Patient Experience of Systemic Sclerosis-Related Calcinosis: An International Study Informing Clinical Trials, Practice, and the Development of the Mawdsley Calcinosis Questionnaire.

Autor: Saketkoo LA; New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center, New Orleans, LA, USA; University Medical Center-Comprehensive Pulmonary Hypertension Center and Interstitial Lung Disease Clinic Programs, New Orleans, LA, USA; Section of Pulmonary Medicine, Louisiana State University School of Medicine, New Orleans, LA, USA; Tulane University School of Medicine, New Orleans, LA, USA. Electronic address: lsaketk@tulane.edu., Gordon JK; Department of Rheumatology, Hospital for Special Surgery, New York, NY, USA., Fligelstone K; Scleroderma & Raynaud Society, UK (SRUK); Federation of European Scleroderma Associations, UK., Mawdsley A; Raynaud's & Scleroderma Association-Care and Support, London, UK., Chaudhry HA; New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center, New Orleans, LA, USA; Tulane University School of Medicine, New Orleans, LA, USA., Valenzuela A; Department of Rheumatology and Clinical Immunology, Pontificia Universidad Católica de Chile, Santiago, Chile., Christensen A; Doctors Hospital, Renaissance, TX, USA., Khalique SM; Department of Rheumatology, Virginia Tech Carilion Clinic School of Medicine, Roanoke, VA, USA., Jensen K; New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center, New Orleans, LA, USA; Tulane University School of Medicine, New Orleans, LA, USA; University of Colorado School of Medicine, Denver, CO, USA., Weinmann SC; Department of Medicine, Division of Rheumatology and Immunology, Duke University Hospital, Durham, NC, USA., Busman E; Healthcare Patient Advocate, Atlanta, GA, USA., Chung L; Department of Medicine, Division of Immunology and Rheumatology, Stanford University School of Medicine and Palo Alto VA Healthcare System, Palo Alto, CA, USA; Department of Dermatology, Division of Immunology and Rheumatology, Stanford University School of Medicine and Palo Alto VA Healthcare System, Palo Alto, CA, USA., Hsu VM; RWJ-Scleroderma Program, Rutgers Robert Wood Johnson Medical School, New Brunswick, NJ, USA., Russell AM; Respiratory Institute, University of Exeter, Exeter, UK; Respiratory Medicine, Royal Devon University Healthcare NHS Foundation Trust, UK., Steen VD; Division of Rheumatology, Department of Medicine, Georgetown University, Washington, DC, USA.

Publikováno v: Rheumatic diseases clinics of North America [Rheum Dis Clin North Am] 2023 May; Vol. 49 (2), pp. 463-481.