapy, St. Louis, Missouri, USA.; Washington University School of Medicine, Department of Pediatrics, St. Louis, Missouri, USA.; Washington University School of Medicine, Department of Education, St. Louis, Missouri, USA., Damiano R; St. Jude Children's Research Hospital, Department of Psychology and Biobehavioral Sciences, Memphis, Tennessee, USA., Moore H; Washington University School of Medicine, Program in Occupational Therapy, St. Louis, Missouri, USA., Housten AJ; Washington University School of Medicine, Program in Occupational Therapy, St. Louis, Missouri, USA.; Washington University School of Medicine, Division of Public Health Sciences, St. Louis, Missouri, USA., Britts R; Sickle Cell Association, St. Louis, Missouri, USA., Hankins JS; St. Jude Children's Research Hospital, Department of Global Pediatric Medicine, Memphis, Tennessee, USA., King AA; Washington University School of Medicine, Program in Occupational Therapy, St. Louis, Missouri, USA.; Washington University School of Medicine, Department of Pediatrics, St. Louis, Missouri, USA.; Washington University School of Medicine, Department of Education, St. Louis, Missouri, USA.; Washington University School of Medicine, Division of Public Health Sciences, St. Louis, Missouri, USA.; Washington University School of Medicine, Department of Medicine, St. Louis, Missouri, USA., Heitzer AM; St. Jude Children's Research Hospital, Department of Psychology and Biobehavioral Sciences, Memphis, Tennessee, USA.

Publikováno v: Pediatric blood & cancer [Pediatr Blood Cancer] 2024 Nov; Vol. 71 (11), pp. e31308. Date of Electronic Publication: 2024 Sep 03.

Symptom Screening Linked to Care Pathways for Pediatric Patients With Cancer: A Randomized Clinical Trial.

Autor: Dupuis LL; Program in Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada.; Department of Pharmacy, The Hospital for Sick Children and Leslie Dan Faculty of Pharmacy, University of Toronto, Toronto, Ontario, Canada., Vettese E; Program in Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada., Grimes AC; Pediatric Hematology Oncology, University of Texas Health Science Center at San Antonio, San Antonio., Beauchemin MP; Columbia University School of Nursing/Herbert Irving Cancer Center, New York, New York., Klesges LM; Division of Public Health Sciences, Washington University School of Medicine, St Louis, Missouri., Baggott C; Division of Pediatric Hematology, Oncology, Stem Cell Transplant and Regenerative Medicine, Stanford University, Palo Alto, California., Demedis J; Center for Cancer and Blood Disorders, Children's Hospital Colorado, Aurora., Aftandilian C; Division of Pediatric Hematology, Oncology, Stem Cell Transplant and Regenerative Medicine, Stanford University, Palo Alto, California., Freyer DR; Cancer and Blood Disease Institute, Children's Hospital Los Angeles, Los Angeles, California., Crellin-Parsons N; Program in Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada., Orgel E; Cancer and Blood Disease Institute, Children's Hospital Los Angeles, Los Angeles, California., Dickens D; Department of Pediatrics, University of Iowa Stead Family Children's Hospital, Iowa City., Kelly KM; Department of Pediatrics, Roswell Park Comprehensive Cancer Center, University at Buffalo Jacobs School of Medicine and Biomedical Sciences, Buffalo, New York., Kyono W; Kapi'olani Medical Center for Women & Children, Honolulu, Hawai'i., Walsh A; Center for Cancer and Blood Disorders, Phoenix Children's Hospital, Thomas Campus, Phoenix, Arizona., Sherani F; Driscoll Children's Hospital, Cancer and Blood Disorders Center and Texas A&M University, Corpus Christi., Cannone D; Children's Hospital of Richmond at VCU, Richmond, Virginia., Orsey AD; Center for Cancer and Blood Disorders, Connecticut Children's Medical Center, Hartford.; Department of Pediatrics, University of Connecticut School of Medicine, Farmington., King AA; Division of Public Health Sciences, Washington University School of Medicine, St Louis, Missouri.; Washington University School of Medicine, St Louis, Missouri., Yu L; Louisiana State University Health Sciences Center/Children's Hospital, New Orleans., Woods-Swafford W; Blank Cancer and Blood Disorders Center, Blank Children's Hospital- UnityPoint Health, Des Moines, Iowa., Bradfield SM; Nemours Children's Health, Jacksonville, Jacksonville, Florida., Roth ME; Department of Pediatrics, The University of Texas MD Anderson Cancer Center, Houston., Esbenshade AJ; Department of Pediatrics, Vanderbilt University Medical Center, Nashville, Tennessee., Caywood EH; Nemours Children's Hospital, Delaware, Lisa Dean Moseley Foundation Institute for Cancer and Blood Disorders, Wilmington, Delaware., Agarwal V; Nemours Children's Hospital, Florida, Orlando, Florida., Nagasubramanian R; Nemours Children's Hospital, Florida, Orlando, Florida., Tomlinson GA; Department of Medicine, Toronto General Hospital, Toronto, Ontario, Canada., Sung L; Program in Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada.; Division of Haematology/Oncology, The Hospital for Sick Children, Toronto, Ontario, Canada.

