Zobrazeno 1 - 10
of 40
pro vyhledávání: '"Kelly Fryer-Edwards"'
Autor:
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh, Eric T Juengst, Jane Kaye, Laurence Kedes, Bartha Maria Knoppers, Trudo Lemmens, Eric M Meslin, Juli Murphy, Robert L Nussbaum, Margaret Otlowski, Daryl Pullman, Peter N Ray, Jeremy Sugarman, Michael Timmons
Publikováno v:
PLoS Biology, Vol 6, Iss 3, p e73 (2008)
Externí odkaz:
https://doaj.org/article/9609233ff3334738a7c7a3a28e9bb8c6
Autor:
J. Randall Curtis, Alison M. Bays, Erin K. Kross, Laura C. Feemster, Richard W. Arnold, James A. Tulsky, Ruth A. Engelberg, Barbara J Edlund, Anthony L. Back, Kim M. O’Connor, Sarah E. Shannon, Stewart C. Alexander, Phyllis Christianson, Lois Downey, Lynn F. Reinke, Kelly Fryer-Edwards, Ardith Z. Doorenbos, Dee W. Ford
Publikováno v:
Journal of Palliative Medicine. 17:159-166
Background: Communication with patients and families is an essential component of high-quality care in serious illness. Small-group skills training can result in new communication behaviors, but past studies have used facilitators with extensive expe
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::acb954d3d7184a55df96562aed2d6b85
https://doi.org/10.1089/jpm.2013.0318
https://doi.org/10.1089/jpm.2013.0318
Autor:
Daryl Pullman, Shane K. Green, Margaret Otlowski, Robert L. Nussbaum, Christina M. Diaz, Jane Kaye, Juli Murphy, Ursula Danilczyk, Kelly Fryer-Edwards, Eric T. Juengst, Jeremy Sugarman, Bartha Maria Knoppers, Michael Timmons, Amy L. McGuire, Laurence Kedes, Peter N. Ray, Marc A. Hodosh, Trudo Lemmens, Michael M. Burgess, Mildred K. Cho, Janet A. Buchanan, Timothy Caulfield, Eric M. Meslin
Publikováno v:
PLoS Biology, Vol 6, Iss 3, p e73 (2008)
PLoS Biology
PLoS Biology
Interest in whole-genome research has grown substantially over the past few months. This article explores the challenging ethics issues associated with this work.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::bff5c9f4a03667ba86d826b3041b439d
https://ora.ox.ac.uk/objects/uuid:0f503984-1b9e-49a4-aa75-ff0867a1630f
https://ora.ox.ac.uk/objects/uuid:0f503984-1b9e-49a4-aa75-ff0867a1630f
Publikováno v:
Journal of General Internal Medicine. 25:1009-1019
United States hospice organizations aim to provide quality, patient-centered end-of-life care to patients in the last 6 months of life, yet some of these organizations observe that some hospice-eligible patients who are referred to hospice do not ini
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::50eb1d0343777ccf648a760088e5b177
https://doi.org/10.1007/s11606-010-1423-9
https://doi.org/10.1007/s11606-010-1423-9
Publikováno v:
Human Genetics. 127:563-572
Despite calls for greater clarity and precision of population description, studies have documented persistent ambiguity in the use of race/ethnicity terms in genetic research. It is unclear why investigators tolerate such ambiguity, or what effect th
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a547fb7bebbde5d8d88460c1786c1259
https://doi.org/10.1007/s00439-010-0800-0
https://doi.org/10.1007/s00439-010-0800-0
Publikováno v:
Academic Medicine. 84:472-477
To discover ways that the biomedical research community can foster the public's trust essential to sustain the research enterprise, in 2005 the authors and their colleagues convened a group of national leaders from sectors outside of academic science
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4ef0f3a63873d9836a55f4fff9878442
https://doi.org/10.1097/acm.0b013e31819a8aa6
https://doi.org/10.1097/acm.0b013e31819a8aa6
Autor:
Kelly Fryer-Edwards, Penny Kyler, Susan Brown Trinidad, Wylie Burke, Michele A. Lloyd-Puryear, Anthony B. Crest
Publikováno v:
Public Health Genomics. 11:160-165
Background/Aims: This study was performed to identify primary care physicians’ (PCPs) attitudes toward genetic medicine and their perceived needs for education in this area. Methods: Semistructured telephone interviews with 24 PCPs in the northwest
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a328587185bb5d9e076502f6516f1492
https://doi.org/10.1159/000113878
https://doi.org/10.1159/000113878
Publikováno v:
Journal of General Internal Medicine. 22:1274-1279
A majority of end-of-life medical decisions are made by surrogate decision-makers who have varying degrees of preparation and comfort with their role. Having a seriously ill family member is stressful for surrogates. Moreover, most clinicians have ha
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::170507c3765703958c2bd1e4a4804832
https://doi.org/10.1007/s11606-007-0252-y
https://doi.org/10.1007/s11606-007-0252-y
Autor:
Kelly Fryer-Edwards, Cheryl Berg
Publikováno v:
Journal of Business Ethics. 77:17-31
Genetic testing is currently subject to little oversight, despite the significant ethical issues involved. Repeated recommendations for increased regulation of the genetic testing market have led to little progress in the policy arena. A 2005 Interne
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::b935209cbb96ca3c94a8581ba5a3f2e0
https://doi.org/10.1007/s10551-006-9298-8
https://doi.org/10.1007/s10551-006-9298-8
Publikováno v:
Journal of the American Geriatrics Society. 54:1688-1693
OBJECTIVES: To characterize how surrogates plan to make medical decisions for others. DESIGN: Descriptive study using semistructured qualitative interviews. SETTING: Surrogates were interviewed by telephone from their homes. PARTICIPANTS: Fifty exper
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::ffd9d1cb2bbd7181743274588c55fc90
https://doi.org/10.1111/j.1532-5415.2006.00911.x
https://doi.org/10.1111/j.1532-5415.2006.00911.x