Stakeholder Perspectives on the Meaningful Integration of Clinical Informatics Interventions Using Patient-Reported Outcomes in Healthcare

Autor: David Russell, Yashika Sharma, Andrew P. Ambrosy, Kelly Axsom, Janejira J. Chaiyasit, Margaret O. Cuomo, Christi Deaton, Anne J. Goldberg, Parag Goyal, Angel Guan, Fernanda C. G. Polubriaginof, Lucy McGurk, Alexander T. Sandhu, John A. Spertus, Meghan Reading Turchioe, David K. Vawdrey, Ruth Masterson Creber

Publikováno v: ACI Open, Vol 08, Iss 02, Pp e79-e88 (2024)

Background Patient-reported outcomes (PROs) capture where patients are on their disease trajectory and can identify changes in health status from their perspective.

Externí odkaz: https://doaj.org/article/532a655e65c549fc97086683161b3692

A Rare Presentation of Cardiomyopathy in Pregnancy

Autor: Elena Donald, MD, Jay Leb, MD, Martin Bialer, MD, PhD, Kelly Axsom, MD

Publikováno v: JACC: Case Reports, Vol 2, Iss 7, Pp 1066-1069 (2020)

Our patient presented in her third trimester of pregnancy with new onset of heart failure. A thorough workup in the initial postpartum period with detailed past medical history, advanced imaging modalities, and a multidisciplinary approach revealed a

Externí odkaz: https://doaj.org/article/2f89e76167504b079f707d01bf36baaf

Special Section on Patient Engagement in Informatics: A RE-AIM evaluation of a visualization-based electronic patient-reported outcomes system

Autor: Meghan, Reading Turchioe, Sabrina, Mangal, Parag, Goyal, Kelly, Axsom, Annie, Myers, Lisa, Grossman Liu, Jessie, Lee, Thomas, Campion, Ruth M Masterson, Creber

Publikováno v: Applied clinical informatics.

Healthcare systems are primarily collecting patient-reported outcomes (PROs) for research and clinical care using proprietary, institution- and disease-specific tools for remote assessment. The purpose of this study was to conduct a Reach Effectivene

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::c87a547a100007f07f93cc948460321b
https://pubmed.ncbi.nlm.nih.gov/36603838

Pragmatic Design of Randomized Clinical Trials for Heart Failure

Autor: Stephen J. Greene, Eric J. Velazquez, Kevin J. Anstrom, Eric L. Eisenstein, Shelly Sapp, Shelby Morgan, Tina Harding, Vandana Sachdev, Fassil Ketema, Dong-Yun Kim, Patrice Desvigne-Nickens, Bertram Pitt, Robert J. Mentz, Kirkwood Adams, Tammy Long, Kunal Bhatt, Brandon Walker, Tracy DeWald, Kim Biever, Kelly Axsom, Ariana Acosta, Sandhya Murthy, Angeline Camilo, Jonathan D. Rich, Leslie Martinez, Jeffrey M. Testani, Jennifer Tainsh, Bryan Smith, Amy Bennett, Justin Vader, Stephanie Stilinovic, Michael McCulloch, Iris Musso, Hal Skopicki, Indre Caikauskaite, Mitchell A. Psotka, Allen Freiler, Alain Heroux, Carol Kartje, Anuradha Lala-Trindade, Lovelyne Julien, Gerin Stevens, Keriann Leppla, Wilson Tang, Teresa Fonk, Yair Lev, Kathleen Fizgerald, Preethi William, John Stroster, Arthur Eberly, Celeste Workman, Stephen Gottlieb, Mary Bowers-Lash, Walter Herbert Haught, Cynthia Abath, Gillian Grafton, Kelsey Neaton, Joshua Larned, Mara-Li Ortiz, Lokesh Tejwani, Tara Villalta, Freny Mody, Svetlana Strugatsky, Selim Krim, Katasha Washington, Monique Robinson, Nadine Norton, Frank Smart, Emily Worsham, James Fang, Joe Goldstein, Stephanie Dunlap, Nancy Starnes, Alexander Adler, Virginia Theodorof, Adrian Bell, Aleksey Kondramashin, Dipanjan Banerjee, Michael Yee, Ernesto Ruiz-Duque, Cynthia Larew, Ahmad Mizyed, Kara Sawaya, Dennis Friedman, Shilpa Rele, John Rommel, Janet Burkhart, Justice Arhinful, Sam Atkinson, Parag Goyal, Nidha Samdani, Michael Hall, Connie Watson, Scott Hummel, Joanna Wells, Sanjay Shetty, Jackie White, Donald Haas, Colleen Marchand, Juan Vilaro, Alfaroug Osman, Tamas Alexy, Julie Dicken, Maya Guglin, Meghan Willig, Andrew Ferguson, Mark Peabody, John Herre, Brittany McMichael, John Clark, Nancy Britton, Andrew P. Ambrosy, Thida Tan, John Heitner, Marcella Meykler, Judith Meadows, Janet Halliday

Publikováno v: JACC: Heart Failure. 9:325-335

Randomized clinical trials are the foundation of evidence-based medicine and central to practice guidelines and patient care decisions. Nonetheless, randomized trials in heart failure (HF) populations have become increasingly difficult to conduct and

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::9c60544c3f97e82fb6e58b719b2b8231
https://doi.org/10.1016/j.jchf.2021.01.013

A Rare Presentation of Cardiomyopathy in Pregnancy

Autor: Jay Leb, Elena Donald, Martin Bialer, Kelly Axsom

Publikováno v: JACC: Case Reports, Vol 2, Iss 7, Pp 1066-1069 (2020)
JACC Case Reports

Our patient presented in her third trimester of pregnancy with new onset of heart failure. A thorough workup in the initial postpartum period with detailed past medical history, advanced imaging modalities, and a multidisciplinary approach revealed a

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::99434e794b993865ce606d2dd9679819
http://www.sciencedirect.com/science/article/pii/S266608492030485X