Zobrazeno 1 - 10
of 363
pro vyhledávání: '"Khair Kate"'
Autor:
O’Mahony Brian, Fletcher Simon, Baarslag Manuel, Khair Kate, Breederveld Daan, Jansen Nathalie, Pembroke Luke, Pinachyan Karen, Sivasubramaniyam Sujan
Publikováno v:
The Journal of Haemophilia Practice, Vol 11, Iss 1, Pp 47-57 (2024)
Gene therapy presents a potentially transformational approach to haemophilia management. The patient journey for gene therapy is unlike that for other haemophilia treatments, and its one-time, irreversible nature has led to broad agreement that infor
Externí odkaz:
https://doaj.org/article/b4272df270e046fc8cf8f06583c6b431
Autor:
Benson Gary, Curry Nicola, Fletcher Simon, Gregory Will, Harrison Cathy, Laffan Mike, Lowe Gillian, Khair Kate, Kirk Susan, McLaughlin Paul, Percy Charles, Player Denise, Whitaker Sarah
Publikováno v:
The Journal of Haemophilia Practice, Vol 11, Iss 1, Pp 38-46 (2024)
Access to treatment and healthcare services for people with haemophilia in the United Kingdom (UK) and Republic of Ireland ranks highly by international standards for contemporary haemophilia management. Collaborate & Address Treatment Challenges in
Externí odkaz:
https://doaj.org/article/83ba2b2943a74128b6928597a0c6313d
Autor:
Khair Kate, Thykjaer Hanne, Barazani-Brutman Tami, Bellm Kelly, Benjamin Christopher, Wakefield Cindy, Williams Nicola, Wongwerawattanakoon Pakawan, Zhong Huiqun, Mulders Greta
Publikováno v:
The Journal of Haemophilia Practice, Vol 10, Iss 1, Pp 128-137 (2023)
For retention in clinical trials of investigational medical products (CTIMPS), the strategy and tactics to keep enrolled participants from discontinuing participation (dropouts) are important. Haemophilia trials often have extended follow-up and requ
Externí odkaz:
https://doaj.org/article/70e19c425cee4dd59e189f211f417f9b
Publikováno v:
The Journal of Haemophilia Practice, Vol 10, Iss 1, Pp 62-67 (2023)
Shared decision-making (SDM) is an important part of patient-centred care in which healthcare professionals (HCPs) and patients/caregivers jointly reach care decisions through a two-way exchange and synthesis of information based on clinical evidence
Externí odkaz:
https://doaj.org/article/815e38f4166b48df9664139deedab440
Autor:
Noone Declan, Astermark Jan, O'Mahony Brian, Peyvandi Flora, Khair Kate, Pembroke Luke, Jenner Kathryn
Publikováno v:
The Journal of Haemophilia Practice, Vol 9, Iss 1, Pp 156-166 (2023)
As gene therapy for haemophilia is now licensed in Europe, and the hub and spoke approach is widely promoted for its delivery and follow-up, it is essential that people with haemophilia (PwH) who are eligible and opt to have this treatment are enable
Externí odkaz:
https://doaj.org/article/e2e005e6698d451397fe768b73cd3d4c
Autor:
Pollard Debra, Khair Kate
Publikováno v:
The Journal of Haemophilia Practice, Vol 9, Iss 1, Pp 137-142 (2022)
Many of the experiences described by women 20 years ago remain prevalent today, and healthcare provision needs to change to offer better treatment and support to women in the bleeding disorder community. These were the key findings of the recently pu
Externí odkaz:
https://doaj.org/article/304cfdd42d0b410b8d66ec4dd173af83
Publikováno v:
The Journal of Haemophilia Practice, Vol 8, Iss 1, Pp 145-154 (2022)
Pain is recognised as a subjective phenomenon, often defined as ‘whatever the experiencing person says it is, existing whenever the experiencing person says it does’. Pain is a critical aspect of life for many people with haemophilia (PWH) but is
Externí odkaz:
https://doaj.org/article/82d5642dec2e4023948cbd51fa21ea32
Autor:
Khair Kate
Publikováno v:
The Journal of Haemophilia Practice, Vol 10, Iss 1, Pp 28-29 (2023)
Externí odkaz:
https://doaj.org/article/863212e3b9f54e7db9f2000ecc61a6cc
Autor:
Chaplin Steve, Khair Kate
Publikováno v:
The Journal of Haemophilia Practice, Vol 8, Iss 1, Pp 128-132 (2021)
Women who have the gene variant for haemophilia are labelled solely as ‘carriers’ unless they have a factor VIII activity of ≤40%. This term, which describes an individual who can pass on a disorder but are themselves unaffected, reflects a leg
Externí odkaz:
https://doaj.org/article/a587c47f9b4646fc9bca1f6154f7d1ab
Publikováno v:
The Journal of Haemophilia Practice, Vol 7, Iss 1, Pp 143-149 (2020)
People with haemophilia (PwH) experience recurrent bleeds in weight-bearing joints. Optimal management for people with severe haemophilia involves prophylaxis with factor VIII or IX, which helps to reduce the risk of bleeds and joint damage. However,
Externí odkaz:
https://doaj.org/article/e41337ce53034955a7061c4ef288c8a7