Publikováno v: JAMA [JAMA] 2024 Nov 13. Date of Electronic Publication: 2024 Nov 13.

Hydroxyurea to prevent brain injury in children with sickle cell disease (HU Prevent)-A randomized, placebo-controlled phase II feasibility/pilot study.

Autor: Casella JF; Department of Pediatrics, Division of Hematology, The Johns Hopkins University School of Medicine, Baltimore, Maryland, USA., Furstenau DK; Department of Pediatrics, Division of Hematology, The Johns Hopkins University School of Medicine, Baltimore, Maryland, USA., Adams RJ; Department of Neurology, Medical University of South Carolina, Charleston, South Carolina, USA., Brambilla DJ; Research Triangle Institute (RTI) International, Rockville, Maryland, USA., Lebensburger JD; Division of Pediatric Hematology-Oncology, Department of Pediatrics, University of Alabama at Birmingham, Birmingham, Alabama, USA., Fehr JJ; Department of Anesthesiology, Perioperative and Pain Medicine, Stanford University School of Medicine, Stanford, California, USA., Jordan LC; Department of Pediatrics, Division of Pediatric Neurology, Vanderbilt University Medical Center, Nashville, Tennessee, USA., King AA; Division of Pediatric Hematology/Oncology, Washington University and St. Louis Children's Hospital, St. Louis, Missouri, USA., Ichord RN; Department of Neurology and Pediatrics, Children's Hospital of Philadelphia, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA., McKinstry RC; Mallinckrodt Institute of Radiology, Washington University School of Medicine, St. Louis, Missouri, USA., Kraut MA; Department of Radiology and Radiological Science, The Johns Hopkins University School of Medicine, Baltimore, Maryland, USA., Shaw DW; Department of Radiology, Seattle Children's Hospital, Seattle, Washington, USA., White DA; Department of Psychological Brain Sciences, Washington University in St. Louis, St. Louis, Missouri, USA., Whyte-Stewart DA; Division of Nonmalignant Hematology, Food and Drug Administration (FDA), Silver Spring, Maryland, USA., Avadhani R; Department of Neurology and Neurosurgery, BIOS Clinical Trials Coordinating Center, The Johns Hopkins University School of Medicine, Baltimore, Maryland, USA., Barron-Casella EA; Department of Pediatrics, Division of Hematology, The Johns Hopkins University School of Medicine, Baltimore, Maryland, USA., Cannon AD; Department of Neuropsychology, Kennedy Krieger Institute, Baltimore, Maryland, USA., Eaton CK; Biostatistics, Epidemiology, and Data Management Core, Johns Hopkins Bayview Medical Center, Baltimore, Maryland, USA., Riekert KA; Department of Medicine, Division of Pulmonary and Critical Care Medicine, The Johns Hopkins University School of Medicine, Baltimore, Maryland, USA., Shay JE; Department of Anesthesiology and Critical Care Medicine, The Johns Hopkins University School of Medicine, Baltimore, Maryland, USA., Smith-Seidel CA; Department of Psychology, Martinsburg Veterans Affairs Medical Center (VAMC), Martinsburg, West Virginia, USA., Weiss DC; Department of Pediatrics, Division of Hematology, The Johns Hopkins University School of Medicine, Baltimore, Maryland, USA., Ostapkovich ND; Department of Neurology and Neurosurgery, BIOS Clinical Trials Coordinating Center, The Johns Hopkins University School of Medicine, Baltimore, Maryland, USA., Vermillion K; Vanderbilt Institute for Clinical and Translational Research (VICTR), Vanderbilt University Medical Center, Nashville, Tennessee, USA., Treine KE; Department of Neurology and Neurosurgery, BIOS Clinical Trials Coordinating Center, The Johns Hopkins University School of Medicine, Baltimore, Maryland, USA., Kingsbury CE; Department of Pediatrics, Division of Hematology, The Johns Hopkins University School of Medicine, Baltimore, Maryland, USA., Strouse JJ; Department of Medicine and Pediatrics, Duke University School of Medicine, Durham, North Carolina, USA., Thompson RE; Department of Biostatistics, The Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA., Hanley DF; Department of Neurology and Neurosurgery, BIOS Clinical Trials Coordinating Center, The Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.

Publikováno v: American journal of hematology [Am J Hematol] 2024 Oct; Vol. 99 (10), pp. 1906-1916. Date of Electronic Publication: 2024 Jul 02.