Zobrazeno 1 - 10
of 54
pro vyhledávání: '"Kathleen R. Bogart"'
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-9 (2024)
Abstract Background Before COVID-19, people with rare diseases (RD) experienced numerous disparities in quality of life and healthcare access and quality, yet little is known about the experiences of this underserved group during the pandemic. Result
Externí odkaz:
https://doaj.org/article/5129492c62434563ab7d884a26b6b9cf
Autor:
Kathleen R. Bogart, Veronica L. Irvin
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 12, Iss 1, Pp 1-9 (2017)
Abstract Background Twenty-five to 30 million Americans live with a rare disease (RD) and share challenges unique to RD. The majority of research on RDs has focused on etiology, treatment and care, while the limited health-related quality of life (HR
Externí odkaz:
https://doaj.org/article/4fa3ec39b2d94222963d9633b7788bf3
Publikováno v:
Body Image. 46:91-102
Publikováno v:
Qualitative Health Research. 33:63-80
In a two-study project, researchers used qualitative methods and inductive thematic analyses to investigate the lived awareness- and advocacy-related experiences of 27 adults with over 35 different rare diseases, disorders, or disabilities (RDs). In
Publikováno v:
Journal of Homosexuality. :1-26
Lesbian, gay, bisexual, and queer (LGBQ+) people and those with rare diseases (RDs) experience considerable enacted stigma due to their sexual identity and disability/RD status. The frequency, severity, and type of enacted stigma is often influenced
Publikováno v:
Scholarship of Teaching and Learning in Psychology. 8:15-26
Autor:
Jonathan H Norris, Marinka L. F. Hol, Lucas Gallo, Teresa O, Heather L. Baltzer, Andrea L. Pusic, David W. Johnson, Karen W. Y. Wong Riff, Dylan J. Murray, Charlene Rae, Nancy Van Laeken, Anne F. Klassen, Stefan J. Cano, Kathleen R. Bogart
Publikováno v:
Facial Plastic Surgery and Aesthetic Medicine, 24(1), 1-7. Mary Ann Liebert Inc.
Background: Systematic reviews have identified the need for a patient-reported outcome measure for facial nerve paralysis (FNP). The aim of this study was to determine the psychometric properties of FACE-Q Craniofacial module scales when used in a co
Publikováno v:
Stigma and Health.
Autor:
Kathleen R. Bogart
Publikováno v:
Disability & Society. 36:840-843
New face mask requirements to slow the spread of COVID-19 have complex ramifications on stigma for people who have facial paralysis or facial difference. The author, a psychology researcher who has...
Autor:
Samantha M Ross, Kathleen R. Bogart, Joonkoo Yun, Bridget E. Hatfield, Ellen Smit, Samuel W. Logan
Publikováno v:
Maternal and Child Health Journal. 25:542-553
Aim 1 was to establish updated prevalence estimates for meeting national physical activity (PA) guidelines among adolescents with and without special healthcare needs (SHCN), 12–17 years old. To identify at-risk subgroups, our sub-aim was to compar