The Development, Deployment, and Evaluation of the CLEFT-Q Computerized Adaptive Test: A Multimethods Approach Contributing to Personalized, Person-Centered Health Assessments in Plastic Surgery

Autor: Conrad Harrison, Inge Apon, Kenny Ardouin, Chris Sidey-Gibbons, Anne Klassen, Stefan Cano, Karen Wong Riff, Andrea Pusic, Sarah Versnel, Maarten Koudstaal, Alexander C Allori, Carolyn Rogers-Vizena, Marc C Swan, Dominic Furniss, Jeremy Rodrigues

Publikováno v: Journal of Medical Internet Research, Vol 25, p e41870 (2023)

BackgroundRoutine use of patient-reported outcome measures (PROMs) and computerized adaptive tests (CATs) may improve care in a range of surgical conditions. However, most available CATs are neither condition-specific nor coproduced with patients and

Externí odkaz: https://doaj.org/article/4627ce5966804676afdefc052be49068

The Development, Deployment, and Evaluation of the CLEFT-Q Computerized Adaptive Test: A Multimethods Approach Contributing to Personalized, Person-Centered Health Assessments in Plastic Surgery (Preprint)

Autor: Conrad Harrison, Inge Apon, Kenny Ardouin, Chris Sidey-Gibbons, Anne Klassen, Stefan Cano, Karen Wong Riff, Andrea Pusic, Sarah Versnel, Maarten Koudstaal, Alexander C Allori, Carolyn Rogers-Vizena, Marc C Swan, Dominic Furniss, Jeremy Rodrigues

BACKGROUND Routine use of patient-reported outcome measures (PROMs) and computerized adaptive tests (CATs) may improve care in a range of surgical conditions. However, most available CATs are neither condition-specific nor coproduced with patients an

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::754f2bf18a393510fa243b05ca023db0
https://doi.org/10.2196/preprints.41870

Long-term treatment outcomes from the perspective of a patient with unilateral cleft lip and palate

Autor: Peter Fowler, Kenny Ardouin, Jennifer Haworth, Leslie Snape

Publikováno v: Fowler, P, Ardouin, K, Haworth, J & Snape, L 2021, ' Long-term treatment outcomes from the perspective of a patient with unilateral cleft lip and palate ', BMJ Case Reports, vol. 14, no. 12, e246582 . https://doi.org/10.1136/bcr-2021-246582

The management of patients with orofacial cleft (OFC) often extends from diagnosis or birth well into adulthood and requires many different specialists within multidisciplinary teams (MDT). The aims of treatment are to restore form and function relat

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::dd53d422a11c18b0b7132996b8a4b0d6
https://research-information.bris.ac.uk/ws/files/320398436/BMJ_Case_report_UCLP_revised_submission_21112021.pdf

Expanding Support Services for Adults Born With Cleft Lip and/or Palate in the United Kingdom: An Exploratory Evaluation of the Cleft Lip and Palate Association Adult Services Programme

Autor: Kenny Ardouin, Nicola Marie Stock, Nicky Davis

Publikováno v: The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association. 59(4_suppl2)

Background: The largest group of people living with repaired cleft lip and/or palate (CL/P) are adults. Previous research has identified unmet treatment and psychosocial needs, yet few interventions exist. This article outlines 3 interventions develo

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::119300917a64bce345d3350e27a9aef3
https://pubmed.ncbi.nlm.nih.gov/34184577

Treatment Experiences in Adults Born With Cleft Lip and/or Palate: A Whole of Life Survey in the United Kingdom

Autor: Sandip Popat, Kenny Ardouin, Nicola Marie Stock, David Drake

Publikováno v: The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association. 58(7)

Objectives: Adults with cleft lip and/or palate (CL/P) may report dissatisfaction with aesthetic and/or functional outcomes and express desire for further treatment. Although medical intervention can improve quality of life, surgical procedures requi

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::80a4e8a23f2637f80f2732d0f16d786b
https://pubmed.ncbi.nlm.nih.gov/33138633