The Cleft Collective: protocol for a longitudinal prospective cohort study

Autor: Sarah J Lewis, Karen Ho, Kerry Humphries, Yvonne Wren, Amy J V Davies, Jonathan R Sandy

Publikováno v: BMJ Open, Vol 14, Iss 7 (2024)

Introduction Cleft lip and/or palate (CL/P) affects 1 in 700 live births globally. Children born with CL/P and their families face various challenges throughout the child’s development. Extant research is often limited by small numbers and single-c

Externí odkaz: https://doaj.org/article/7ead4202f8ff48d992c71e40cb3a6769

Image data sharing for patients born with a cleft lip: A call for action to the UK cleft community

Autor: Matthew Fell, Sophie Butterworth, Kerry Humphries, David C G Sainsbury, Felicity Vidya Mehendale, Bruce Richard

Publikováno v: Journal of Plastic, Reconstructive & Aesthetic Surgery. 75:2831-2870

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c2fe2492b6e96bad2b30cbf1484cf5df
https://doi.org/10.1016/j.bjps.2022.06.082

Cleft lip/palate and educational attainment: cause, consequence or correlation? A Mendelian randomization study

Autor: Amy Davies, Yvonne Wren, Seth M. Weinberg, Sarah J Lewis, Neil M Davies, Karen M Ho, Elisabeth Mangold, Christina Dardani, Nandita Mukhopadhyay, Gemma C Sharp, Caroline L Relton, Kerstin U. Ludwig, George Davey Smith, Mary L. Marazita, Evangelia Stergiakouli, Laurence J. Howe, Jonathan R Sandy, Kerry Humphries

Publikováno v: Dardani, C, Howe, L J M S, Mukhopadhyay, N, Stergiakouli, E, Wren, Y E, Humphries, K J, Davies, A J V, Ho, K M, Weinberg, S, Marazita, M, Mangold, E, Ludwig, K, Relton, C L, Davey Smith, G, Lewis, S J, Sandy, J R, Davies, N M & Sharp, G C 2020, ' Cleft lip/palate and educational attainment : cause, consequence, or correlation? A Mendelian randomization study ', International Journal of Epidemiology, vol. n/a, dyaa047 . https://doi.org/10.1093/ije/dyaa047
International Journal of Epidemiology

Background Previous studies have found that children born with a non-syndromic orofacial cleft have lower-than-average educational attainment. Differences could be due to a genetic predisposition to low intelligence and academic performance, factors

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e3d9ded12c0bb5fb0c58859e73840439
https://doi.org/10.1093/ije/dyaa047

Prevalence and Factors Associated with Behavioural Problems in 5-year-old Children Born with Cleft Lip and/or Palate from the Cleft Collective

Autor: Amy Davies, Rachel Blakey, Gemma C Sharp, Evie Stergiakouli, Yvonne Wren, Sarah J Lewis, Jonathan R Sandy, Samantha Berman, Kerry Humphries

ObjectivesWe determined the prevalence of behavioural problems in 5-year-old children born with Cleft Lip and/or Palate (CL/P) and compared it to the prevalence in general population samples. We also identified risk factors for behavioural problems i

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::7404d9239098b5ab786b7da4b4ca52c1
https://doi.org/10.1101/2021.08.04.21261594

Cleft lip and palate:Care configuration, national registration, and research strategies

Autor: Jonathan R Sandy, Kerry Humphries, Tony Ireland, Amy Davies, Yvonne Wren

Publikováno v: Sandy, J, Davies, A, Humphries, K, Ireland, T & Wren, Y 2020, ' Cleft lip and palate : Care configuration, national registration, and research strategies ', Journal of the World federation of orthodontists, vol. 9, no. 3S, pp. S40-S44 . https://doi.org/10.1016/j.ejwf.2020.09.003
Journal of the World Federation of Orthodontists

A child born with a cleft lip and palate will face 20 years or more of hospital care and surgery. This is a global problem with approximately 10 million people affected worldwide. Various models of care exist around the condition, and the best config

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b23ba0723a5dbeadc74d66b71e1375c2
https://hdl.handle.net/1983/aaa9ef39-c564-49d2-9ddb-5469c5883e70